GENOMICSGENOMICS Chronic Disease Genomics Project Assessment and Response Genomic Team Meeting January 19, 2005

GENOMICSGENOMICS 2 Overall Project Goal  Integrate genomic information and tools appropriately into public health programs, planning and policy development in MN  But, how? G E N O M I C S

GENOMICSGENOMICS 3 The Roadmap for Success  Inspire Leadership  Listen, Comprehend, Prioritize, Decide  Leverage or obtain “resources”  Build Capacity  Awareness  Knowledge  Competence  Facilitate Integration and Application  Consultation, Coaching, Creation, Innovation, Communication, Collaboration, Encouragement  Evaluation  What is the impact? What did we learn? How do we improve?

GENOMICSGENOMICS 4 Objective: Increase Genomics Capacity  Develop a sustainable capacity- building program for the public health work force in MN  Who is the public health workforce, and what are their important issues and learning needs??

GENOMICSGENOMICS 5 Public Health Workforce  Internal partners – MDH  External partners  Local public health  Health care providers  Academic partners  Policy makers  Health plans  Non-profit organizations  Private companies  The public  Others

GENOMICSGENOMICS 6 Genomic Team Genomics KAB Assessment (Jan 2004) Input from Focus Groups with External Partners on Genomics in Public Health (May 2004) Feedback, discussion & info from Genomics: The Connection to Public Health Practice (Nov 2004) Genomics Team Evaluation and Assessment (July 2004) Peer Reviewed Literature on Genomics & Public Health Information from other “Genomics” States & Centers CDC, HRSA, NIH direction & knowledge/data Genomics Capacity Building Other and informal info sources

GENOMICSGENOMICS 7 Compiled assessment findings: Important issues  ELSI and public policy issues  Lack of practical applications  Lack of knowledge re: genomics  Lack of communication and collaboration  Health disparities  Data collection  Emerging technologies

GENOMICSGENOMICS 8 Compiled assessment findings: Learning needs  Genomics 101: What is genomics?  Why is genomics relevant to PH?  Practical application  Gene/environment interaction  ELSI: What are the issues? How to address?  How to create and target messages

GENOMICSGENOMICS 9 Compiled assessment findings: What should MDH do?  Educate multiple audiences  Public health workers  Health care providers  Policy makers/legislators  The public

GENOMICSGENOMICS 10 Compiled assessment findings: What should MDH do?  Maintain safe repository for genetic & genomic information  Collaborate with academia, clinical medicine, state and local public health, partners from public and private sectors

GENOMICSGENOMICS 11 Compiled assessment findings: What should MDH do?  Provide technical assistance to public health community  Support and coach PH practitioners in integrating genomics into their work

GENOMICSGENOMICS 12 Our Response: Genomics Communciation Plan  Build and strengthen partnerships  Genomics Team re-design  Website and communications  Basic genomics education  Subject-specific and advanced genomics education/skills building  Promote or sponsor outside speakers and events

GENOMICSGENOMICS 13 Our response: Genomic “Team” Re-Design  Two hour meetings 3 times per year  Stronger educational component:  Gene/environment interaction  Overall application of genomic information and tools in PH  ELSI  Project updates and feedback  Discussion and continuing assessment

GENOMICSGENOMICS 14 Our response: Genomics Project Website  New website architecture is coming  Logically organized, easy to navigate  Online newsletter organized around topics of interest  Links to relevant information  Collection of genomic tools per area of PH practice  Much more...

GENOMICSGENOMICS 15 Our response: Building Basic Capacity  Brown bag presentations of available educational products:  Genomics for PH practitioners  Six weeks to genomics awareness  The Surgeon General’s family history tool  Plan to show at 717, GR, and MSQR at intervals throughout year

GENOMICSGENOMICS 16 Our Response: Advanced Capacity Building  Sponsor events that emphasize knowledge & skill-building  Dissemination of relevant info and upcoming events  Annual conference and presentations  Education on genomics for identified audiences  Participation with public health programs and projects

GENOMICSGENOMICS 17 Genomics: The Connection to Public Health Practice  Experts present to MN PH community  CDC perspective on using genomics tools in public health research and practice  Gene-environment interaction  Academic-Practice partnerships  ELSI from a PH perspective  Integrating “–omics” approaches into public health research and practice

GENOMICSGENOMICS 18 Genomics: The Connection to Public Health Practice  Facilitated Round Table Discussions: 1.Chronic Conditions 2.ELSI 3.Environmental Health  Purpose:  Reflect on presented information  Consider application in practice/policy  Identify strengths, needs and gaps  Suggest next steps

GENOMICSGENOMICS 19 Our Response: Listening to Feedback  Survey of round table participants:  Genomics capacity increased  Although important, difficult to identify practical applications  Family history is a genomic tool  Key to understand disease etiology/process  Challenging ELSI and policy issues

GENOMICSGENOMICS 20 Our Response: Next Conference May 2005  Overarching themes:  Application  Communication  Integration  Collaboration  Workshop format to address need for increased genomic capacity, skill building and practical application  May 12, 2005, College of St. Benedict

GENOMICSGENOMICS 21 Our response: Next conference, May 2005 Work shops: 3 tracks  Collecting and using family history in public health practice  Multicultural issues and ELSI  New approaches for environmental health and genetic testing in public health practice

GENOMICSGENOMICS 22 Our response: Collaboration and Partnership  Academic partners  MDH divisions, programs, and staff  Providers and clinics  Health plans and private companies  Local public health  Non-profit organizations  CDC, HRSA, etc.  States, Tribes, Communities

GENOMICSGENOMICS 23 The Roadmap for Success  Inspire Leadership  Listen, Comprehend, Prioritize, Decide  Leverage or obtain “resources”  Build Capacity  Awareness  Knowledge  Competence  Facilitate Integration and Application  Consultation, Coaching, Creation, Innovation, Communication, Collaboration, Encouragement  Evaluation  What is the impact? What did we learn? How do we improve?

GENOMICSGENOMICS 24 “In many ways, you and your colleagues are like the pioneers who came to Minnesota 150 years ago— Not quite knowing where you would end up, but knowing you had to make the trip.” John Hurley, 2001