Paula Kealey Senior Macmillan Development Manager 8 th May 2014 Partnership Working and Developments in Cancer Care

The cancer landscape is changing

In the past most people died some were cured

Earlier detection Advances in technology New targeted therapies Cancer research Today people with cancer are living longer

Data from the Scottish School of Primary Care’s Multimorbidity Research Programme.

Some of our achievement in 2008

What is the Northern Ireland picture?

9 67,000 today

The focus of cancer services is on the actual disease

FINANCIA L Cancer can impact on all aspects of a person’s life

To help people make the transition after treatment we need to focus on recovery

Finding out “what matters to you” as opposed to ”what’s the matter with you”?

The Five Survivorship Stages Information & Support from point of diagnosis Promoting Recovery Sustaining Recovery Managing consequences of treatment Supporting people with active and advanced disease Improving Survivorship Intelligence

The NCSI defined four priorities 1.Redesigning follow-up 2.Recovery package 3.Physical activity 4.PROMs and consequences of treatment

eature=youtu.be

To bring about this change we have formed a partnership Macmillan Cancer Support Health & Social Care Board Public Health Agency NI Cancer Network Involving people affected by cancer in the process

Transforming Cancer Follow-up AIMS Improve patient experience after treatment and health and wellbeing Reduce inefficiencies in hospital follow up Enhance service coordination and integration

Redesigning Follow Up

Promoting Recovery

Assessment and Care Planning

Treatment Summary

Cancer Care Review

Cancer health and wellbeing events

Macmillan Information & Support Services

Financial Advice Services

Getting help to get back to work

Physical activity is important for ongoing health Patient Packs Exercise to music DVD Jam packed website Macmillan local projects Evidence Reviews

Self Management Programmes

Diagnosis & Treatment Rehabilitation Early monitoring End of life care [Year 1 deaths] Progressive illness* ’ Rehab across the patient journey Later monitoring 32

33

34

35

37

Cancer Rehabilitation Scoping: Activities so far Over 60 stakeholder meetings Literature review and full review of key activity in cancer rehabilitation (Mac and non Mac) Survey of Macmillan rehabilitation professionals (n=120) Close liaison with ‘trusted others’ Identification of key themes and next steps

Cancer Lifeline Partnership Working

To find out about services to support you go to the following web site...

Presentation title which may run over two lines Name Title Date