Good Morning Connecting with National Cancer Institute Sara Comstock, ICC, NCI CIS Maebe Brown, NCI CIS

“This information is presented to enhance your efforts in conducting cancer control interventions in your Community”

Quick Assessment of Your Experience with NCI Resources

“ “One or two things I hope to learn at this Session” 1. 2.

Programs

CANCER 101 A Cancer Education and Training Program for American Indians and Alaska Natives

Goal ► ► Provide basic information about cancer Audience Community Members, Cancer Patient/Family Education, Healthcare Staff

Cancer 101 Curriculum ► ► Module 1 - Cancer Data ► ► Module 2 - What is Cancer? ► ► Module 3 - Cancer Screening and Early Detection ► ► Module 4 - Cancer Diagnosis and Staging ► ► Module 5 - Cancer Risk Factors and Risk Reduction ► ► Module 6 - Basics of Cancer Treatment ► ► Module 7 - Support for Patients and Caregivers

How to Access? Posted on Call

Clinical Trials

Why Care About Clinical Trials? Clinical Trials save lives by leading to:  Improved cancer care delivery and treatment management.  Prevention of specific cancers in healthy people who are at high risk for cancer.

► Fewer than 3% of adults with cancer participate in clinical trials.   Less than 5% of all eligible people with cancer o o Few over age 65 o o Ethnically diverse populations o o Even fewer in many large prevention trials ► Many people are:  Unaware of the option of clinical trial participation.  Misinformed about the clinical trial process.

Clinical Trials Education Series (CTES) ► Group of 13 different educational resources to support targeted education and outreach programs. ► CTES Includes:  Workbooks  Booklets  Brochures  Videos  Slide Programs  Web-based Courses

For: ► Individuals who want to develop a basic understanding of clinical trials Content: ► Clinical trial process ► How clinical trials lead to advances in care ► Participant protection ► Barriers to participation ► Finding clinical trials ► Exercises and reviews Basic Workbook (91 pages)

In-Depth Program (96 pages)For: ► Health care professionals ► Others seeking a more in-depth understanding of clinical trials Content: ► Same as basic workbook and more (e.g., designing a trial and interpreting results) ► Conducting, locating, and referring to trials ► Case study

For: ► Individuals and organizations engaging their communities in clinical trials outreach and education activities Content: ► Educating yourself and others ► Reaching underserved populations in your community/outreach ► Working with the media ► Working with medical organizations A Resource Guide for Outreach, Education, and Advocacy (116 pages)

Trainer’s Guide for Cancer Education (115 pages) For: ► Health professionals and lay people who conduct group training sessions with community and scientific audiences Content: ► Steps to plan, implement, and evaluate trainings ► Examples of training methods ► Worksheets/planning tools

Brochures For: ► ► Cancer patients considering a clinical trial (purple cover) ► ► Medicare recipients considering a clinical trial (green cover) Content: ► ► What are clinical trials? ► ► What are my rights? ► ► What are the risk and benefits? ► ► What questions should I ask? ► ► What does Medicare pay for? Also available in Spanish Coming Soon: Brochure on Prevention Clinical Trials in English and Spanish

Booklet & DVDFor: ► Cancer patients considering a clinical trial Content: ► What are clinical trials? ► What happens in a clinical trial? ► Should I take part? Available in English and Spanish 19 pages28 pages

Ask Me about Clinical Trials Posters and Button It can be worn by health care providers, clinical staff, patients, and advocates. Posters come in two designs, one featuring a group of patients anda group of patients the other a health care provider.health care provider

Slide Programs (CD-ROM) Cancer Clinical Trials: The Basics ► For general audiences ► Includes speaker’s notes Cancer Clinical Trials... The Way We Make Progress Against Cancer ► For limited literacy audiences in a community setting ► Includes speaker’s notes Clinical Trials: In-Depth Information ► For health professionals ► Presenter prepares speaker’s notes Coming Soon: Spanish Slide Program

Web-based Course (with CME) Title: ► Incorporating Clinical Trials into Your Practice ( For: ► Health care professionals Content: ► Challenges and solutions to participation in clinical trials ► Practical information to help guide patients considering the option of a clinical trial Also available: Human Participant Protection Education for Research Teams

How to Access? ► Resources can be:  Downloaded  Ordered online  Ordered by telephone

Education in Palliative & End of Life Care for Oncology (EPEC-O) ► Multimedia train the trainer curriculum  Pain and symptom management  Care planning  Communication ► Multimedia train the trainer curriculum  Pain and symptom management  Care planning  Communication

Tools Cancer Control P.L.A.N.E.T UnderstandingRisk web site Understanding Cancer Series Publication Locator

Lots of “Information” Out There...

* Cancer Control PLANET *Plan* Link *Act *Network with Evidence-based Tools Gateway to data and research-tested resources that can help planners, program staff, and researchers to design, implement, and evaluate evidence-based cancer control programs.

Understanding Cancer Series

Cancer Risk: Understand the Puzzle ► NCI Interactive Site about cancer risk for cancer free adults ► Topics  Definition of Risk  Risk Information for six common cancer  Action Steps to lower ones risk  Tips for understanding cancer news stories  Tools to use with your doctor to manage cancer risk Risk -

Ordering Publications ► ► Hundreds of Publications   Reports, Booklets, Pamphlets, Kits ► ► Multitude of cancer-related topics for both health care professionals and patients.

“ This information was presented to enhance your efforts in conducting cancer control interventions in your Community” Can you list one or two things you learned at this Session are?

Sara Comstock Iowa Cancer Consortium (319)