Pediatric Transplant Council Annual Meeting Beth Kaufman, Chair Melanie Everitt, Vice Chair Elfriede Pahl, Past Chair

Agenda Report of Chair to Council - Beth Kaufman Report of Pediatric Transplant Workforces –Education Workforce – Daphne Hsu –Communications Workforce – Kimberly Gandy –Standards and Guidelines – TBD –Registries and Database – Richard Chinnock Announcements/New proposals –PEDIMACS – David Rosenthal –Other Pediatric Lung Transplant Collaborative

Pediatric Council Activities Pediatric Communications Workforce –Kimberly Gandy Workforce Leader Marc Richmond, Columbia University NY Nagarajan Muthialu Great Ormond Street, UK Juan Alejos, UCLA, CA Jonathan Johnson, Mayo Clinic NY Pediatric Transplant Discussion Google Group – –To join join

Pediatric Council Activities Pediatric Issue of LINKS – April Links.htmlhttp:// Links.html Thank you to all article contributors! Pediatric Program development 2012 Scientific Sessions –Melanie Everitt, Richard Kirk Pediatric Council Reps, Program Committee 2012 Program Committee 2013 Pediatric Council Representatives Christian Benden, TP Singh

Vice Chair Elections Vice Chair Elections – coming via (from Susie Newton) in May –Juan Carlos Alejos, Pediatric Heart Transplant, Los Angeles –Marc Schecter, Pediatric Lung Transplant, Houston

Report from Workforces Education Workforce – Daphne Hsu Communications Workforce – Kimberly Gandy Standards and Guidelines Registries and Database – Richard Chinock

ISHLT Education Committee and Pediatric Council Education Workforce Report

ISHLT Education Committee Council Reps and Chris Wigfield, Chair Ensure that the educational activities of the Society meet ACCME requirements as well as those of other medical education program accrediting bodies Identify the ongoing educational needs of the Society's members. Develop proposals for educational programs and services that meet the identified educational needs. Evaluate ISHLT's educational programs and recommend improvements. Develop criteria to which all ISHLT educational programs must adhere, to include the following: content and speaker selection standards; endorsement of educational programs by other organizations; development of educational programs jointly with other organizations. Review educational program proposals developed by the Scientific Councils. Refer discipline-specific proposals for educational programs to the appropriate Scientific Council Education Workforce for development into formal proposals.

ISHLT Education Committee (con’t) Act as liaison between the Scientific Council Education Workforces, the proposed educational program chair(s), and the Board to facilitate the development of well structured education program proposals to the board, with appropriate budget proposals. Evaluate requests from other organizations for ISHLT to co-sponsor or endorse educational programs and make recommendations to the Board of Directors for action. Act as liaison between the Scientific Council Education Workforces and the Annual Meeting Program Committee to facilitate the development of well structured proposals for the Annual Meeting Program Committee's consideration. Act as liaison with the Editor of the Journal of Heart and Lung Transplantation regarding the publication of any proceedings from such meetings.

ISHLT Committee Report Montreal Master Academy (two concurrent) –Pediatric transplantation –Mechanical assist or Advanced HF/Transplant San Diego Master Academy (in planning) Core competencies should be developed by each council International and Inter-society Committee Monograph: Pediatric lung, Infectious disease ID Council: What do you do? –E.g. Patient presents with: adenopathy, rash, diarrhea, etc. Five year strategic plan: mechanical assist, pulmonary artery hypertension

Pediatric Council Education Workforce Christian Benden Jerry Boyle Debra Dodd Eric Edens Melanie Everitt Kim Gandy Daphne Hsu Paul Kantor Richard Kirk Michael Kuhn David Morales Elfi Pahl Bart Rottier Janet Scheel TP Singh Stuart Sweet Jeff Towbin Simon Urshell

Current and Future Activities –ISHLT program development –Pediatric Master Academy –Core competencies –Review of ACGME fellow training guidelines –Five year education plan

Pediatric Transplant Master Academy Concept: Educational resource in core competencies in pediatric heart and lung transplantation Audience: Adult and pediatric heart failure and transplant cardiologists, transplant surgeons, nurses, nurse practitioners, physician assistants Montreal, hours of intensive CME Six Core Topics - Ped. adv. heart and lung failure- Periop issues - Ped. mechanical support- Long term issues - Management of the sensitized pt.- Hot Topics

Sample Program

Pediatric Cardiology Fellowship Guidelines for Training in Advanced Heart Failure, Transplantation, and Pulmonary Hypertension D. Dunbar Ivy, MD Thomas Kulik, MD Steven Webber, MD Elfriede Pahl, MD David Rosenthal, MD Robert Morrow, MD Daphne Hsu, MD

Entrustable Practice Activities (EPA)

ISHLT Registries & Database Committee Report ISHLT Pediatric Council April 18, 2012

Purpose: R&D Committee Vehicle whereby councils can propose “mini” or secondary registries within the ISHLT registry to evaluate issues not currently within the Registry.

Current Requests DCD Lungs Has been open for data since 12/2011 Only 5 centers currently enrolling patients Easier since it’s only a one time extra data point Infections for Lung Still in planning phases Challenge of episodic versus periodic reporting of data QOL for Lung Currently in early design phase

Request form will be sent to each representative for dissemination their council in case there are any requests for additional data collection.