CAPACITY BUILDING FOR RESEARCH IN RESOURCE-LIMITED SETTINGS: THE MOTHER-CHILD LINK FOR SHARING KNOWLEDGE, SKILLS AND TOOLS 1 Jai K Das.

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Presentation transcript:

CAPACITY BUILDING FOR RESEARCH IN RESOURCE-LIMITED SETTINGS: THE MOTHER-CHILD LINK FOR SHARING KNOWLEDGE, SKILLS AND TOOLS 1 Jai K Das

Maternal Mortality maternal deaths in

3 Global Under-Five Mortality – 6.9 million children died in 2011

Maternal health needs more research  All types of research is needed to improve outcomes in maternal and neonatal health  Developing country populations are under-represented in medical research, where impact would be greatest  4

Contributions 5 Sumathipala A, Siribaddana S, Patel V. Under-representation of developing countries in the research literature: ethical issues arising from a survey of five leading medical journals. BMC Medical Ethics. 2004;5(1):5. Keiser J, Utzinger Jr, Tanner M, Singer BH. Representation of authors and editors from countries with different human development indexes in the leading literature on tropical medicine: survey of current evidence. BMJ: British Medical Journal. 2004;328(7450):1229.

 Too little research because there are low levels of access to tools, support, training and knowledge  This could be addressed by clever sharing and active collaboration 6

Bridging Gaps- Global Health Network 7

The Global Health Network is transforming research by sharing methods and knowledge It is a collection of 20 connected research communities – like an online science park Over 140,000 visits, from 172 countries (including most low- and middle-income countries) Mother Child link is a member Applications to support research: such as e-learning and SiteFinder The Global Health Network.org supporting research through sharing methods and knowledge

Goals & Vision 10 Spread Discuss Share STANDARDISATION DISSEMINATION OF KNOWLEDGE PROVIDE ACCESS BETTER RESEARCH PRACTICES ACCESS TO KNOWLEDGE & INFORMATION ENABLE DATA SHARING PEER SUPPORT & NETWORKING

 LATEST NEWS  RESOURCES  COMMUNITY  Community Activity  Groups  Workspace  Bookmarks  Blogs  LINK REGISTRY  SITE FINDER 11

 Browse by Target Population  Newborn and Infants  Child Health  Adolescent Health  Maternal/Fetal health during pregnancy  Labour and Delivery Care  Postnatal Care  Post Menoposal Care  Extended Family 12  Browse by Resource Type  Trial Design  Guidelines  Sample forms & templates  Clinical Trial Laboratories  Data Management and Statistics  Checklists  Registry of Studies  Health Inequality  Evidence Based Systematic Reviews  Latest Publications  Reports  Study Protocols Categorized Resources

13 Workspace

14 Bookmarks

15 Blogs

16 Members

17 Discussion

The Link Registry is a global register of specimens that others can access for their own research purposes No collection of samples is too small Please list you bio-specimens here so that further knowledge can be gained from them 18

 Searchable database of pregnancy and birth cohort studies from around the world  GOAL:  promote collaboration by sharing information on participant population, bio-specimens and data  For future studies, only brief information is collected as this is not a clinical trials registration site 19

20

28 You can also search for a study which is seeking sites to work with. Those seeking sites will list the important details of their study and you can contact them via the website.

Site Finder:  It is free for both sites and collaborators to join SiteFinder  Registering takes only one or two minutes IMPORTANTLY:  Improves equity of access to research in developing countries  Brings together funders and new research sites. 22

Mother Child Link could increase research in resource limited setting because…  It is a neutral, democratic and trusted space ….so people will SHARE knowledge and methods Harnessing digital technology that is being exploited  By researchers for researchers  Creates a community of practice in increase equity in access to research 23

Acknowledgements: Funding: Zulfi Bhutta Trudie Lang Jeremy Farrar Kevin Marsh Rosanna Peeling Tamzin Furtado Francois van Loggerenberg Liam Boggs Nicola McHugh Sam Franzen Clare Rowsome Please visit: