PATIENTS’ PERSPECTIVE ON e-HEALTH EPF AGM, Brussels 19 May 2010

The application of Information and Communication Technologies (ICT) to Health care e-Health

o CALLIOPE project o CALLepSOS cooperation o RENEWING HEALTH project o Chain of Trust project o Joint Initiative/Thematic Network on e-Health governance o E-Health Users Stakeholder Group o Consultations, presentations, debates EPF and e-Health

o Ethical issues o Security issues o Legal framework o Trust and acceptability from users o Reimbursement issues o Electronic health record  Ownership of data  Access to record  Input from the patient  Consent – transfer and use of data  Cross-border dimension Recurring Themes

o Crucial need for evidence o Perspective from patients users and non-users across diseases and countries o EPF consolidated position o The HOW to be conceived – key now is ENGAGEMENT and COMMITTMENT e-HEALTH WILL BECOME PART OF PATIENTS’ LIFE LET’S NOT MISS THE OPPORTUNITY TO SHAPE THE PROCESS AND THE MECHANISMS! Consulting EPF Members

Thank you!