1 Diaspora-led coalition for health systems support & engaging communities: any lessons from the sickle cell disease campaign? Dr Asa’ah Nkohkwo FRSPH.

Slides:

Advertisements

Similar presentations

Overview of HIV/AIDS Care and Treatment Country Situation & KATH Lambert T. Appiah Lambert T. Appiah.

Advertisements

Where are we now? The Impact of Dementia on Black and Minority Ethnic Communities David Truswell.

Sickle cell anemia Jordan Williams.

HSI Pediatric Asthma Initiative & ZAP Asthma Atlanta Rosa Arriaga, Ph.D. Director Pediatric Research.

Reported school experiences of young people living with sickle cell disorder in England Sickle Cell and Education Lecture 3 of 6 Simon Dyson.

The West Cheshire Way Be part of the conversation.. Alison Lee Chief Officer West Cheshire Clinical Commissioning Group Making sure you get the healthcare.

Detection & Referral of 4,221 Children with Cataract from Rural Bangladesh: Use of Key Informants by Child Sight Foundation in Bangladesh Detection & Referral.

Andrew Novoa and Thea De Guzman 2/1/10 Per. 3

A Pilot Study to Measure the Effectiveness of a Neonatal Sickle Cell Screening and Comprehensive Care Program in Kenya.

By: Austin Schulte & Brendan Logan P. 4. Background/History  Discovered in 1910  The disease is said to have originated in Africa, but it was first.

Interim Care Centers, The Role of Local Partners Jessica Izquierdo, MPH Technical Advisor, Youth Programs.

Pregnancy & Newborn Screening Developments

Genetic screening.

+ Interventions for Ethnically Diverse Populations.

Anemia Dr Gihan Gawish.

Sickle Cell Anemia.

Ethnicity Question and Antenatal Screening for Sickle Cell and Thalassaemia [EQUANS]: Lessons for Low Prevalence Areas Simon Dyson Ethnic/Family.

Role of Pharmacist in Malaria Control

North West London Haemoglobinopathy Managed Clinical Network Lola Oni Professional Services Director/ Lecturer Brent Sickle Cell & Thalassaemia Centre.

Updates on Regional Tobacco Control Activities- AFRO R. Machang’u.

Mental Health Care: International Perspective Afzal Javed President World Association for Psychosocial Rehabilitation

Where are we now? The Impact of Dementia on Black and Minority Ethnic Communities David Truswell.

Very Bright Worship Service Facts to Break Sickle Silence ® September , 2010.

African Business Leaders on Health: GBC Conference on TB, HIV-TB Co-infection & Global Fund Partnership Johannesburg, October 11, 2010 The state of Global.

Sickle Cell Disease - Global Update Pan American Health Organization October 3, 2009 Belo Horizonte, Minas Gerais, Brazil Kwaku Ohene-Frempong, M.D. University.

Embracing Child and Maternal Health FWT – a centre for women By :Noreen Bukhari (MAMTA Manager) Date: Migrant Workshop Jan 2014.

A Brief Overview of Sickle Cell Anemia By: Aaron Bush.

By: Glenna, Savannah, and Chris

Haemoglobinopathies.

Barriers to achieving the health MDGs and how these can be overcome Action for Global Health UK Policy Conference London, 28 June 2010 Isabelle de Zoysa.

NHS Sickle Cell and Thalassaemia Screening Programme sct.screening.nhs.uksct.screening.nhs.uk NHS Sickle Cell and Thalassaemia Screening Programme Allison.

Where are we now? The Impact of Dementia on Black and Minority Ethnic Communities David Truswell.

Blood disorders and Hematstasis. Anemia  what is it?

Sickle Cell Inheritance

The commonest inherited conditions in the world

THE INHERITANCE OF HUMAN TRAITS HUMAN BLOOD GROUPS Some genes can have three or more alleles: multiple alleles Important to remember that only two alleles.

The Genetics of Sickle Cell Anaemia By Katie Ridewood.

SICKLE CELL ANEMIA Omar and Yassin.

Women’s Health Evening Portishead Medical Group Monday 12 th October pm.

WFH WORK IN NIGERIA ENUGU, NIGERIA AUGUST 2014 Assad Haffar Deputy Programs Director 2012.

London Ambulance Service NHS Trust What are the alternatives for patients who are not life threatened? Clinical Telephone Advice Walk in Centres Minor.

International Diabetes Federation. Context Diabetes Statistics:  Prevalence: 6.7% in 2010 and 7.8% by  5th leading cause of mortality (2010)

Post Diagnostic Support HEAT Measurement Workshop Workforce Planning and Costings 6 th February 2013 Welcome Mental Health Division QuEST Quality and Efficiency.

Sickle Cell Disease By Samantha.

Genetic Counseling for the Future

Sickle Cell Inheritance Exploring Genetics and Probability.

National Academy of Sciences Committee on Human Gene Editing Trevor Thompson, ABD CE0 – Sickle Cell Foundation of Tennessee.

