1. Connect Distance Caregivers to the Help they Need: A National Problem with Local Solutions CMS Caregiver Workgroup May 27, 2010 Washington, D.C. Nora Jean Levin Caring from a Distance Kathy Sterbenc Trilogy/ Network of Care © 2010 Caring from a Distance

2. 6.9 Million Long Distance U.S. Caregivers live at least an hour away from family members needing assistance. In 2002, Caring from a Distance was founded as a 501(C) organization to serve this group.

3. © 2010 Caring from a Distance Time/Distance Effective Communication from Afar Assisting with Medical, Legal, Financial and Personal Care Evaluating Conditions and Behavior to Gauge Risk Balancing Work/Travel/Family Finding Help

4. © 2010 Caring from a Distance Provide a free, trusted one stop, web-based information and resource center for distance caregivers Expand access to local solutions via a growing network of selected links and information. Facilitate communication for family caregivers through on-line tools

5. Caring from a Distance Technology Partner Trilolgy Integrated Resources/Network of Care www.trilogyir.com www.networkofcare.org © 2010 Caring from a Distance

6. A Long Distance Caregiver Story http://www.youtube.com/watch?v=WHROgBym2z4 © 2010 Caring from a Distance

7. www.cfad.org Featured Highlights: Enriched Searchable Database Content Shared Access to Family Records Outreach via Social Networking © 2010 Caring from a Distance

8. Metro Washington D.C. Directory Database Partners Jewish Council for the Aging (JCA) Senior Helpline http://www.accessjca.org The Guide to Retirement Living http://www.retirement-living.com © 2010 Caring from a Distance

9. Metro Washington D.C. Directory - Categories © 2010 Caring from a Distance

10. Metro Washington D.C. Directory Database Features Telephone/email access to trained local Information and Referral Specialist Searchable Metro Directories with enriched content databases User-friendly two-tiered categories plus topical sub- listings Add-Correct on-line utility © 2010 Caring from a Distance

11. Our Family Folder: Access to Personal Care Information © 2010 Caring from a Distance

12. “Our Family Folder” A Safe Place to Store Personal Information Non-commercial HL7 registered PHR “Interoperability standards" for syncing with electronic medical records Belongs to and is controlled only by the person who develops the record, but can be shared with others Primary Folder includes: Emergency Card Health Team Health Facilities Medical History Insurance Services and Resources © 2010 Caring from a Distance

13. Caring from a Distance Outreach © 2010 Caring from a Distance

14. Long Distance Caregiving - A Husband’s Perspective http://www.youtube.com/watch?v=qiJs4eY4aoA&feature=relat ed © 2010 Caring from a Distance

15. Social Networking Facebook http://apps.facebook.com/causes/213795 Facebook Fans http://www.facebook.com/home.php?#/pages/wwwcaringfromadistanceorg/200082695618 http://www.facebook.com/home.php?#/pages/wwwcaringfromadistanceorg/200082695618 “Jean Levin” Facebook page Twitter: www.twitter.com/wwwCFADorgwww.twitter.com/wwwCFADorg CarePages: LongDistanceCaregiving Blog https://www.carepages.com/carepages/longdistancecaregivinghttps://www.carepages.com/carepages/longdistancecaregiving Network of Care Social Networking Caring from a Distance Grouphttp://community.networkofcare.org/groups/caring_from_a_distance/blog/default.aspxhttp://community.networkofcare.org/groups/caring_from_a_distance/blog/default.aspx Linked In. 12 groups to spread the word. You Tube www.youtube.com/caringfromadistancewww.youtube.com/caringfromadistance © 2010 Caring from a Distance

16. Trilogy/Network of Care Kathy Sterbenc, Publisher (415) 458-5900 Kathy@trilogyir.com www.networkofcare.org © 2010 Caring from a Distance