1. NIGB NATIONAL INFORMATION GOVERNANCE BOARD Harry Cayton, Chair, National Information Governance Board

2. NIGB Information governance describes the structures, policies and practices which are used to ensure the confidentiality and security of records of patients and service users. Correctly developed and implemented it enables the appropriate and ethical use of information for the benefit of individuals and the public good. NATIONAL INFORMATION GOVERNANCE BOARD FOR HEALTH AND SOCIAL CARE

3. NIGB The role of the NIGB To support improvements in information governance in health and social care To set standards and provide advice and guidance on information governance To advise on the use of powers under section 251 of the NHS Act 2006 NATIONAL INFORMATION GOVERNANCE BOARD FOR HEALTH AND SOCIAL CARE

4. NIGB Primary Principles People have personal interests and responsibilities Informed consent and autonomy underpin healthcare It is in peoples interests to have safe accessible care, a sound research base, cost effective well managed services Professionals must work within legal and professional frameworks NATIONAL INFORMATION GOVERNANCE BOARD FOR HEALTH AND SOCIAL CARE

5. NIGB The Care Record Guarantees NATIONAL INFORMATION GOVERNANCE BOARD FOR HEALTH AND SOCIAL CARE

6. NIGB Public trust is essential Open selection of public members of the board Published principles of decision making Transparency of business; all papers and minutes published Regular meetings with patient and professional organisations Formal public consultations on guidance Annual report to Secretary of State published NATIONAL INFORMATION GOVERNANCE BOARD FOR HEALTH AND SOCIAL CARE

7. NIGB Dealing with wicked questions NIGB regularly has to deal with complex ethical and practical issues Sometimes its own principles are in conflict No right or wrong answer – just the best answer we can think of Advice must be practicable; advice you cant put into practice is no advice at all. NATIONAL INFORMATION GOVERNANCE BOARD FOR HEALTH AND SOCIAL CARE

8. NIGB Examples of NIGB advice and guidance Information governance during the swine flu pandemic Care records for children and young people Access to clinical information by social workers Amendments and corrections to records The use of other organisations to support collaborative care NATIONAL INFORMATION GOVERNANCE BOARD FOR HEALTH AND SOCIAL CARE

9. NIGB The NIGB Ethics and Confidentiality Committee Administers applications from researchers for support to use identifiable patient data without consent under section 251 of the NHS Act 2006 Provides a legal basis for the use of information in medical research and other NHS activities without consent Advises on best practice in relation to consent for research NATIONAL INFORMATION GOVERNANCE BOARD FOR HEALTH AND SOCIAL CARE

10. NIGB NATIONAL INFORMATION GOVERNANCE BOARD FOR HEALTH AND SOCIAL CARE