Child Death Review Reporting From Case Review to Data to Prevention

Purpose of CDR Case Reporting To systematically collect, analyze and report on:  Child, family, supervisor and perpetrator information  Investigation actions  Services needed, provided or referred  Risk factors by cause of death  Recommendations and actions taken to prevent deaths  Factors affecting the quality of your case review

How Do Teams Use Their CDR Data?  Local teams present annual findings to community groups to push for local interventions  Teams use data as a quality assurance tool for their reviews  State teams review local findings to identify trends, major risk factors and to develop recommendations

How Do Teams Use Their CDR Data?  State teams use findings to develop action plans based on their recommendations  Local teams and states use their reports to keep or increase CDR funding  National groups use state and local CDR findings to advocate for national policy and practice changes

Some National Groups showing interest in Child Death Review Data  Consumer Product Safety Commission  CDC  Healthy People 2010  Child Maltreatment Surveillance/Neglect Definitions  National Violent Death Reporting System  National Guidelines for Infant Death Investigations  National SAFE KIDS  National Council of State Legislators  American Prosecutors Research Institute  American Academy of Pediatrics  Department of Defense  Manufacturers, e.g. Door and Window Mfg, National Pool Safety Council, National Waste Management

Examples of Data Uses at a National Level Safe Sleep

State of the States  44 states have a case report tool  39 states publish an annual report with findings and recommendations  18 states have legislation that requires a report on child death  However, there is no consistency among any state case report tools or state reports

A New Case Report System  Funded by Maternal and Child Health Bureau, HRSA, HHS  A 30 person workgroup of 18 states over two years, analyzed 32 existing state case report forms  Developed standard data elements, data dictionary and 31 standardized reports

Using the National MCH Center System Participating Considering In Process

The Child Death Review Case Reporting System From Case Review to Data to Action Step 1: Complete case review of child death.Step 2: Complete CDR Case Report Online at Step 3: Send Report through Web, to servers at MPHI Step 4: Servers sort and store data and permit access according to state requirements. Step 5: State and local teams and national CDR download standardized reports and/or download data to create custom reports. Step 6: Reports and data are used to advocate for actions to prevent child deaths and to keep children healthy, safe and protected.

Standardized Reports – National Center Level

Standardized Reports – State and Local Level 1.Demographics (Ethnicity/Race and Age Group by Sex) 2.Infant Death Information 3.Manner and Cause of Death by Age Group 4.Investigation Information 5.Motor Vehicle and Other Transport Death Demographics 6.Vehicle Type Involved in Incident and Position of Child 7.Risk Factors of Young Drivers (Ages 14-21) Involved in the Crash 8.Motor Vehicle Protective Measures 9.Fire Death Demographics 10.Factors Involved in Fire Deaths 11.Drowning Death Demographics 12.Factors Involved in Drowning Deaths 13.Suffocation or Strangulation Death Demographics 14.Weapon Death Demographics 15.Safety Features and Storage of Firearms Used in Incident 16.Owner and Use of Weapon at Time of Incident 17.Poisoning Death Demographics 18.Factors Involved in Poisoning Deaths 19.Sleep-Related Death Demographics 20.Sleep-Related Deaths by Cause 21.Circumstances Involved in Sleep-Related Deaths 22.Factors Involved in Sleep-Related Deaths 23.Sleep-Related Deaths by Acts that Caused or Contributed to Death 24.Acts of Omission/Commission Demographics 25.Acts of Omission/Commission Child Abuse Information 26.Acts of Omission/Commission Child Neglect Information 27.Acts of Omission/Commission Assault Information (Not Child Abuse) 28.Acts of Omission/Commission Suicide Information 29.Deaths by Manner and Cause by Preventability 30.Team Prevention Recommendations 31.Review Team Process