1. PCORnet: PopMedNet Use Jessica Sturtevant Data Standards, Security and Network Infrastructure Operations Team July 27, 2015 PopMedNet User Group Conference Boston, MA

2. PCORnet embodies a “community of research” by uniting systems, patients & clinicians 2 11 Clinical Data Research Networks (CDRNs) 18 Patient- Powered Research Networks (PPRNs) PCORnet: A national infrastructure for patient-centered clinical research

3. PCORnet’s goal 3 PCORnet seeks to improve the nation’s capacity to conduct clinical research by creating a large, highly representative, national patient-centered network that supports more efficient clinical trials and observational studies.

4. 29 CDRN and PPRN Networks 4 This map depicts the number of PCORI funded Patient-Powered or Clinical Data Research Networks that have coverage in each state.

5. PCORnet Implementation and Use of PopMedNet Network Implementation  User setup and maintenance in DRN Query Tool  DataMart Client installations and updates Network Operations and Management  Query distribution  Query tracking and management  Institutional, organizational, and DataMart metadata Functionality  Distributed querying File distribution Menu-driven (coming soon) Data checker  Query searching  Activity reporting and monitoring 5

6. PopMedNet Network Size 6

7. PopMedNet Infrastructure Enhancements PMN Version 4 to Version 5 (2014)  Update access controls  Improved speed and usability PMN Query Type Use and Enhancement (2014-2015)  Metadata capture  Data checker  Menu-driven query  Reporting 7

8. Metadata Capture 8

9. Data Checker 9

10. Menu-Driven Query 10

11. Reporting 11

12. Timeline: PopMedNet Implementation and Use 12 April 2014 Onboarding Activities Test Querying PCORnet CDM Querying Software Enhancement August 2015 April 7, 2014 Query Tool Live April 7, 2014 Query Tool Live April 2014 DataMart Setup Begins April 2014 DataMart Setup Begins January 2015 PMN V5 Released January 2015 PMN V5 Released May 2014 Query Tool Login & DataMart Client Setup Begins May 2014 Query Tool Login & DataMart Client Setup Begins June 2014 First Metadata Query June 2014 First Metadata Query August 2014 Test Menu-Driven Queries August 2014 Test Menu-Driven Queries October 2014 First Query against PCORnet CDM data October 2014 First Query against PCORnet CDM data October 2014 First Data Checker Query October 2014 First Data Checker Query March 2015 Data characterization begins March 2015 Data characterization begins May 2015 Menu-Driven Software Development Begins May 2015 Menu-Driven Software Development Begins August 2015 Data Checker Software Development Begins August 2015 Data Checker Software Development Begins