1. Agenda 8:00pm Welcome Marc Richmond / Elfi Pahl 8:10pm
Steering Committee Report
Marc Richmond
8:20pm
DCC Update
James Kirklin / Nick Timkovich
8:40pm
Database Committee Report
Jennifer Conway
8:55pm
Quality of Life Update
Karen Uzark
9:00pm
Foundation Update
Craig Collum
9:10pm
Scientific Committee Report
Elfi Pahl
9:20pm
Enduring Hearts
Bob Boucek
9:25pm
New Foundation Officers
Melanie Everitt
9:30pm
Adjourn

2. 2018 Scientific Committee Members
Anne Dipchand, MD
Chair
Elfi Pahl, MD
Vice Chair
-Scientific-Steering
Committee Liaison
Members At Large
Scott Auerbach, MD
Steve Webber, MD
Bob Shaddy, MD
Kevin Daly, MD
Seth Hollander, MD
Ashwin Lal, MD
Jacque Lamour, MD
James Kirklin, MD
Katie Simpson, MD
David Sutcliffe, MD
Wally Carlo, MD
4/11/2019

3. Proposed Revision to Scientific Committee Member Rotation
Each year 3-4 new members will rotate on the Scientific Committee from the rotating list and 5 will rotate off
Terms will each be two years
The Steering Committee will appoint 1-2 senior investigators each term
The Steering Committee will appoint the Chair and Steering/Scientific Committee liaison
A list of interested members will be maintained by the DCC and 3-4 members will be invited at random for each term
Interested members can add their name to the list at anytime by ing Susanna Lenderman.

4. Submitted Manuscripts (November 2017)
Topic
First / Senior Author
Journal
HC Rejection
(Limited Data Set)
Jake Kleinmahon
Melanie Everitt
JHLT
HLA
Erin Albers
Yuk Law
Diabetes
Joshua Sparks
Bob Morrow
Pediatric Transplantation
Less Than 10 Kilograms
Jennifer Conway
Elfriede Pahl
Circulation Heart Failure
PTLD
Shawn West
Brian Feingold
Clinical Transplantation
4/11/2019

5. Manuscripts in Preparation
Topic
First / Senior Author
Status
CAV Practice Variation
Elfriede Pahl
Clifford Chin
Finalizing manuscript
Hemodynamic Surveillance
Kate Arbon
Steven Kindel
DCC updating analyses
Pulmonary Atresia/Intact Septum
Anna Joong
Rob Gajarski
Renal Dysfunction
(Joint PHTS/Pedimacs)
Seth Hollander
Jennifer Conway
Manuscript in progress
Rejection Working Group
Justin Godown
Daphne Hsu
4/11/2019

6. Manuscripts in Preparation
Topic
First / Senior Author
Status
VAD Infection
Scott Auerbach
James Kirklin
Finalizing manuscript
Single Ventricle MCSD
Bibhuti Das
Immunosuppression Working Group
Marc Richmond
Robert Gajarski
Drafting manuscript
MCSD Graft Failure
Jacob Simmonds
Linda Addonizio
Heterotaxy
Asma Khan
Melanie Everitt
Working on manuscript draft
4/11/2019

7. Manuscripts in Preparation
Topic
First / Senior Author
Status
Fontan
(Limited Data Set)
John Dykes
Chris Almond
Updating analyses
PVR
Stephanie Handler
Steven Kindel
Drafting manuscript
4/11/2019

8. Ongoing Projects Topic First / Senior Author Status Barth Syndrome
(Limited Data Set)
Brian Feingold
Extra data collection complete, beginning analyses for abstract
4/11/2019

9. Abstracts submitted to ISHLT 2019
Topic
First / Senior Author
Liver Dysfunction
Shahnawaz Amdani
Kevin Daly
ABO Incompatible
Simon Urschel
Wally Carlo
ReTransplantation
Mari Carmen
Anne Dipchand
4/11/2019

10. Presentations at AHA
4/11/2019

11. AHA 2018 Presentations
Educational and Learning Morbidity in Pediatric Heart Transplant Recipients: A Pediatric Heart Transplant Society Study – Poster Presentation
Micah S Brosbe, Lydia Wright, Elizabeth Pruitt, William J Dreyer, Sonya Kirmani, Margaret Knight, Stephanie Nakano, Steven J Kindel, Thomas D Ryan, James K Kirklin, Shriprasad R Deshpande
When: Saturday, November 10, 2018 (11:30-12:45)
Session: Congenital Heart Disease Outcomes
Location: Science and Technology Hall, Zone 3
4/11/2019

12. Publications: November 2017 – November 2018
4/11/2019

13. Recent Publications
Pediatr Transplant 2018 Feb, 22(1)
4/11/2019

14. Recent Publications J Heart Lung Transplant 2018 Apr, 37 (4) 441-450
4/11/2019

15. Recent Publications J Heart Lung Transplant 2018 Apr, 37(4) 458-466
4/11/2019

16. Recent Publications J Heart Lung Transplant 2018 June, 37 (6) 715-722
4/11/2019

17. Recent Publications American College of Cardiology
2018 July, 72 (4)
4/11/2019

18. Recent Publications
Pediatr Transplant 2018 May, 22(3).
4/11/2019

19. Recent Publications Just Accepted at JHLT
Long-term Outcomes After Transplantation Following Support with a Pulsatile Pediatric Ventricular Assist Device
Aamir Jeewa, Michiaki Imamura, Charles Canter, Robert A Niebler, MD, Christina VanderPluym, David Rosenthal, James K. Kirklin, Ryan S. Cantor, Margaret Tresler, Michael McMullan, Victor Morell, Mark Turrentine, Rebecca Ameduri, Khanh Nguyen, Kirk Kanter, Jennifer Conway, Robert Gajarski, Charles D. Fraser Jr.
4/11/2019