P UBLIC D ISCLOSURE : W AYNE S TATE U NIVERSITY Valerie Mika, MS

D ETROIT EMS WSU Detroit Receiving Hospital Sinai Grace Hospital St. John Hospital Henry Ford Hospital 24 Medic Units

RAMPART E NROLLMENTS 178 patients enrolled at WSU 64 patients enrolled at HFH Detroit EMS total = 242 patients

C OMMUNITY C ONSULTATION Epilepsy Surgery Support Group I Epilepsy Today 2008-Metro Detroit Area Conference Epilepsy Surgery Support Group II University of Detroit Mercy Student Senate Detroit Receiving Hospital Lobby and University Health Center Lobby Dr. Jimmy Womack Radio Show (WGPR 107.5FM) Sinai-Grace Hospital ED Waiting Room Bates Academy LSCO meeting Crockett Technical High School LSCO Meeting Pasteur Elementary School LSCO Meeting Detroit Public School City Wide School LSCO Meeting HFH internal survey New Center Pediatric Clinic I West Bloomfield epilepsy inpatient monitoring - pediatric Chadsey Detroit Public School - Local School Community Organization NAACP Freedom weekend - networking expo HFHS Epilepsy surgery support group Winter-Halter LSCO HF- Town Hall Meeting New. St. Paul Tabernacle

P UBLIC D ISCLOSURE Media Briefing - Detroit News, Fox News, and WDIV channel 4 Detroit News Article Detroitnews.com National Press Release through PR Newswire Twitter twitter.com/henryfordnews Henryford.com Morning Post - HFHS Newsletter for employees Morning Post - HFHS employee Newsletter Freedom Weekend Display - NAACP Brain Injury Association of Michigan Conference Henry Ford West Bloomfield ED Poster Henry Ford West Bloomfield Hospital One Year Anniversary Celebration West Bloomfield Township Library Henry Ford West Bloomfield Epilepsy Monitoring Unit Henry Ford West Bloomfield ED Webpage Link Health and Wellness Day Telephone PSA DMC Weekly E-news Ad Fox 2 News Interview

WSU P UBLIC R ELATIONS School of Medicine distributes to WSU Main Campus Two avenues list of healthcare reporters locally (Detroit area) and nationwide PRNewswire – service that WSU pays for – RSS feed gets distributed and the press release is automatically posted News sources that hold “more value” Detroit Free Press and WDIV CBS Detroit News picked up the WSU story PRNewswire/ US Newswire $15000 membership fee including releases nationwide Range of $ per release

T IME L INE Feb 14, 2012 WSU SOM Public Affairs contacted Dr. Welch regarding questions about study results Feb 15, 5pm Article was distributed to the media Feb 16, 2012 Back and forth with the IRB about what needs to be approved before starting pubic disclosure Feb 17, 2012 IRB expedited the approval the WSU Press Release – CBS Detroit News – and New England Journal of Medicine Constant contact with the expedited reviewer

WSU PR S ERVICES Free Online Services EurekaAlerts Collegenewswire.com WSU Public Relations Prognosis E-News Research Prognosis E-News School of Medicine Division of Research Wayne State University Website (Wayne.edu) School of Medicine Website (Med.wayne.edu) WSU South End Newspaper Article Social Media Pinterest Facebook Twitter Blogs BrainTalk Communities: Online Patient Support Groups for Neurology

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L IST OF PD A CTIVITIES ( ONLINE ) CBS Detroit Science Newsline Medicine - Health professional HeathNewsDigest.com - Health professional Topix.com BrainTalk Communities: Online Patient Support Groups for Neurology BrightSurf.com: The resource for science information Sandiegojack.com (radio station website) MEDMERITS: Free access to the information doctors rely on Newsedge Sci Guru: Science News Feed My Science College Newswire Alltopics.com Life Science log

D OCUMENTS SUBMITTED TO THE IRB WSU and SJH IRB Notification letters Detroit EMS Medics and EMS Chief Subjects Website script ( EMS Newsletter Template

N OTIFICATION L ETTERS Number of subjects: repeat subjects (1 patient =13x) 28 declined consent 2 repeat subjects 25 returned with unable to forward note

P RESENTATIONS The 30th Annual Emergencies in Medicine Conference Park City, Utah William Coplin, MD Detroit Receiving Department of Emergency Medicine Grand Rounds William Coplin, MD State of Michigan EMS Quality Assurance Taskforce Dr. Vohra from HFH

O THER to fire chief City of Detroit Notification Letter Mayor Dave Bing Detroit East Medical Control Authority (DEMCA) Epilepsy Foundation of Michigan

F EEDBACK Subject Notification letters “please remove ____name from your database to receive these letters and any future correspondences, she passed away Thank you.” Blogs “Thank you so much for posting this very valuable information. It's reassuring to know that there is another option to IV Ativan. Love & Light, Rose”

F EEDBACK Facebook One share Wayne State University School of Medicine via Wayne State University “Fascinating news about stopping prolonged seizures before getting to the ER.” 4 Likes

T HANK YOU !