Introduction Tourette Scotland is a small voluntary organisation Mainly user led but professional advisors, and networks Aims and Objectives- Mainly Training.

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Presentation transcript:

Introduction Tourette Scotland is a small voluntary organisation Mainly user led but professional advisors, and networks Aims and Objectives- Mainly Training Information and Support

Tourette Syndrome What is it? Tourette Scotland

Tourette Syndrome Have both motor (bodily) and vocal tics which have been present for a year or more. Wax and wane in nature Onset in childhood but is lifelong condition Not emotional in origin

TS Statistics 1 in 100 people (Stern 2005) Widely reported in ethnic groups Diagnosed more commonly in boys than in girls (1.5-3 times more common) Significantly under-diagnosed at present

Causes of TS Known to be hereditary/genetic link PANDAS (Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections Environmental Factors can exacerbate symptoms

What is a Tic? Motor Tics – Simple Eye blinking Head jerking Sticking tongue out Abdominal tensing Eye rolling Perineal tensing Facial grimacing Stretching any part Shoulder shrugging of the body

What is a Tic? Motor Tics – Complex Whole body jerking Hopping/Squatting Skipping Biting tongue/cheek Kissing hand/others Flapping hands Banging objects Licking self/others Smelling objects Hitting self

What is a Tic? Vocal Tics – Simple Throat clearing Grunting Animal noises Barking Coughing Spitting Squeaking Hissing Belching Whistling/Humming

Other Symptoms of TS Echolalia Palalalia Coprolalia Copropraxia Stuttering Apraxia

Associated Disorders OCD – Obsessive Compulsive Disorder (approx 75%) ADHD-Attention Deficit Hyperactive Disorder (approx 60%) SLD – Specific Learning Difficulties

Associated Disorders Developmental Coordination Disorder Sensory Modulation Difficulties Autistic Spectrum Disorder

Is It TS or Naughtiness? Neurological condition and part of the individual personality. Suggestible Remember the tics are involuntary Boundaries still need to be set whilst making allowances

Controlling of tics Why some can and some can’t some of the time! Suppression can lead to outbursts and other problems (Rage Attacks) If highlight/confront (suggestibility) then can make symptoms worse

Lesser Know aspect of TS Polydipsia Trichotillomania Eating difficulties common Anxiety Depression Pain particularly in joints

Treatments Available Medication (side effects?) Habit Reversal Therapy Alternative Therapies Cognitive Behavioural Treatment Acceptance and understanding

Q & A Session Any Questions?

Summary of Discussion