Best Practice Guidance in the Social Care and Rehabilitation of Adults and Children with Disabilities Projects in Northern Ireland Stephen Mathews, Chief Executive of The Cedar Foundation

“On paper, (people with disabilities) have enjoyed the same rights as others: in real life, they have often been relegated to the margins and denied the opportunities that others take for granted.” Previous UN Secretary General, Kofi Anan

Equality and non discrimination Accessibility Right to life Equal recognition before the law Access to Justice Liberty and security of the person Freedom from exploitation, violence and abuse Living independently and being included in the community Personal mobility Education Habilitation and rehabilitation Work and employment Adequate standard of living and social protection Participation and cultural life, recreation, leisure and sport UN Convention of Rights

Established in 1941 Registered Charity & Company Limited by Guarantee Services for people with Disability Regional Organisation / 22 service locations Budget £6.5m 250 Staff 1,600 Service Users Introduction To The Cedar Foundation

The Cedar Foundation Vision and Mission The Cedar Foundation’s Vision is a society in which disabled adults and children are fully included citizens. Our Mission is to provide quality support, care, accommodation and training services to enable disabled adults and children to participate in all aspects of community life.

WHAT WE WILL ACHIEVE Priority 1: Champion Inclusion of People with a Disability Priority 2: Value User Involvement and Focus on Customers HOW WE WILL WORK Priority 3: Strive for Excellence Priority 4: Work in Partnership HOW WE WILL LEARN AND GROW Priority 5: Invest in Our People HOW WE WILL MANAGE RESOURCES Priority 6: Optimise Resources Priority 7: Provide Value for Money Organisational Learning and growth Results Internal Processes Financial The Cedar Foundation Strategic Plan

Department of Health Social Services and Public Safety Health and Social Care Board Public Health Agency Western Health and Social Care Trust Southern Health and Social Care Trust South Eastern Health and Social Care Trust Northern Health and Social Care Trust Belfast Health and Social Care Trust Non Government Organisations Service Users Informing Policy and Commissioning Policy and Commissioning Services Delivering Outcomes NGO’s & Health and Social Care in NI

A Quality Journey

Enable people with disabilities to obtain and maintain maximum independence. Full inclusion and participation in all aspects of life. Habilitation and rehabilitation services delivered in the areas of health, employment, education and social services. Early intervention and multidisciplinary assessment. Local services available including rural areas. Promote initial and continuing training for professionals and staff. Promote the availability, knowledge and use of assistive devices and technologies. Article 26 – Habilitation and Rehabilitation

A range of time limited – 3 years, output orientated services promoting independence, gaining qualifications and developing personal resilience as alternatives to institutional day-care and community isolation. Developing skills for community participation Work and Life Skills Active Futures – Support for Young People (Transition) Community Inclusion and Social Networking – Peer Support Specialist support– Assistive Technology Vocational rehabilitation Training and Brain Injury Services

We believe that every person with a disability should have the chance to get a job and the opportunity to live life to the full in their local community. We offer on-going support and practical assistance to take part in educational, vocational and social opportunities in the individual’s local area as well as access to a wide range of supported work placements and employment opportunities. Training and Brain Injury Services

Our Services are designed to be person–centred and flexible to allow individuals to design their own programmes around their needs and aspirations. This helps each individual to build up a programme at their own pace, as their confidence grows, and ensures that we can respond to individual issues and concerns. Training and Brain Injury Services

Employment and Learning –

Induction Action Planning Needs Assessment Programme Delivery Monitoring & Review Progression Follow Up Referral Liaison with: Community Resources Employers Further Education Training Providers Support from Families& Social Care Professionals Trainee Pathway

Vocational Rehabilitation

Positive, sustainable progression routes for leavers – socially/economically inclusive activities, community participation – dependence to independence. Achievement of qualifications including (Basic)Essential Skills – Numeracy and literacy. Access to ICT training, accreditation and access to adaptive technology. Improved opportunity to access government training and employment programmes. Enhanced levels of personal and social development. Fuller inclusion in local community. Service Outcomes

400 participants per year 90% of the service users leave with a positive outcome Purchaser Satisfaction is > 90% User Satisfaction is >95% Qualitative Outcomes (Rickter Scale - self-esteem, confidence, psychological well-being) Quantitative targets are: 40% Work (30% employment, 10% voluntary work) 30% Education or Training 20% Social Inclusion Service Results

£6m – ESF 35% This Programme is part financed by the European Social Fund and the Department for Employment and Learning Funding Partners

