Getting To Know You Yorkshire Cancer Patient Forum Event Tuesday 3rd October 2017 Wrapping Services Around the Patient – West Yorkshire and Harrogate Cancer Alliance

Today’s Agenda 1.45pm Arrival, registration, coffee/tea 2pm Welcome and introductions Phil Kelly, Chair, Yorkshire Cancer Patient Forum Board Member, WYH Cancer Alliance 2.10pm Table Discussions – The Good, The Bad and The Ugly….. 2.30pm Wrapping The System Around The Patient – The Work Of West Yorkshire and Harrogate Cancer Alliance (including patient story films, with thanks to Barbara Hibbert, Deborah Judah, Caroline Raw and Sara Williamson Professor Sean Duffy Macmillan Clinical Lead, WYH Cancer Alliance 3.15pm Question and Answer Session 4pm Close

Phil Kelly Chair, Yorkshire Cancer Patient Forum Board Member, WYH Cancer Alliance Welcome and Introductions

The Good, The Bad and The Ugly An opportunity to share your personal experiences

Sean Duffy Programme Clinical Director West Yorkshire and Harrogate Cancer Alliance Wrapping The System Around The Patient

Barbara’s story https://www.youtube.com/watch?v=xw6GQ3plMAA

Why We Are Here - Patients First Cancer has been recognised as a priority in West Yorkshire and Harrogate health and care partnership More people die from cancer here than is the average elsewhere in England Every week 250 people are diagnosed and 115 people die. Lung cancer is the most common Screening uptake requires significant improvement Pockets of deprivation where lifestyles associated with development of cancer are prevalent

What Are ‘Cancer Services’? Every service that you come into contact with along your cancer journey, including Cancer Screening Services Your GP Your hospital care Support groups Cancer charities National health promotion campaigns (e.g. Smoking cessation)

National Ambitions, Local Delivery Achieving World Class Cancer Outcomes 96 changes and improvements, including: “Establish a new model for integrated Cancer Alliances at sub-regional level as owners of local metrics and the main vehicles for local service improvement and accountability in cancer (pg66)” Sub region is West Yorkshire and Harrogate (patient flows) Metrics measure what matters Alliance brings together partners across all elements of the patient’s journey

A Common Approach Promote the suspension of individual and corporate interests to work as one single cancer system: “The West Yorkshire and Harrogate cancer system pulling together as one, with common objectives activity breaking down barriers and maximising resources, with the aim of being able to deliver the best possible, seamless and clinically led and patient driven health and social are, so that every person affected by cancer is assured of the best possible outcomes.”

Current Structure Cancer priority workstream of health/care partnership Cancer Alliance Board Five focused, ‘diagonal slice’ project groups - Patient Experience; Early Diagnosis; High Quality Services; Living With And Beyond Cancer Tobacco Control Six places/localities – local plans Adding ‘value’ and benefit geography-wide Range of bodies to which the Alliance is accountable – NHS England; STP; Joint Committee; Macmillan

Focus of the Alliance Cancer specific leadership for the partnership Vehicle for accessing national funding Transformation and delivery at scale and pace Whole pathway focus Using information and evidence to transform patient journeys, changing the behaviours of clinicians and those who determine which services will be commissioned Sharing best practice

Prevention Promote access to cancer screening programmes Prevent cancer where possible – 40 per cent of cancers are caused by avoidable factors eg environment, lifestyle

Early Diagnosis Make more cancer curable through earlier diagnosis Supporting people to understand and act upon the early signs and symptoms of cancer

Caroline’s story https://www.youtube.com/watch?v=v04KenweKos&t=39s

High Quality Services Invest in modern and high quality services Transform the way organisations work together to make sure that cancer treatment, care and support is wrapped around the patient and not purely based on a single condition or organisational boundaries

Deborah’s story https://www.youtube.com/watch?v=yNk2wOM8jUY

Living With And Beyond Cancer Support people to live as full and active a life as possible with and beyond their cancer diagnosis Seek implementation of the Recovery Package HNA – holistic needs assessment Treatment summary Cancer care review Health and wellbeing event

Sara’s story https://www.youtube.com/watch?v=8RCXcS861Rw&t=13s

Patient Experience Ensure that the experience of each individual patient is taken as seriously as the seriousness of their clinical care and treatment Listen to patients and learn from what you have to tell us

Learn More and Get Involved YCPF bulletin and other existing comms Networking and events New Alliance website, followed by…. More social media activity Exhibitions and conferences Develop case studies – real people, real lives Celebrating progress and improvements – media and other promotional opportunities Annual Alliance national progress report Any others you can think of!!

Question and Answer Session

Closing remarks Thanks for coming along today.