Looking Back, Moving Forward: 40 Years of Advocacy Utah Developmental Disabilities Council

2011 Council Members Adina Zahradnikova Director of the Disability Law Center Amy Thompson Weyrich Citizen Family Member: Salt Lake City Andrew Riggle Citizen Member: Salt Lake City Bill Young Director of the Utah Statewide Independent Living Council

2011 Council Members Bryce Fifield, PhD: Director of the Center for People with Disabilities - Logan Clarissa Crisp: Family Citizen Member - Herriman Deborah Bowman Family Citizen Member – North Salt Lake Don Uchida: Director of Vocation Rehabilitation Eder Soriano: Citizen Member - Ogden

2011 Council Members Elsie Dee: Citizen Family Member – Montezuma Creek Eric Stoker: Citizen Member – West Jordan Holly Williams: Children with Special Health Care Needs James ONeill: Citizen Member – Park City Jane Tuttle: Citizen Family Member – West Valley City Jeanie Pettit: Director of West Jordan Care Center

2011 Council Members Jennie Gibson: Assoc. Director of the Utah Parent Center Jennifer Kuhn: Citizen Family Member - Lehi Kristen Hone: Citizen Member – West Jordan Lee Stephens: Treasurer, Citizen Member - Bountiful Glenna Gallo / Christene Timothy: Department of Education

2011 Council Members Lenny Jones: Citizen Member - Provo Nels Holmgren: Director of the Division of Aging Nevah Stevenson: Citizen Family Member - Draper Reed Hahne: Citizen Member - Orem Rep. Paul Ray: Legislative Member - Clearfield Paul Smith: Interim Director of the Division of Services for People with Disabilities

2011 Council Members Robert Bucciere: Neurobehavior H.O.M.E. Program at the University of Utah Sen. Pat Jones: Legislative Member - Salt Lake City Sherri Dial: Chairperson, Citizen Family Member – Santa Clara Suzanne Smith Utah Down Syndrome Foundation Tom Brownlee: Citizen Member – Eaglemountain

2011 Council Members Tonya Hales / Glen Larsen: Medicaid Trevor Spackman : Citizen Family Member – Sandy Troy Justesen: Citizen – Orangeville Valarie Tanner: Citizen Member - Vernal

Current Council Staff Claire Mantonya: Executive Director Frank Long: Contracts and Finance Bonnie Martineau: Administrative Assistant Mark Smith: Access Utah: Information Specialist

The Purpose of the Council… … is to provide an advocacy voice, …promote the development of services and supports within the community, …and to support changes to the system that will better support people and families in community settings.

The Mission of the Utah DD Council…...is to be the states leading source of critical, innovative, and progressive information, …advocacy, leadership and collaboration …to enhance the lives of individuals with developmental disabilities.

Changes Promoted Through the Work of the Council Living Arrangements Our community has gone from living in large congregant settings to much smaller individualized homes – to even owning ones own home!

Living Arrangements Projects Weber County Arc: Alternative Living and Training Arrangement Trail, Inc.: Nephi – Planning for Community-Based Housing for Persons in Three Central Utah Towns Columbus Community Center: Supervised Apartment Living for DD Adults

Living Arrangements Projects Project TRI: Transition to Residential Independence – Utah County Washington County Arc: Supervised Apartments for St. George University of Utah: Residential Curriculum for Individuals Who are Profoundly, Severely, & Moderately Handicapped (Note – language has certainly changed over the years, too!)

Living Arrangements Projects Moab Regional Council Project: Residential Services, Inc. Association for Independent Living: Critical Housing Needs and Access Program Transitional Living Center: Salt Lake City Genesis Services Assist, Inc. : Accessibility Guidelines HomeChoice Loan Program

Educational Opportunities Funded by the Council… Expanded Programming For All Ages! Early Intervention Primary Childrens Infant Stimulation Project State Training School: Activity Therapy Centers Provo School District : Diagnosis, evaluation, therapy, & training for pre-school children Salem – Mt. Loafer Elementary Schools Inclusion Project Wendover Head Start

Recreation: After School/Summer/Other United Cerebral Palsy: recreation & leisure events in the community Wasatch School District & Arc: summer recreation Five County TMR Group Home: Cedar City recreation project

Recreation: After School/Summer/Other Columbus Community Center: Therapeutic Recreation Skills Four-County Parents Group (Southwest Utah): Physical Education Skills Consortium of Groups in Price: Handicapped Swimming Project TRAILS: Teaching Recreation & Independent Living Skills U of U Department of Recreation and Leisure, College of Health

Recreation: After School/Summer/Other YWCA: Therapeutic Recreation Active Re-entry: Eastern Utah Accessible RecreationGuide BEST BUDDIES: Chapters started around the state Utah Schools for the Deaf & Blind: Family Camps Millard County Family Council: Summer Enrichment

Council Funded Therapy/Behavior Demonstration Projects Multiple Handicapped Training Center: social & family counseling, recreation, and occupational therapy Utah Arc: Human Sexuality Training system for parents of MR Utah Division of Health: Nurse Training Division of Health, Handicapped Childrens Services: Developmental Physical Therapy Services in Rural Utah

