1. A Partnership Approach
Person Centred Care
A Partnership Approach
Pat Pilkington
Cancer CNS Project
Person centred care project is about recognising that the profile of people with cancer is similar to those with other long term conditions. And research shows that people living with and beyond cancer often have ongoing needs following active treatment. 1

2. A Partnership Approach Macmillan Cancer Support and BCUHB
By 2030 it is estimated that more than 48,800 people will
be affected by cancer in North Wales (presently 27000)
The NHS cannot provide all health care and support needed by patients and families
Partnership recognises diverse skills and expertise
Strive to improve patient outcomes and experience
Evidence based approach to deliver safe, effective care
Demonstrate impact; plan for sustainability
Reduce harm and variation

3. What is Person Centred Care?
Person Centred Care ensures:
the needs of a person living with cancer are at the heart of how services are delivered, not the needs of the service
people are treated with respect, dignity and compassion, ensuring care is holistic in its planning and delivery
care goes beyond the clinical to address wider social/ cultural, financial, emotional, practical, psychological and spiritual concerns.
Personalised care enables people to be independent and supports self-management
Acknowledges expertise of everyone
< Putting people at the centre every time>
Recovery Package: PCC

4. What North Wales patients have told us...
37% not given contact details of key workers
76% not offered a written care plan
41% did not get enough support from health and social services post discharge
39% did not have enough information about how to look after the patient on discharge
Only 35% said the different people treating and caring for them worked well together to give the best possible care
Wales Cancer Patient Experience Survey 2013

5. Person Centred Care in BCUHB
Patient
Holistic Needs Assessment & Care Planning
Health & Wellbeing / Rehabilitation
Treatment Summary
Key Worker

6. eHNA Electronic Holistic Needs Assessment Care Plan
The eHNA allows for the person affected by cancer to complete the HNA questionnaire on a touch screen tablet. This information is then sent to the clinician through a secure website to begin the process of care and support planning.
Care and support plans can be printed and saved for sharing with the person affected by cancer and their health care team.
Each team has access to its own data for reporting and analysis, and to identify local service needs.
Anonymous data collected from the assessments and care plans can be used to look at the overall needs of different groups of people. This in turn can help to inform the planning of local services.
Macmillan is currently working with more than 70 cancer service providers across the UK which includes NHS Trusts, private providers and hospices

7. Testing the eHNA in BCUHB
Sixteen Clinical Nurse Specialists are testing the tool in Wrexham Maelor Hospital, Ysbyty Glan Clwyd and Ysbyty Gwynedd as well as Macmillan’s Information and Support professionals in Wrexham in Glan Clwyd <Personalised care enables people to be independent and supports self-management>

8. In Summary People living with cancer face numerous issues at:
diagnosis
during treatment
throughout their lives.
Empowering patients/supporting self management
HNA to identify, support and manage patients concerns and needs
Living with the impact of cancer should not be an isolated journey:
Coordination across health & social care, third sector
Active inclusion of patients and families
Targeted activity to address their quality of life throughout and beyond the cancer experience.

9. Quotes from patient and staff
Liz Hall Gynaecology CNS
“When it’s there in print, the patient is more likely to recognise and agree that it is an issue for them, you can then focus on what’s important to them and it’s quite satisfying to know that you’re really helping them.”
Tracey, one of Liz’s patients said
“The assessment has been fantastic.
If I’ve had problems, we can have a
look at them in detail and if I need
further support, I can get it”

10. Thank you very much FAQs for existing eHNA sites 2016 [PDF]
Planning your care and support: Having a holistic needs assessment [PDF]
Assessment and Care Planning folder
The Recovery Package
Holistic Needs Assessment and care planning [PDF]
Assessment and care planning for cancer survivors: a concise evidence review [PDF]
Holistic Needs Assessment (HNA)
Executive summary - Evaluation of the eHNA [PDF]
Final evaluation report - Evaluation of the eHNA [PDF