1. Building a partnership of trust through access to medical records and understanding In memory of Margaret Rickson, voted NHS Top 50 Innovator 2013 http://tinyurl.com/pdng5kk Ingrid Brindle Chair of Thornley House Patient Participation Group @IngridBrindle Dr Amir Hannan General Practitioner, Haughton Thornley Medical Centres Long Term Conditions lead, IM & T lead and Patient Engagement / empowerment lead, Tameside & Glossop CCG @amirhannan amir.hannan@nhs.net www.htmc.co.uk

2. I am not just a patient ……… (after (after A. C. Grayling, 2006) I am a mother, sister, partner, friend, learner, educator, humanist, carer, supp orter, cook, designer …

3. We are not just “families”………. (after (after Brindle after A. C. Grayling, 2014) We are nurses, engineers, judges, cleaners, waste disposal operatives, rocket scientists, brain surgeons, care workers car salespeople, children, comedians, cooks….

4. Our health – our lifetime’s work! Our most important project Most of it done “Home Alone!”

5. Click here to access your medical records Click here to learn more about what you can do when you access your records Click here to sign up for access to your records Click here if you have forgotten your passwords and need to rest them again www.htmc.co.uk

6. Click here to view your medical record

7. Click here to see more information about the problems you suffer with

8. Click here to see your medications You can learn more about the conditions you suffer with by clicking here Please remember to look at the practice website www.htmc.co.uk for information specific to the practice and other trusted information too www.htmc.co.uk

9. See cholesterol result

10. See result, what the normal range is (not always accurate) and a graphical display to show if in the normal range or not as well as whether normal / abnormal Please note further information about test results is available on the practice website www.htmc.co.ukwww.htmc.co.uk In particular, you may find Lab Tests Online useful and of course the advice your doctor or nurse may have given you too. If you are not sure then please book an appointment with your doctor or nurse who may provide you with more information Click here to see letters

11. Click here to see an example letter You can see letters that have been sent by the surgery as well as letters that come from clinics you may attended in the community or from the hospital, results of tests such as scans, biopsy results.

12. Click on details to see the contents of the consultation You can see comments added by admin staff You can see if a doctor has acted on information but not contacted you directly – usually a reminder for the doctor when they do contact you or allows you to know why something has happened Encompass documents are Instant Medical History questionnaires which allow you to complete a questionnaire about certain symptoms such as cough, abdominal pain or rash before you see the clinician. We hope to expand its use across the practice to enhance the care you receive and save you time too! Click on immunisations

13. Click on allergies

14. App available for iPhone and Android smartphones Search for “Patient Access” Order prescriptions and send secure messages and see Replies via your smartphone app Book an appointment at your convenience View Your Medical Record You can also check your address, change your password, update security questions and update your mobile and email address Medical Record Viewer on your smartphone (iPhone / Android) Please remember to also see www.htmc.co.uk to see relevant personalised practice-based informationwww.htmc.co.uk Test Patient Record User ID: 96320007399 Password: HAUGTON1 App available for iPhone & Android Search for “Patient Access” SystmOne App for iPhone / Android

15. Why so little progress with the empowerment of patients?

16. What is needed is for all the patient information to be ‘joined up’ GP records My information (blood pressure, glucose levels, etc In-patient information Out-patient information Information from other agencies (social care, physiotherapy, chiropody etc) Information from carers And so on

20. http://tinyurl.com/o2ugd5w

22. Type of patientHow many have signed up% Asthma588/175333% COPD96/35626% Diabetes272/79834% Cancer84/26132% Depression / Anxiety700/140050% Rheumatoid Arthritis33/7345% Heart disease136/46928% Low back pain908/250436% Chronic Kidney Disease70/35219% Thyroxine166/45936% Learning disability8/4816% Bengali patients374/150324% Medications ordered online785/117106% Total patients3245/1171028% For latest data: see http://www.htmc.co.uk/pages/pv.asp?p=htmc0328

25. To learn what happened when patients asked to set up social media following Care.Data, see http://tinyurl.com/ptfrvmn

26. What are we doing? Building capacity & capability for online services alongside offline Explicit consent process Focus on service delivery Making this “business as usual” Engaging other practices, CCG & providers Building Trust with people that matter Ask informed patients and they will respond +vely

27. Current situationFuture plans Currently offer booking appointments online Currently offer ordering repeat prescriptions online Currently offer patient access to the full records Would you like to offer booking appointments online Would you like to offer ordering repeat prescriptions online Would you like to offer patient access to the full records Yes n/aYes NoYes Non/aYes NoYes n/a YesNo Yes No Yes NoYes NoYesNoYes NoYesNoYes No Yes No Yes NoYes NoYes No Yes No YesNo Yes NoYes NoYes NoYes No Yes No Yes No Yes No Yes No n/aYes n/a YesyesNoYes NoYesNoYes NoYesNoYes No Yes No Yes NoYes No Yes No Yes GP practices in Tameside & Glossop CCG offering online services – access currently (blank=not declared)

28. http://www.bbc.co.uk/news/uk-29306889 http://tinyurl.com/lpkr6nz BBC News Monday 22 nd September Haughton Thornley Medical Centres Response on Facebook / Twitter 23 rd September

29. The way forwards Invest in Online Services & Understanding Getting explicit consent can be done at scale (84% of Scotland voted in 15 hours on referendum) Invite patients to forward the record on (and track and monitor its usage) Investment will be needed to scale Please join us & build together a better future