7.35PHTS Business DCC Update/QID. Naftel Database CommitteeR. Gajarski (W. Mahle) Foundation UpdateA. Dipchand Financial RoadmapW. Mahle 8:15 Hard to Forget: The Challenge of Desensitization in Heart Transplant Candidates Jon Kobashigawa, MD 8:45PHTS Scientific Committee ReportW. Mahle 8:50Total Artificial Heart in ChildrenTimothy Baldwin, PhD 9:20Maintenance SteroidsS. Auerbach 9:25PVRM. Richmond (W. Mahle) 9:30AdjournW. Mahle

Established July 22, 2010 as a 501 (c) (3) non-profit organization –Located in Birmingham, Alabama Purpose –To raise and administer funds to advance the science and treatment of children while listed for heart transplant and following heart transplantation. Responsible for collecting the annual dues from participating centers, donations, and other income. Subcontract UAB as the Data Coordinating Center

Officers: Anne Dipchand, MD – Chairman Bill Mahle, MD – Vice Chairman/Secretary Jacqueline Lamour, MD - Treasurer Craig Collum, MPH – Executive Director At-Large Members: James Kirklin, MDMelanie Everitt, MD Elizabeth Blume, MDShelley Miyamoto, MD David Naftel, PhDElfriede Pahl, MD Paolo Rusconi, MDHeather Bastardi, NP Richard Kirk, MA FRCP FRCPH

Website Launched Brochure Developed Family Education Materials in development Logo created Received $7,000 in Educational Grants $3,500 from One Lamda $3,500 from Beckman Coulter Received $1,550 in donations

$26,000 $40,000

Donation AmountCategory Name $5,000 and AboveDiamond $1,000 - $4,999Platinum $500 - $999Gold $250 - $499Silver $100 - $249Bronze $1 - $99Supporters

- Name featured online under appropriate category - Letter of appreciation Bronze - Supporters plus - PHTSF Supporter Certificate Silver - Bronze plus - PHTSF Supporter Pen Gold - Silver plus - PHTSF Supporter T-Shirt Platinum - Gold plus - PHTSF Supporter Polo - PHTSF Supporter Plaque Diamond - Platinum plus - Special Recognition (at future fundraising event Fall 2013)

Supporters Aliessa Barnes Alison Amegatcher Angela Lorts Betsy Blume Caron Burch Clifford Chin Craig Collum Daniel Bernstein David Rosenthal Elfriede Pahl Jennifer Conway Joseph Rossano Juan Carlos Alejos Bronze Janet Scheel Silver David Naftel Michael Kuhn William Mahle Gold Anne Dipchand Platinum Diamond Jim and Terry Kirklin Supporters Karen Uzark Kimberly Linn Kirk Kanter Matthew O’Connor Paolo Rusconi Richard Kirk Robert Shaddy Roy Jedeikin Shelley Miyamoto Stephen Pophal Steven Kindel Timothy Hoffman

Money In Balance Forward$ 14, Hospital Dues$ 107, Donations$ 1, Sponsorship Revenue$ 7, UAB Contribution$ 82, Total$ 213, Money Out Labor (Salary + Fringe)$ 175, Office Supplies$ 3, Conference Calls$ Computer Support$ 15, Postage & Shipping$ Meetings/Travel$ 11, Legal/Accounting Fees$ 7, Other $ 2, Total $ 216, Balance($2,688.90)

Goal: To be self-sustaining by 2015 –2013 Budget - $227, Balance Forward: ($2,688.90) UAB Contribution: $62,500 Required Foundation Contribution: $165,118 –Projected Revenue from Annual Dues: $107,500 –Projected Revenue from Sponsors: $20,000 –Projected Revenue from Donations: $20,000 –Projected Revenue from Meeting Fees: $7,500 Total Projected Foundation Contribution $155,000