John C. Lincoln Health Network Carrie Cantrell, LMSW, MPH Program Coordinator.

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Presentation transcript:

John C. Lincoln Health Network Carrie Cantrell, LMSW, MPH Program Coordinator

 To change how Arizona supports young breast cancer survivors, their families, and caregivers.  To increase awareness among both the medical community and general public about the unique issues young women face when diagnosed with breast cancer

 2012 Needs Assessment  Finding support for family and friends  Addressing body image issues  Connecting with other young survivors  Finding financial assistance  Help understanding diagnosis

 Education  Outreach  Support  Navigation  Resource Provision

Through these events, it is estimated that 63,912 individuals were reached. Education# Community Education Presentations19 Psychosocial Education (Support Groups)31+ Large-scale Survivor Education Events3 Large-scale Provider Education Events4 Provider Office Visits320+ Outreach# Outreach Events/Tabling85 Newsletters18 Community Collaborators18 Other Community Partners/Connections44

 Social Media  Facebook  5-7 days per week with topic and time strategy in place  26,494 people reached since page was initiated  Twitter  242 tweets  20% retweeted

 Educational Videos TitleViews Talking to Children About Breast Cancer231 Understanding Breast Cancer18 Surgical Options17 Radiation Therapy14 Lymphedema18 Reconstruction Surgery17

 Coping Kits  27 Coping Kits requested via website  64 Coping Kits provided via navigation  Provider Kits  19 Provider Kits requested via website

 Support Groups  Young Women’s Group THRIVE  Caregivers: Supporting the Women They Love  Sonoran Breast Cancer Learn & Support  Connecting young survivors to each other  Young Survival Coalition  Arizona State Leader  Online Support Groups  Over 100 unique individuals served

 Navigator designated for young women  JCL Breast Health & Research Center  Community Partners  Website Contacts  Approximately 70 young women navigated

 Arizona Breast Cancer Resource Guide ABCRG provides quality and comprehensive resources to empower, encourage, and educate patients and co-survivors through the journey of breast cancer by giving choices where and when it matters most.

 Resources are divided by type of service  Survivors: 6 sections, 42 subsections  Education & Risk Reductions: 5 sections  Recent Accomplishments:  Rural Area Resources  Spanish-Speaking Resources  Education Videos

 Unique visitors is up 13%  Number of visits per month increased by 31%  Duration spent per visit reduced by an hour  Number of page views increased

 Lay Navigator  Education & Outreach  40% professional education, 60% patient & community education  Social Media  Support Groups  BHRC Office Manager  ABCRG  Updated 1-2x per month as needed  Coping Kits & Provider Kits  Navigation for Young Women  Connecting Young Survivors

Contact information: Carrie Cantrell, LMSW, MPH Program Coordinator ext