1. End of Treatment Summaries
Lesley Smith Living With and Beyond Cancer Senior Programme Manager, NHS England & NHS Improvement 30 April 2019

2. #LivingWithAndBeyondCancer
#LWBC2019
#LivingWithAndBeyondCancer
@Lesleylesleys

3. Workshop Objectives
Identify challenges and solutions around End of Treatment Summaries
Provide feedback that will help NHS England to support organisations with successfully implementing end of treatment summaries for everyone by 2021

4. Policy Background and Guidance
National Cancer Survivorship Initiative report 2013
Stratified Follow Up How To Guide PRINCIPLE 3: ‘Individuals should have a personal care record that includes a treatment summary’
National Cancer Strategy ‘Access to elements of the Recovery Package […] including a Treatment Summary’
Macmillan Treatment Summary How To Guide 2016
Long Term Plan Personalised care

5. The Long Term Plan says
“…every patient with cancer will get:
a full assessment of their needs
an individual care plan
information and support for their wider health and wellbeing.”
Also “patients will move to a follow-up pathway that suits their needs”
How do End of Treatment Summaries (EOTS) fit into this?

6. Personalised care and follow-up
Personalised Care and Support Planning based on Holistic Needs Assessments
Ongoing support for Health and Wellbeing
Personalised Care and Support Planning based on Holistic Needs Assessments
Ongoing support for Health and Wellbeing
Diagnosis
Diagnosis
Patient-triggered
follow-up
Professional-led follow-up
REMOTE MONITORING
End of Treatment Summary
Surveillance scans/tests
Rapid re-access to clinic
Telephone Support
Signposting or referral to support / advice / services
Monitoring for side effects
Cancer Care Review
Support for self-management
Treatment &
Rehabilitation
Shared decision about follow-up
Personalised Care & Support Planning

7. Progress since Baseline
Feb 2019 Temperature Check of Alliances :-
Treatment Summaries are offered in 407 (25%) MDTs
Compared to 1,228 (77%) for HNAs

8. Table Work (1) 1st discussion (10 mins)
List out all the things that you think are preventing patients and GPs getting the full benefit of End of Treatment Summaries
Choose the top 3 biggest barriers
Choose those which you think NHSE could help with (whether in top 3 or not)
Feedback to the room (5 mins)
Consensus on the top 3 biggest barriers
Consensus on what NHSE could help with

9. Table Work (2) 2nd discussion (15 mins)
Thinking of the agreed top 3 biggest barriers
How would you tackle them?
What help do you need to tackle them?
Feedback to the room (10 mins)
Consensus on how to tackle these biggest barriers

10. Final question
What progress do you think you can make on EOTS in your organisation in the next 1 to 2 years?
Introduce EOTS for the first time?
Increase the number of clinicians/MDTs using EOTS?
Involve patients and GPs in local initiatives to maximise benefits of EOTS?
Digital solution?

11. #LivingWithAndBeyondCancer
THANK YOU
#LWBC2019
#LivingWithAndBeyondCancer
@Lesleylesleys