National Cancer Patient Experience (NCPES) Results 2017 Skin SSG February 2019

2017 NCPES Any adult ( >16) with a cancer diagnosis and had an Inpatient or day case associated care episode during 01/04/17 – 30/06/17 Outsourced to Quality health pts sent postal questionnaires Oct’17 National response rate was 63% (2016 - 67%) Results published end of September,2018 (previously published in July) 2018 surveys have been sent out for same time frame and 2019 CPES will include outpatient work for the first time. Results have only been published for North Bristol and partially for UH Bristol (SSG=2/7 trusts)as 21 + responses are needed per question for results to be published You can check any trust’s quantitative results at www.ncpes.co.uk 2017 Trust responses Skin responses UHBristol 755 22 North Bristol 591 74 Glos / Chelt 1182 17 Taunton 544 2 Yeovil 176 5 Weston 197 Bath 496

Any results less than the national average % are in red Dashboard Developed by PHE / NHS England Trusts’ overall generic score   % GLOS NBT RUH TST UH Bristol WHT YDH Nat 2017 2016 Patient definitely involved in decisions about care and treatment 79 77 76 83 78 81 82 85 72 Patient given the name of the CNS who would support them through their treatment 91 84 94 90 89 92 93 95 88 Patient found it easy to contact their CNS 86 87 Always treated with respect and dignity by staff Staff told patient who to contact if worried post discharge Practice staff definitely did everything they could to support patient 60 65 66 61 67 70 69 58 45 55 57 Patient’s average rating of care scored from very poor to very good (out of 10) 8.8 8.9 9 8.7 Any results less than the national average % are in red

Q1. Saw GP once/ twice before being told had to go to hospital

Q2. Thought they were seen as soon as necessary ? With GP

Q5. Beforehand, did you have all the information you needed about your test? Q5 and onwards hospital based

Q7. Were the results of the test explained in a way you could understand?

Q9. Patient felt they were told sensitively they had cancer

Q10. Did you understand the explanation of what was wrong with you?

Q11. When you were told you had cancer, were you given written information about the type of cancer you had?

Q12. Before your cancer treatment started, were your treatment options explained to you?

Q14. Were you offered practical advice and support in dealing with the side effects of your treatment(s)?

Q15. Before you started your treatment(s), were you also told about any side effects of the treatment that could affect you in the future rather than straight away? LWBC link

Q17. Were you given the name of a Clinical Nurse Specialist who would support you through your treatment?

Q18. How easy or difficult has it been to contact your clinical nurse specialist?

Q19. When you have had important questions to ask your Clinical Nurse Specialist, how often have you got answers you could understand?

Q20. Did hospital staff give you information about support or self-help groups for people with cancer? LWBC link

Q22. Did hospital staff give you information about how to get financial help or any benefits you might be entitled to?

25. Beforehand, did you have all the information you needed about your operation?

26. After the operation, did a member of staff explain how it had gone in a way you could understand?

34. Were you given enough privacy when discussing your condition or treatment?

Q35. During your hospital visit, did you find someone on the hospital staff to talk to about your worries and fears?

Q36. Do you think the hospital staff did everything they could to help control your pain?

Q38. Were you given clear written information about what you should or should not do after leaving hospital?

Q39. Did hospital staff tell you who to contact if you were worried about your condition or treatment after you left hospital?

Q41. While you were being treated as an outpatient or day case, did you find someone on the hospital staff to talk to about your worries and fears?

Q55. Have you been given a care plan?

Q58. Since your diagnosis, has anyone discussed with you whether you would like to take part in cancer research?