Sickle Cell Trait: Know Your Status Jacqueline Rodriguez-Louis, MPH, M.Ed.

Sickle-Cell Anemia Katie Baska. What is Sickle-cell Anemia? An inherited disease that results in the production of abnormal hemoglobin in red blood cells.

KAITLIN BANNON SICKLE CELL DISEASE. WHAT IS SICKLE CELL DISEASE? WHERE DID IT COME FROM?

Community Paramedic Primary Care Project.

Steps for the Integration of Traditional Medicine in the National Health Care Delivery System 18 TH ICASA Special Session on Traditional Medicine 1 st.

Ethnic inequalities in men’s health in London Justine Fitzpatrick London Health Observatory Making men’s health matter, 9 th March 2006.

2007 Pan American Health Organization 2004 Pan American Health Organization Malaria in the Americas: Progress, Challenges, Strategies and Main Activities.

An Overview of the Burden of Non- Communicable Diseases (NCDs) Dr Sylvia J Anie Director Social Transformation Programmes Division (Education, Health,

Voluntary Sector Care Partnerships

Fundraising proposal for a radio campaign in Guinea, Mali and Niger

Novel interventions to enhance access to TB services for vulnerable and marginalised populations: experience from Axshya Sripriya Pandurangan, The Union.

Italian cooperation ** in subequatorial African areas at high incidence of “sickle cell disease” (SCD): a cooperative project of curative treatment and.

Increasing Awareness of Hypertension in Africa : Road to Success

What is Sickle Cell Disorder (SCD)

REVISION: GENETICS Topic 4.2 IB Biology Miss Werba.

COMPLEX PATTERNS OF INHERITANCE

Geneva, Switzerland June 2002

Haemoglobinopathy testing and screening

Inherited Disorders.

Children’s Centres What does the data tell us….

Multifactorial genetic disorders, or complex traits, result from several genes in combination with lifestyle and environmental influences. Multifactorial.

NHS Sickle Cell & Thalassaemia Screening Programme

Sickle Cell & Thalassaemia GP Study Day Community Nursing

Presentation transcript:

1 Diaspora-led coalition for health systems support & engaging communities: any lessons from the sickle cell disease campaign? Dr Asa’ah Nkohkwo FRSPH Technical Adviser, London Focus Sickle Cell in Africa, Member: CamDocUK, TMG UK & FFF Cameroon Presentation to APPG-Malaria, London 29 Sept 2012

Worldwide Distribution Haemoglobin S Sickle Cell Disorder is found in Africans, Turks, Greeks, Saudi Arabians, Egyptians, Iranians, Italians, Latin Americans and Asiatic Indians. MALARIA ENDEMIC ZONES !!!!! Sickle cell trait is present in 1 in 4 West Africans, 1 in 10 African- Caribbeans, 1 in 10 Greeks and 1 in 50 Asians. It can also be found in 1 in 1000 White British. Beta Thalassaemia trait is found in 1 in 7 Greek Cypriots, 1 in 12 Turkish. It is less frequent in Asians, African- Caribbeans and White British.

Sickle Cell Inheritance: prevalence Up to 1 in 4 silent carriers in people of West African descent Up to 1 in 50 “full-blown” sufferers 350 (UK) & 200,000 (Africa) babies born every year with sickle cell 80% 5yr Mortality rate in African sickle babies; normalising in the UK Could countless Africans be already genetically compromised? 3

Care Pathway - Summary Newborn identification Parent notification, education, provision of parent handbook, community support Symptomatic treatment: pain & crisis Prophylactic penicillin & pneumovax Referral Care & Reviews N-S COLLABORATION with MALARIA INTERVENTION???

N-S COLLABORATIONS: lessons from/ story of the sickle-cell campaign, “from the margins to the mainstream” ( ) From UK (SCS) to Paris (OILD) to UNESCO (role of African 1 st Ladies) Through the WHO to the WHA (Res of May 2006) & the UN World Sickle Cell Day from Political & Technical implications as a result. IMPACT: UK NHS, APPG SC&T, Pharma sponsorship attracted IMPACT: African govts slow but improving commitment : Congo-B, Senegal, Benin, Nigeria (notably HE Obasanjo), Cameroon... Budding NS technical collaborations: London Focus (Nigeria, Cameroon, Ghana, S- Leone), Salem Health (London- Kinshasa). 5

BUILDING COALITIONS & ENGAGING COMMUNITIES DIASPORA COALITIONS: Professional & Homeland Associations Require: Mapping (workshop Q-1) Identifying & engaging leaders Convergence of group interests (Q-2) Anchorage (universities & embassies etc) Resources: time & money (Q-3) Other challenges/ barriers (Q-4) Creating linkages: N-N, N-S, S-S 6

ACKNOWLEDGEMENTS SLIDES (NHS BRENT SC Centre) PATIENTS DIASPORA COLLABORATIONS THANK YOU ! 7