Opportunity to choose their place of residence, where and with whom they live. Access to a range of in-home, residential and other services to support living and inclusion in the community. Equal access to community services and facilities that are available for the general public. Article 19 – Living Independently and Being Included in the Community

Living Options

A range of services promoting independent living and community support. Supported Living – SMART solutions Housing Support Floating Support Residential Care – complex needs and ABI Living Options

The Cedar Foundation’s Supported Living Service provides innovative living solutions to people with different levels of housing support and care needs. We can help with appropriate housing management and care support for adults with Physical Disability and/or Brain Injury. Typically these individuals live in supported living projects and receive assistance in maintaining their tenancy as well as their personal and social care. Best Practice in Northern Ireland

How We Can Help Provide a personalised assessment of housing support needs.and care support needs. Create, in conjunction with the person and their representative, an individual support plan detailing the expectations and responsibilities of all involved in the process. Deliver a person-centred housing support and care service with specialist knowledge of Brain Injury/Physical Disability to enhance independent living skills. Enable individuals to have more control of their lives. Monitor and review progress in conjunction with the individual and other agencies. Prove what we do will help users achieve psychological wellbeing, satisfaction, health and personal safety. Best Practice in Northern Ireland

12 place facility in South Belfast Personalised assessment Individual support plan Enhanced independent living skills Self-contained apartments, single occupancy SMART technology to assist daily living Supported Living - Ardkeen

8 place facility for adults with complex physical and learning disabilities Small group living Partnership with Housing Association Personalised assessment Individual support plan Community living and Community participation Individual rooms Specialist short term Respite support for12 families Residential and Respite Care – Twisel Lodge

All human rights and fundamental freedoms enjoyed on an equal basis with other children. Best interests of the child should be the primary consideration. The right to express their views freely on all matters affecting them with access to disability and age appropriate assistance. Article 7 – Children with Disabilities

Children and Young People’s Services

A range of services have been developed through an integrated family support model. Short Breaks (Outlook and Inreach) Transitions Services Youth Matters Children and Young People’s Services

Short Breaks

Needs Assessment – Social WorkTeam, Community Paediatric Nurse Team Intervention – Support Worker Chosen by the child or young person and family Outside or within the family home Children with complex healthcare needs Respite for the family Short Breaks

Outlook is a short break service which provides disabled children with enjoyable and valuable experiences away from their parents and carers, which in turn gives parents and carers the opportunity to have a break from caring. The aim of the service is to promote the inclusion of disabled children into their local community by providing the extra support necessary to remove barriers to inclusion. To meet the needs of families the support will happen at the time suitable to the family and may occur on a weekly or fortnightly basis. Outlook is delivered in partnership with the local Health & Social Care Trusts as well as local youth and recreation providers. Outlook

The Service: Provides disabled children with the support and opportunity to access social and recreational activities within their local community. Adopts a person centred approach, ensuring the child’s hopes and aspirations are paramount. Supports disabled children to make informed choices, increasing confidence and self esteem. Provides parents with information on social and recreational opportunities available to their child. Promotes the inclusion and needs of disabled children within the local community by offering Disability Awareness Training. We believe that all disabled children have a right to be fully included in society with full access to all social, recreational and leisure facilities and services. Outlook

Outlook

To provide a flexible service including evening and weekends to meet the needs of the children/young people on the service To provide transport (where possible) to enable young people to participate in local activities. To work toward agreed objectives within individuals support plan for each child and young person. To continuously monitor and review progress of each child or young person and provide on going support and guidance. To establish effective communication strategies with young person and family and key stakeholders. To identify and establish links with community based mainstream activity for the young people. Outlook Support Worker

Inreach

A Partnership approach to provide a high standard of care for children with complex healthcare needs both in the home and community setting within the Belfast Trust area. Inreach Project

With the support of the Community Children’s Nurse, and in partnership with the family, provide a high standard of care to children. This will vary according to the needs of the child, which may include personal hygiene, feeding by gastrostomy or feeding pumps, care of tracheotomy including suctioning, and the care of the ventilator dependent child. To work in a professional manner, ensuring respect for the child and families within their own home and maintain issues of confidentiality at all times. Under the supervision of the Community Children’s Nursing Team, work within the child’s specific protocols of care and The Cedar Foundation Policies and Procedures. Maintain good communication with the child/young person, their parents/carers, Community Children’s Nursing Team and all other relevant professionals/agencies. Inreach Project Worker

Flexible, innovative change agents Person centred approach Portfolio of services Reputation and awards Professional staff – autonomy Focus on customer satisfaction – User Forum Focus on partnership and collaborative working Mixing funding approaches – based on shared responsibility Practice base role – informing Policy Conclusion

Thank You