Cancer Patient Education Network

CPEN Overview 1989: Established by the National Cancer Institute – 10 Comprehensive Cancer Centers represented including Mayo Clinic 2002: Mayo hosted the annual CPEN Conference (150 members) 2005: 501(c)3 status initiated to become a non- profit, dues-paying, independent organization – expanding membership 2005: Mayo Clinic Cancer Center; founding sponsor of ‘new’, independent CPEN

CPEN Overview 2007: 501(c)3 status approved 2007: 501(c)3 status approved 2008: First CPEN Chapter established with Canada 2008: First CPEN Chapter established with Canada 2008: Formal partnership with the American Association of Cancer Education (AACE) to co-host annual conference 2008: Formal partnership with the American Association of Cancer Education (AACE) to co-host annual conference 2008: Membership – 237 representing the US, Canada, Australia, and Japan 2008: Membership – 237 representing the US, Canada, Australia, and Japan

CPEN and Mayo Priorities Needs of the patient come first Needs of the patient come first Scope of practice: Scope of practice: Prevention, Detection, Treatment, Survivorship, End of Life Audience: Audience: Pediatrics – Adult; Public, Patients, Families, Staff Education Research, Publishing Education Research, Publishing Evidence-Based Practice Evidence-Based Practice

Current Mayo Members Sarah Christensen Sarah Christensen Kelli Fee-Schroeder – CPEN Chair ; Board of Directors 2001–2002; 2004-present Kelli Fee-Schroeder – CPEN Chair ; Board of Directors 2001–2002; 2004-present Janine Kokal- CPEN Secretary Janine Kokal- CPEN Secretary Sheryl Ness Sheryl Ness

CPEN Members Areas of Expertise Evidence-based practice (EBP) Health literacy and readability Translation initiatives - Alternative language national database of patient education cancer & health-related translated materials - Support for of non-copyrighted, easy-to-read health education documents in 17 languageswww.healthinfotranslations.com

CPEN Members Areas of Expertise Survivorship Survivorship Learning Resource Centers Learning Resource Centers Complementary and Alternative Therapies Complementary and Alternative Therapies Patient Education Administration Patient Education Administration Patient Education Competencies Patient Education Competencies Outreach initiatives Outreach initiatives Professional Development Professional Development

CPEN’s Impact on the Mayo Clinic Cancer Education Program Curriculum development -Chemotherapy class & research study -Meet the Expert/PaLS sessions Curriculum development -Chemotherapy class & research study -Meet the Expert/PaLS sessions Survivorship survey study Survivorship survey study Outreach models Outreach models Oncology Interactive Education Series – computer-based program in CEC Oncology Interactive Education Series – computer-based program in CEC

CPEN’s Impact on the Mayo Clinic Cancer Education Program Professional Development opportunities -Publishing -Oral/poster presentations to international audiences -Leadership development Professional Development opportunities -Publishing -Oral/poster presentations to international audiences -Leadership development Model for MCCCEN (Mayo Clinic Cancer Center Education Network) Model for MCCCEN (Mayo Clinic Cancer Center Education Network) Regional, national, and international contacts for MCR, MCA and MCJ staff Platform for Mayo to highlight and lead cancer education initiatives

Professional Contacts Personal, one-to-one relationships Personal, one-to-one relationships Access to new patient education resources and materials Access to new patient education resources and materials Sharing innovative programming and technologies Sharing innovative programming and technologies Partnering/collaborating on research initiatives Partnering/collaborating on research initiatives City of Hope City of Hope Dana Farber Dana Farber Fox Chase Fox Chase Huntsman Cancer Institute Huntsman Cancer Institute James Cancer Center – Ohio James Cancer Center – Ohio Karmonos Karmonos Lance Armstrong Foundation Lance Armstrong Foundation MD Anderson MD Anderson Memorial Sloan Kettering Memorial Sloan Kettering Moffit Cancer Center Moffit Cancer Center National Cancer Institute National Cancer Institute Princess Margaret – Toronto Princess Margaret – Toronto Seattle Cancer Care Alliance Seattle Cancer Care Alliance Sitemann Cancer Center Sitemann Cancer Center University of Alabama-Birmingham University of Alabama-Birmingham University of Iowa University of Iowa University of Minnesota University of Minnesota

Key Networking &/or Partnering NCI - Office of Education and Research Dissemination NCI - Office of Education and Research Dissemination American Association for Cancer Education (AACE) American Association for Cancer Education (AACE) CancerCare CancerCare National Marrow Donor Program National Marrow Donor Program

Key Networking &/or Partnering CPEN List-serv CPEN List-serv NCI – Cancer Patient Education List-serv NCI – Cancer Patient Education List-serv NCI Cancer Centers and community cancer centers and organizations NCI Cancer Centers and community cancer centers and organizations