In their shoes: Telling and using patient stories Dr. Catherine Crock & Frank Concilia

Session objectives Goal Having an understanding why it is important to "use" stories Bring out the best of your stories Ways of capturing stories Goal Improving patient outcomes

Our story Joshua's first experience

Why tell stories? Visualise someone else's values, beliefs and assumptions Emotional and cultural connect Communicates a message Becoming aware of a situation/something Help change perceptions Non hostile

Your story Working with people next to you, share your story with them What are the 5 important things that matter? Determine the main gist of the shared stories

The gist - Something to tell! Excellent care Unsatisfactory care (physical/emotional harm) Good practise/new research Quality improvement

Quality improvement Stories focuses on individuals via mental models (VBA) Event alignment (timeliness & sequences) Made up from network of events, actions, relationships and environments Ethics - expected behaviours Bridges gaps between formal and informal cultures

Capturing stories The 21st Century - We are changing Digital Storytelling Blogs/Wikis Web20 Tools Recordings Australia Centre for the Moving Image ACMI Training for the Last Run

Digital storytelling: Digital storytelling refers to a short form of digital media production that allows everyday people to share aspects of their life story. "Media" may include the digital equivalent of film techniques (full- motion video with sound), animation, stills, audio only, or any of the other forms of non-physical media (material that exists only as electronic files as opposed to actual paintings or photographs on paper, sounds stored on tape or disc, movies stored on film) which individuals can use to tell a story or present an idea. Source: http://en.wikipedia.org Microsoft Photostory, Windows Movie Maker, Apple iMovie, Apple iPhoto Journals, Audacity by Sourceforge Apps - SonicPics by Humble Daisy Inc., Backspaces by Backspaces Inc.

Blogs & Wikis A blog is a discussion or informational site published on the World Wide Web and consisting of discrete entries "posts" typically displayed in reverse chronological order A wiki is a website which allows its users to add, modify, or delete its content via a web browser. Most are created collaboratively. Wikis serve many different purposes, such as knowledge management and notetaking. Wikis can be community websites Source: http://en.wikipedia.org Common blog - Blogger, EduBlog, Tumblr, WordPress Common wikis - Wikispaces

Web 20 Tools A Web 2.0 site may allow users to interact and collaborate with each other in a social media dialogue as creators of user-generated content in a virtual community, in contrast to websites where people are limited to the passive viewing of content. Examples of Web 2.0 include social networking sites, blogs, wikis, video sharing sites, hosted services & web applications Source: http://en.wikipedia.org Online tool for social comment and reflection: VoiceThread, FaceBook, Google+, YouTube, IM

Recording - Audacity Audacity is a free digital audio editor and recording application, available for Windows, Mac OS X, Linux and other operating systems. Audacity was the 11th most popular download from SourceForge, with 76.5 million downloads. Audacity won the SourceForge 2007 and 2009 Community Choice Award for Best Project for Multimedia Source: http://en.wikipedia.org

Pen & Paper

Good listeners After listening to stories, what follow up questions may help? How would you like me to be involved? How long has this been an issue/had a positive impact? What action have you taken? What is the outcome you are looking for? What is the best way to move forward?

Actions and Reflection What are the common themes from the stories? How can we improve the situation? Can we act to maintain/improve safety to patients by the stories they tell? Can these stories impact on quality improvement policies?