THE OFFICE OF DATA AND PROGRAM DEVELOPMENT (ODPD) Presentation at the MCHB Partnership Meeting February 2009 Michael D. Kogan, Ph.D. Maternal and Child Health Bureau Health Resources and Services Administration U.S. Department of Health and Human Services

OUR RAISON D’ETRE Build data capacity at the national, state, and local levels Strengthen the present and future workforce skill levels in MCH epidemiology Disseminate information and strengthen the evidence base in MCH Coordinate MCHB’s work on program accountability, evaluation, and policy analysis

BUILD DATA CAPACITY AT THE NATIONAL, STATE, AND LOCAL LEVELS

NATIONAL SURVEYS ON CHILDREN’S HEALTH, 2003 and 2007 HRSA/MCHB Partnership with CDC/NCHS Identifies 2000 children per state by random digit dialing telephone survey Gathers information on the physical, mental, and emotional health of children

NATIONAL SURVEYS OF CHILDREN WITH SPECIAL HEALTH CARE NEEDS, 2001, , and 2009 HRSA/MCHB Partnership with CDC/NCHS Identifies children per state by random digit dialing telephone survey Gathers information on the health care experiences and needs of CSHCN and their families

Health Insurance Coverage for CSHCN: 2001 and Percentage of CSHCN, by Type of Health Insurance 2001 *

Prevalence of CSHCN: State Variation CSHCN Prevalence 5 Highest and 5 Lowest Prevalence States

CHILD HEALTH INFORMATION TECHNOLOGY  Integrating States’ child health information systems  Evaluating child health information systems

STRENGTHEN THE PRESENT AND FUTURE WORKFORCE SKILL LEVELS IN MCH EPIDEMIOLOGY

ENHANCE PRESENT WORKFORCE SKILLS IN MCH EPIDEMIOLOGY MCH Epidemiology Training Course for States and local areas (co-sponsored by CDC) Annual series of 4 web-based MCH DataSpeaks providing skills building Co-sponsor the MCH Epidemiology Conference with CDC Sponsor training opportunities through AMCHP at the MCH Epidemiology Conference (with CDC) Provide support to States who want to publish their work in scientific journals –strengthening the evidence base in MCH (co-sponsored by CDC)

ENHANCE PRESENT WORKFORCE SKILLS IN MCH EPIDEMIOLOGY Support CDC/HRSA program on state-based MCH epidemiologists Co-sponsor the CityMatch Data Use Institute with CDC

ENHANCE FUTURE WORKFORCE SKILLS IN MCH EPIDEMIOLOGY Graduate student intern program in Epidemiology Data Skills Support MCH epidemiology doctoral students who use state or local data for their dissertation (co-sponsored by CDC) Co-sponsor fellowships in MCH epidemiology through the Council of State and Territorial Epidemiologists with CDC

DISSEMINATE INFORMATION AND STRENGTHEN THE EVIDENCE BASE IN MCH

DISSEMINATE INFORMATION Developed a web-based data resource center for the National Survey of Children’s Health and the National Survey of Children with Special Health Care Needs (with DCAFH and DSCSHCN)

DISSEMINATE INFORMATION Produce “Child Health USA” Produce “Women’s Health USA” (with OWH and DPSHS) Produce chart books on Children’s Health, Oral Health, Obesity and Physical Activity, Rural Health, and Emotional and Behavioral Health Produce chart books on Children with Special Health Care Needs (with DSCSHCN)

DISSEMINATE INFORMATION Co-leadership (with CDC) on the chapter for maternal and child health for Healthy People 2010 Fund the MCH Library: information on a broad range of related topics; weekly newsletter, the MCH Alert; research articles; reports and publications; audiovisual materials; and links to databases and other MCH sites.

STRENGTHEN THE EVIDENCE BASE IN MCH Special issue of the Maternal and Child Health Journal on state-level analyses of children with special health care needs Special issue of Pediatrics on results from the NSCH Special issue of Pediatrics on results from the National Survey of Children with Special Health Care Needs Publications in scientific journals

COORDINATE MCHB’s WORK ON PROGRAM ACCOUNTABILITY, POLICY ANALYSIS, AND EVALUATION

PROGRAM ACCOUNTABILITY Discretionary Grant Performance Measures –Collect demographic, financial, and performance measure data from over 800 grantees on 37 performance measures Strategic Planning: Updating the Strategic Plan Performance Reporting: –Assist Bureau in preparing for Performance Assessment Rating Tool (PART) reviews; – Develop and monitor long-term measures; – Report targets and results for annual and efficiency measures.

POLICY ANALYSIS Serve as the policy lead on Medicaid, State Children’s Health Insurance Program, and MCH financing issues EPSDT Leadership Workshops: Facilitate State-level policy meetings between multiple agencies for improving EPSDT rates. Insure Kids Now links children and families to free and low-cost health care insurance

EVALUATION ACTIVITIES Evaluation: –Assist programs with data collection strategies and necessary approvals.

TECHNICAL ASSISTANCE Provide technical assistance on data and analysis on an as-needed basis to regional, state, local and territorial health offices.

Contact Michael Kogan, Ph.D. Maternal and Child Health Bureau 5600 Fishers Lane Room 18-41, Parklawn Building Rockville, MD