1. Health Care Informatics | August 17, 2015 1 |1 | WHO Indicator and Metadata Registry (IMR) SDMX-HD Aggregate Data Exchange Patrick Whitaker IER/HSI/HCI

2. Health Care Informatics | August 17, 2015 2 |2 | Definitions M&E – Monitoring and Evaluation Indicator – An indicator quantifies and simplifies phenomena and helps us understand complex realities. Indicators are aggregates of raw and processed data but they can be further aggregated to form complex indices. International Institute for Sustainable Development (IISD)International Institute for Sustainable Development SDMX – Statistical Data and Metadata Exchange (ISO/TS 17369:2005) Aggregate data – Data summarized from raw, e.g. clinical, data

3. Health Care Informatics | August 17, 2015 3 |3 | What problems are we trying to solve? Varying definitions from multitude of guidelines documents. Interoperability in a heterogeneous environment.

4. Health Care Informatics | August 17, 2015 4 |4 | Multitude of Guidelines Documents

5. Metadata Views All concepts can have different names and values

6. Health Care Informatics | August 17, 2015 6 |6 | Inconsistent and Incomplete Definitions SourceIndicator www.mdgmonitor.org/goal6.cfm HIV prevalence among population aged 15-24 years data.unaids.org/pub/Manual/2007/20070411_ungass_core_indicators_manual_en.pdfPercentage of young women and men aged 15–24 who are HIV infected www.mdgmonitor.org/goal6.cfm Proportion of population aged 15-24 years with comprehensive correct knowledge of HIV/AIDS www.unmillenniumproject.org/goals/gti.htm Percentage of population aged 15-24 years with comprehensive correct knowledge of HIV/AIDS www.theglobalfund.org/documents/me/M_E_Toolkit.pdf Percentage of young people who both correctly identify ways of preventing the sexual transmission of HIV and who reject major misconceptions about HIV data.unaids.org/pub/Manual/2007/20070411_ungass_core_indicators_manual_en.pdf Percentage of young women and men aged 15–24 who both correctly identify ways of preventing the sexual transmission of HIV and who reject major misconceptions about HIV transmission www.theglobalfund.org/documents/me/M_E_Toolkit.pdf Ratio of orphaned children compared to non-orphaned children aged 10-14 who are currently attending school www.unmillenniumproject.org/goals/gti.htm Ratio of school attendance of orphans to school attendance of non-orphans aged 10-14 years data.unaids.org/pub/Manual/2007/20070411_ungass_core_indicators_manual_en.pdfCurrent school attendance among orphans and among non-orphans aged 10–14 www.theglobalfund.org/documents/me/M_E_Toolkit.pdf Percentage of people with advanced HIV infection receiving antiretroviral combination therapy www.mdgmonitor.org/goal6.cfm Proportion of population with advanced HIV infection with access to antiretroviral drugs

7. Health Care Informatics | August 17, 2015 7 |7 | SDMX-HD* - Purpose Computer-readable indicator definitions. Aggregate data exchange standard for monitoring systems. Organization-specific format mappable across organizations. *Statistical Data and Metadata Exchange – Health Domain

8. Health Care Informatics | August 17, 2015 8 |8 | WHO Indicator and Metadata Registry (IMR)- Purpose Definition, management, and harmonization of indicator definitions by WHO and partners. Incorporation of international standards. Human and computer readable definitions. Global definition distribution.

9. Main WHO Screen

10. Public Screen

11. Web Service

12. Create Indicator

13. WHO Profile Program-specific profile Program-specific metadata

14. PEPFAR Profile Program-specific profile Program-specific metadata

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21. SDMX-HD Group

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23. Health Care Informatics | August 17, 2015 23 | SDMX-HD Implementations WHO Indicator and Metadata Registry (IMR) USG PEPFAR Country Operational Plan Reporting System (COPRS) Summary Data –Country Response Information System (CRIS) –District Health Information System (DHIS) Patient Care, i.e. facility-level –OpenMRS –EpiS3 (OpenEHR)

24. Health Care Informatics | August 17, 2015 24 | Links WHO Indicator and Metadata Registry –Public: www.who.int/gho/indicatorregistrywww.who.int/gho/indicatorregistry –Public with write access: extranet.who.int/IndicatorRegistryextranet.who.int/IndicatorRegistry Request extranet account from: extranet.who.int/adsextranet.who.int/ads SDMX: www.sdmx.orgwww.sdmx.org SDMX-HD: www.sdmx-hd.orgwww.sdmx-hd.org New release with normative document mid-March!

25. Health Care Informatics | August 17, 2015 25 | Thanks!