Citizenship and Human Rights for people with dementia Phyllis Fehr M.L.A., R.N., S.A.N.E.. Dementia Alliance International Board Member Presentation title and presenter name slide. Pete has also set up the FONT, as Lato, as that is the recommended dementia-enabling font

Dementia Alliance International DAI began with eight people with dementia from 3 countries on January 1, 2014 DAI is a registered charity, and is the global voice of dementia DAI now has members in 47 countries We empower others to live more positively with dementia, thereby improving the quality of life of people with dementia DAI provides weekly peer to peer support groups and other online support, services and education Dementia Alliance International is the global voice of dementia, and is a registered non-profit organisation whose membership is exclusively for people with a confirmed diagnosis of any type of a dementia, whose membership is now represented in 47 countries. We seek to represent, support, and educate others living with the disease, and the wider dementia community. DAI is an organization that strives to provide a unified voice of strength, advocacy and support in the fight for individual autonomy, full and equal inclusion and improved quality of life, empowering people to live with dementia, not only die from it. 

DAI works collaboratively with, is in official relations or is in a strategic partnership with the following organisations. DAI is also a Founding member of the newly established Global Rehabilitation Alliance, founded at the World Health Assembly in Geneva in May 2018.

Root causes of stigma I INCLUDED THIS SLIDE, AS IT MAY BE USEFUL FOR SOME OF YOU

Citizenship What is citizenship? Where do we fit in?

The U.N. Convention The 1948 United Nations Convention is meant to protect every single member of civil society in the world… Including people diagnosed with any type of a dementia, and who have disAbilities caused by the symptoms of their dementia.

“Dementia receives the worst care in the developed world.” 67 years later… The Organisation for Economic Co-operation and Development (OECD) report Addressing Dementia: The OECD Response concluded (2015): “Dementia receives the worst care in the developed world.”

The WHO First Ministerial Conference on Dementia DAI has always advocated for human rights Other organisations and individuals agreed, but only ever ‘in principle’; no action followed DAI Keynote speaker at the WHO First Ministerial Conference on dementia, March 2015

The WHO Global Disability Action Plan 2014-2021 This plan is fully based on CRPD Principles and Articles. It has good indicators for assessing progress. This also means CRPD and Community Based Rehabilitation (CBR) must be reflected in Regional and National Dementia Strategies and Plans

C.R.P.D. Let’s look at a few specific Articles of the Convention on the Rights of Persons with Disabilities (CRPD) as human rights examples: Article 19: Living independently and being included in the community Article 22: Respect for privacy Article 26: Habilitation and Rehabilitation Phyllis, I changed this slide a bit – I hope it still works?

From Rhetoric to Reality DAI launched this landmark publication, as a direct result of our advocacy, and demand for a human rights based approach including access to the CRPD, now adopted by ADI and in the WHO Global Dementia Action Plan. What matters to us now is that people living with dementia should be empowered to use their undisputed right of access to this and to other relevant UN Human Rights Conventions, including the CRPD and a future Convention on the Rights of Older Persons.

Together we are stronger Special thanks to other people with dementia who have all helped, stood up for and fought to bring human rights for people with dementia and our families forward. I changed the title, only because your next slide says thank you

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