1. 2015/16 National Cancer Patient Experience Survey
Ruth Hendy, UHBristol Lead Cancer Nurse

3. 2015/16 NCPES
Inpatient and day case adult cancer patients, discharged from hospital 01/04/15 – 30/06/16
Sent postal questionnaire Sept – Nov’16
Response rate 66%
Results published July 2016
To be repeated 2016 (results 2017)
2015 revised methodology
Reduced questionnaire length (50 Qs re patient experience)
14 unchanged Qs, 21 slightly amended, 15 new.
Case mix adjusted results (according to Trust populations)

4. Upper GI results
Upper GI Results only published for UHBristol (64), Taunton (28) and Glos (83) -175 responses combined
> 20 + responses to a Q, to be published
Patient comments available for each Trust
acknowledge staff contribution
highlight specific local issues re. car-parking, waiting, aspects of communication break-down

5. Upper GI Good practice 96 Question
National average
UHBristol
Glos
Taunton
Patient given the name of the CNS who would support them 90
(87-93) 96 89
100
Patient found it easy to access the CNS 87
(82-91) 86 *
Hospital staff gave information about support groups 83
(79-87) 92 88
All staff asked patient what they preferred to be called by 67
(58-75) 79 82
Doctor had the right notes and other documentation with them
(94-97) 98
Overall, administration of the care was good / very good
(86-92) 91
Length of time attending clinics and appointments was right 66
(58-73) 75 76

6. Upper GI areas for improvement
Question
National average
UHBristol
Glos
Taunton
Patient given easy to understand written information about their type of cancer 72
(68-75) 66 68 *
Hospital staff gave information on getting financial help 55
(48-61) 59 60
Patient definitely told about side effects that could affect them in the future 54
(51-58) 57 52
Patient was able to discuss worries and fears with staff during visit (inpatient)
(47-57)
Patient given a care plan 33
(28-38) 28
Given clear written information about what they should/should not do post discharge 84
(81-88) 79 75
Hospital staff gave family all information needed to help with care at home 58
(53-62)
Patient definitely given enough support from health and social services during treatment
(46-62) 44 53
Patient definitely given enough support from health and social services after treatment 45
(38-52) 32

7. Headlines
from additional 2015/16 patient experience activity in UHBristol + shared care patients
‘shared care’ provided genuine potential to negatively impact patient experience
A negative experience at the start (eg. delayed diagnosis, cancelled operation), will in most cases negatively impact the whole pathway experience
access to keyworker is paramount
‘enough’ care – do what you say and stop me getting anxious / worried

8. Next steps
SSG / MDT to agree priority areas, discuss and plan local actions
CNSs to continue to collaborate on shared-care across pathway
Referrals/ handovers – continuity in care
Consider shared information (eg. pathway leaflet)
New patient information checklist – continuity (see next slide)
Continued roll-out of ‘recovery package’ across SSG
Holistic needs assessments
Attendance at Health and Wellbeing events / clinics
Treatment summaries for GPs

9. Patient Information checklists
CONTENTS OF UPPER GI FOLDER - RUH
Cancer Information & Support Centre Card and CNS card
Macmillan ‘Cancer Guide’
Macmillan booklet (either stomach, pancreas or oesophagus)
Help with the cost of cancer
List of websites
About Cancer Registration
Hospital Travel Costs Scheme info sheet
Parking discount info sheet/ Free prescriptions info sheet
WHY counselling leaflet
Patient guide with hospital map
Service leaflet
Bristol transport information
Welcome/ intro pack for Upper GI patients - UHBristol
Introduction letter
Macmillan Understanding Cancer Booklet
CNS leaflet/ contact details
Cancer Information and Support Centre
Depending on treatment – understanding chemo/RT booklet
CAB Macmillan information with a note to state CNS will refer
Body image information (for women Look Good, Feel Better leaflet)
Penny Brohn
Diet information
Surgery information
Free prescription information
Childs small portion card
The packs can also be tailored to the individual with further info/ booklets