GLRSN ORIENTATION December 17, 2009 Angela Bray Hedworth, MS, RHEd, CHES, Program Manager/GLRSN

HISTORY HDSP Programs collaborated over 25 years. Initially funded in 2004, refunded in Current funding ends on June 30, Initial meeting of the GLRSN in February, GLRSN Meeting 2008

MISSION Reduce the burden of stroke and disparities within Great Lakes regional states by optimizing coordination and collaboration. Priorities: –EMS Notification and Response –Evaluation and Surveillance –Quality of Care

How We Carry Out Our Mission State Advisory Board Work Groups –EMS Notification & Response –Evaluation/Surveillance –Quality of Care State Stroke Task Forces Clinical Advisory Team Policy and Procedure Guide

GLRSN STRUCTURE Stanton Shanedling Fred Petillo Marjori Allen Eileen Worden Barbara Pryor Michael Gaines Dilip Pandey UIC/GLRSN Staff Effective 07/01/09 Angela Hedworth

RECENT PROJECTS

2009 – 2010 INITIATIVES Continuing Quality of Care calls –Collaborate with PCNASR Discharge Planning/Rehabilitation Project Rural Health/Critical Access Hospital Initiative Dysphagia Screening Project Patient Education Project ASLS Training for EMS GIS Mapping Projects/Epidemiology Partnership Disparity Analysis/REGARDS

Foster Key Stroke System Level Changes Make Vital Contributions to Reducing the Burden of Stroke Secure and Leverage Required Resources Increase and Demonstrate the Unique Value of the Network Expand Network Engagement and Increase Support Great Lakes Stroke Network Strategic Map: Promote Public/Provider Education on Signs, Symptoms and 911 Facilitate Efforts to Improve Quality of Care Provide Technical Assistance to Improve EMS Stroke Response Expand and Diversify Network Funding Increase the Use of Expertise Within and Across Stroke Networks Support Uniform Network Epidemiology and Surveillance System Enhance Communication within the Network and with Outside Partners Build Primary Data Collection Within the Network Increase Number of Network Participants and Partners Engage Key Stakeholders and Champions Increase Task Force Engagement in Implementation of Strategic Plan Foster Expanded Use of Telemedicine Expand Range and Types of Partner Contributions Educate Policy Makers Using Key Partners Support and Facilitate Effective Stroke Rehabilitation Develop the Network’s Brand Improve Secondary Prevention by Integrating Across Chronic Diseases

Rehabilitation Rehab report created Realized we still didn’t know much about rehab. Expanded rehabilitation project with discharge planner project with PCNASR

Quality of Care Calls Upcoming –April 8, 2010 “Fresh Approaches to Patient Education.” (Launch of new patient education toolkit/materials) –June 10, 2010, “Stroke Rehabilitation Theory and Fact: An Outcomes Based Approach.” –Archived versions can be found at:

Dysphagia Project Work group created Reviewed screens in use Multiple presentations (TORBSST ©, TJC, successful hospitals, screens in the literature) Writing group glstrknet/dysphagia.htmlhttp:// glstrknet/dysphagia.html

Evaluation/Surveillance Partnership with REGARDS re: Risk Factor data for the Great Lakes Region Partnership with UDSMR for rehabilitation data GIS maps

A SAMPLING OF SUCCESSES Received Heart Healthy Stroke Free Award in 2009 Created regional stroke plan and 2 strategic maps Created a stroke rehabilitation regional inventory tool, collected data, creating report. knet/rehab.html knet/rehab.html Website ( Monthly Wave Inventory of state stroke data sources Partnered with NSA on Regional Stroke Meeting in 2006 and Promotional Brochure, FAQ sheet, other promotional materials. net/dysphagia.html net/dysphagia.html Burden Documents, Stroke Atlas & state stroke fact sheets Partnering with Professional Sports How to Guide Compilation of available Stroke Education Materials, Stroke Media campaigns, evidence based guidelines Quality of Care calls reaching over 3500 people. Over 510 people on listserv

WHAT CAN YOU DO? Write letter of support Respond to listserv questions Share success stories Complete evaluations Share resources, conferences, etc. Share pictures Promote GLRSN calls and materials

AWARD WINNER In 2009, the GLRSN was awarded the Heart Healthy Stroke Free award by the National Forum for Heart Disease and Stroke Prevention.

State Contacts –Illinois - Michael Gaines, MPA –Indiana – Marjori S. Allen, RN, CPM, MBA-HCM –Michigan – Eileen Worden, RN –Minnesota – Stan Shanedling, PhD, MPH –Ohio – Barbara Pryor, MS, RD, LD –Wisconsin – Fred Petillo, MBA Program Contact –Angela Bray Hedworth, MS, CHES, RHEd Program Manager Phone (312) or