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Liz Wolstenholme Parkinson’s UK Chair, 2010-13. Highlights of 2012 Website and digital reach Self-care programmes Working with healthcare professionals.

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Presentation on theme: "Liz Wolstenholme Parkinson’s UK Chair, 2010-13. Highlights of 2012 Website and digital reach Self-care programmes Working with healthcare professionals."— Presentation transcript:

1 Liz Wolstenholme Parkinson’s UK Chair, 2010-13

2 Highlights of 2012 Website and digital reach Self-care programmes Working with healthcare professionals Working with under-served groups Expanding the Research Support Network (RSN)

3 Highlights of 2012 (cont) Achieving Customer Service Excellence accreditation Securing 11 more nurse posts Campaigning on welfare issues Investing £5.7m in vital research Investing in internal infrastructure - increasing capacity and efficiency

4 My three years as Chair - growth Appointed Chair in 2010 Significant growth during this time: 2010Now Members:34,00037,500 Income:£20.9m£25.1m Nurses:324365 Helpline calls:22,00027,000 Benefits secured:£8.5m£11.5m (2012) Web visits:865,000 1,400,000

5 My three years as Chair - research Significant investment in research: over £16m Key outcomes: Creating dopamine-producing neurons Confirming the link with REM sleep Discovering three new genes Exenatide – potential re-use of existing diabetes drug? Tracking Parkinson’s study

6 My three years as Chair - challenges Some challenges during this time: Safeguarding Local Group Financial Framework We’re making our money work harder: End 2010End 2013 (forecast) Reserves: (excluding fixed assets) £16.1m£7.6m

7 Families living with Parkinson’s, in Stratford, can access:

8 Typical local group area 423 people with Parkinson’s 126 people in contact with local group 90 people make enquiries to ISW 83 calls to helpline £38k secured in benefits via ISW 1 Parkinson’s nurse 5,200 website visits 3,150 info resources provided Population 200,000

9 Typical local group area 423 people with Parkinson’s 126 people in contact with local group 90 people make enquiries to ISW 83 calls to helpline £38k secured in benefits via ISW 1 Parkinson’s nurse 5,200 website visits 3,150 info resources provided Everything is local! Population 200,000

10 The future… Welcome to new Trustees Local group volunteers Identifying new volunteering opportunities Moving on


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