Therapy/Behavior Demonstration Projects Copper Mountain Mental Health: services to DD Children and Families Childrens Behavior Therapy Unit: Salt Lake Mental Health Epilepsy Association of Utah Childrens Behavior Therapy (1981): Utah Childrens Autism Project

Therapy/Behavior Demonstration Projects Project Turn: Behavior Management and Home-Based Instructions for Parents with Autistic Children Childrens Behavior Therapy Unit (CBTU): Peer Support

Council Funded Parent Education Mental Retardation Association of Utah (MRAU): Statewide advocacy demonstrating both rural and urban areas Epilepsy Association of Utah: Statewide epilepsy education aiding parents Exception Child Center: Utah State Center for Persons with Disabilities – Parent Education

Council Funded Parent Education New Hats: Parent Education Avatar – Ogden: Support Training for Parents with DD Utah Tourette Syndrome Association: Educational Strategies Workshop for Teachers and Parents

Council Funded Transportation/Demonstration Projects T.H.E. VAN, Inc.: Transportation of Handicapped in Salt Lake County Uinta Basin Transit Authority: Bus service between Duchesne and Vernal (started May 2011!)

Council Funded Respite Demonstration Projects USU: Respite Training in Rural Areas Utah County Arc: Utah County Respite Care Bear River Mental Health Services: Respite Care and Family Support Program South Sanpete School District: Respite Care: A Team Approach DSPD: Respite fund training for parents

Council Funded Respite Projects U of U: Gerontology Center – Needs Assessment of Aged Caregivers of Aged DD/MR Persons Division of Health: High Risk Register Newborn Screening Questionnaire

Council Funded Person-centered Services Demonstration Projects San Juan Vocational Transition Center DSPD: Older Adult Project, Client-Centered Services Utah Independent Living Center: Social Skills Development through Leisure Education OPTIONS for Independence: CreatAbility Players

Council Funded Person-centered Services Demonstration Projects Asian Association of Utah: English as a Second Language Program for Disabled Adults

Council Funded Training Professionals Projects U of U School of Medicine: Development of Disabled Patient Curriculum Component for Physician Assistants in Utah Salt Lake Rape Crisis Center: Victims with Disabilities Utah Head Injury Association: Traumatic Head Injury Prevention Education

Council Funded Training Professionals Projects Newborn Hearing Screening in Utahs Small and Rural Hospitals Weber State: Dental Hygiene Program USU Center for Persons with Disabilities: Statewide Information and Referral Project – ACCESS UTAH

Council Funded Meaningful Work, Day Supports, Leading Full Lives Throughout all of Utah: Projects Alpine School District: sheltered workshop Weber Vocational Workshop Box Elder County School District & Brigham City Adult Day Care & Learning Center Utah Alliance for the Mentally Ill: ALLIANCE HOUSE

Council Funded Meaningful Work, Day Supports, Leading Full Lives Throughout all of Utah: Projects Cache Industries: Supported Employment Utah Arc: Transitional Family to Family Millard School District: Transition Project Easter Seals: Job Start Family Support and Treatment Center: Child Abuse Prevention and Recognition in Day Care Settings

Council Funded Meaningful Work, Day Supports, Leading Full Lives Throughout all of Utah: Projects Brain Injury Association of Utah: Return to Work Community Employment Placement Program (Vernal): Training Able Young Adults for White Collar Work Volunteer Center of the Greater Salt Lake Area: Opportunities for People with Disabilities to Volunteer

Council Funded Meaningful Work, Day Supports, Leading Full Lives Throughout all of Utah: Projects Salt Lake Community College: TEAMWORK / Employment Utah Assistive Technology Program Utah Works

Council Funded Developing Leadership and Advocacy Skills for Family and Individuals Legislative Coalition for People with Disabilities (LCPD) Partners-In-Policy Making People First The Grassroots Advocacy Partnership (GAP) Disability Community Alliance

Council Funded Developing Leadership and Advocacy Skills for Family and Individuals Legal Services for the Developmentally Disabled, Inc. (Disability Law Center): Legal Advocacy Tooele County Arc Salt Lake County Arc: People First Utah Arc: Volunteer Advocacy for Residents of ICF/IDs

Council Funded Developing Leadership and Advocacy Skills for Family and Individuals Work Activity Center: Parent Education Project Utah Navajo Development Council: Blanding Mental Retardation Association of Utah (MRAU): Advocacy 1989 – USU – Director of the LCPD: Marilyn Call

Council Funded Developing Leadership and Advocacy Skills for Family and Individuals Uintah Basin Disabilities Council: Vernal Utah Parent Center: HOPE – A Parent to Parent Network Disability Law Center: Parent Guide to Inclusion and IDEA Native American Self-Advocacy Project

A small group of dedicated people have changed countless lives of families and individuals with disabilities forever… Marks the 40 th Year of the DD Council in Utah. 2011

What will move us forward into the next 40 years? What will people with disabilities lives look like in 2051? When we look back on the progress we have made since 1971….

Lets move forward together to make things happen!