1. The Empowered Patient – involved in his / her care and medical record Dr Amir Hannan Full-time General Practitioner, Haughton Thornley Medical Centres, Hyde, Cheshire (www.htmc.co.uk) Information Management & Technology Lead Tameside & Glossop PCT Primary Care Lead, NW SHA Member of the HealthSpace Reference Panel, NHS CfH (www.healthspace.nhs.uk) Member of the Clinical Leaders Network (www.cln.nhs.uk) amir.hannan@nhs.net Cartoon taken from www.mediclicks.net

2. Summary What is an empowered patient? How do patients become empowered? What systems can patients use? 3 success factors for Patient Empowerment What services / systems are required to make this a success ? What can such patients do?

3. What does “empowered” mean? To invest with power, especially legal power or official authority To equip or supply with an ability www.dictionary.com

4. What is an “empowered patient” ? www.theempoweredpatient.com Our goal is to raise public awareness about pressing patient safety issues including adverse events, medication errors, hospital- acquired infections and communication failures.

5. What is an “empowered patient” ?  Patient safety ?  Strategy / implementation ?  Passive / active patient ?  Dependent / Independent / Inter-dependent ?  Born with innate ability / nurtured ?  Empowered patient who asks the doctor to do something vs disempowered patient who is given choice!  Is there a role for an “empowered patient” in the “complex chaos” of the NHS ?

6. The “Empowered Patient” Reactive vs Proactive Passive Enabled Informed Empowered Patient Person Family

7. Delivering the vision Starts with a person…....who may or may not become a patient…...who has certain needs…...who comes to us for help…...who wants to know that we will deliver… …the care they deserve… …with dignity… …with professionalism… …and above all respect for them as a person… …living amongst a community… …wanting the best that we can offer….

8. Data InformationKnowledge StructuresProcessesOutcomes Where does “Information” sit ? KnowledgeSkillsAttitudes

9. Family of classifications Sharing the records Immediate Care Continuing Care Preventative Health Promotion Patients Public Admin Government Standards Science & Research Clinicians

10. What critical success factors are needed to enable Patient Empowerment? Patients and the Public Partnership of Trust The Paradigm Shift in Healthcare (Please contact me and I will send copies of the papers that define the above)

11. What do I want my clinical system to tell me? Is this patient “IT positive” or “IT negative”?

12. Real-Time Digital Medicine

13. www.nhs.uk

14. HealthSpace - www.healthspace.nhs.uk

16. Summary Care Record www.connectingforhealth.nhs.uk/systemsandservices/nhscrs/scr

17. HealthSpace Advanced

18. Patient Access to GP electronic health record

21. The first Health 3.0 website in the world linking information and services for patients and families in one place to enable and support eMPOWERed patients!

22. Practice Website Informing Patients www.htmc.co.uk

23. Real-time Digital Medicine from a patient perspective

24. What happens when the wider public are informed ?

25. “Yours” magazine NHS online? Yes please! Letter from an empowered patient after he saw a “negative” article about IT systems in the NHS. The battle lines have begun…

26. Summary Patients CAN access their electronic health records on-line Not a question of IF but rather WHEN and HOW Strategy and implementation go hand in hand NHS CfH and others ARE delivering tools to help support the culture change Patients ARE driving the competition and the organisational change necessary What are YOU doing to SUPPORT the empowered patient?

27. Primary Health Care Specialist Group conference Meet Empowered Patients 1-2nd July 2008www.phcsg.org