Improving care for people with intellectual disabilities across the life span The ACI Intellectual Disability Network: Maxine Andersson Agency for Clinical Innovation 29 March 2011

Summary of key areas  Developing model of care  Improving workforce  Providing comprehensive, integrated and accessible health care  Developing collaborative partnerships  Improving advocacy for people with ID and their carers  Determining rural and regional needs  Improving mental health services 2

Models of Care Support the ID Health Pilot to develop a partnership model for integrated health care for people with ID in regional, rural and underserviced areas in NSW. Determine the evidence base of currently used health assessments, interventions and models of care in people with ID in NSW Identify current services provided for people with ID and range of their activities – including mapping target populations, types of health services and health services provided by. GPs. 3

Improving Workforce Establish consultant positions in Intellectual Disability in large hospitals Increase capacity/knowledge/skills base in the general workforce Expansion of training structure for ID mental health within current psychiatric training setting Review problems of staffing in LHNs without services and determine how to maximise responsiveness of Local Hospital Networks to people with ID 4

Comprehensive, integrated and accessible care:  More local access to disability clinics with specialist Doctor’s in disabilities for assessment and review  More appropriate facilities / support for person with Intellectual Disability with complex care needs e.g. Adolescent with a brain injury with challenging behaviour struggles to gain equity of care within a hospital facility.  Lobby for and facilitate access to comprehensive & expert health services  Equity of access to child developmental assessment services across the state with uniform assessment procedures to full assessment. 5

6 Collaborative partnerships  Develop linking and networking of health professionals – dissemination of information, support and professional development activities.  Improve and formalise relationships between NSW Health and all relevant government and non government organisations  Multidisciplinary care coordination and long term case management across medical and non-medical disciplines (outpatient setting)  Establish processes for clear joint care planning across agencies including agreement re. templates for joint care plans that include service responsible and review processes.

Mental health  A specialised service for intellectual disabilities within Mental Health & Drug and alcohol Services including dedicated psychiatric unit (s) for assessment/treatment  Recognition and equitable treatment of people who have an ID and a mental health issue  Development of an integrated care pathway for mental health care for people with an ID 7

Rural and regional needs  Ensure equity of access where possible  Provide therapy and respite services  Transition services 8

Providing advocacy for people with ID and carers 9  Develop strategies to support people with ID to make informed decisions about their health (empowerment and self determination)  Support those at risk of neglect, risk taking behaviour  Improve access to adequate respite and support for carers

10 ID Network: Draft Work Plan  The work plan and key performance indicators for the Network for Intellectual Disability will align closely with: ▲ The NSW State Health Plan (A New Direction for NSW Towards 2010) and ▲ The key outcomes of the Service Framework to Improve Health Care of People with Intellectual Disabilities.

11 Strategic Directions of the 2010 NSW State Health Plan 1. Make Prevention Everybody’s Business 2. Create Better Experiences for People Using Health Services 3. Strengthen Primary Health & Continuing Care in the Community 4. Build Regional and Other Partnerships for Health 5. Make Smart Choices About the Costs & Benefits of Health Services 6. Build a Sustainable Health Workforce 7. Be Ready for New Risks and Opportunities