CNI Grant Use of Clubhouse Model to Improve Quality of Life of Persons with TBI in Charlottesville and Surrounding Area November 1, 2001 – October 31, 2004 Leigh Wion, CTRS, CBIS The High Street Clubhouse Charlottesville, VA CNI Community Colloquium November 5, 2004

Presentation Outline Initial goals and achievement of those initial goals Identification of outcomes Lessons learned Good ones Not so good ones Questions

Initial Project Goals 1. Expand clubhouse program to include persons with brain injury living in the Charlottesville and surrounding communities who are not currently receiving any services from The John Jane Brain Injury Center 2. Transition Clubhouse program from pilot program to permanent program by the 3 rd month of the year 1 3. Provide opportunity for members to develop basic job skills including time management, compliance with clubhouse standards, personal hygiene and neat appearance, appropriate social skills, and productivity 4. Independent social functioning

Initial Project Goals (cont.) 5. Evaluate the efficacy of the Clubhouse Program in improving quality of life, client satisfaction, and community integration 6. Staff training on International Clubhouse Standards at Fountain House 7. In-house staff training through quarterly consultations with Mill House Program Director or designee.

Goal #1 – Expand program Brochures to area community agencies On-site informational presentations Develop website for the clubhouse – currently a link on the Virginia NeuroCare site.

Goal #2 - Transition from Pilot Program to Permanent Program Second unit coordinator hired in February 2002 Open 5 days/week in April 2002 Third unit coordinator hired in September 2003 Steady but slow increase in Average Daily Membership

Average Daily Members by Year

Goal #3 – Opportunity to develop basic job skills, etc. Outcome is the development of Transitional Employment (TE) Currently continue with an established relationship with one small business in Charlottesville

Goal #4 – Independent Social Functioning Member identification of community resources, volunteer jobs, and recreational activities. Implemented weekly clubhouse newsletter that members identified volunteer opportunities and upcoming community events. Added a leisure satisfaction measurement tool to gather data. See goal #5

Goal #5 – Evaluate efficacy Use of Quality of Life Inventory, Satisfaction with Life Scale, and Community Integration Questionnaire. Surveys administered to members in January and July. Anticipated a 10% improvement in the first six months and 20% after one year Added the Leisure Satisfaction Measure in January 2004

Data Comparison – Life Situation Survey

Data Comparison – Satisfaction with Life Scale SURVEY AUG '02 JAN '03 AUG '03 JAN '04 AUG ' N/A N/A N/A N/A N/A N/A55 16N/A AVERAGE MEDIAN ST.DEV HIGH LOW

Data Comparison – Community Integration Questionnaire

Data Comparison – Leisure Satisfaction Measure Total Leisure Score max. Jan '04July '04 Survey Number

Goal #6 – ICCD Colleague Training at Fountain House Visits to Blue Ridge Clubhouse and The Mill House prior to opening. One day training at The Mill House. Long discussions with ICCD Training Coordinator about the acceptance of brain injury clubhouses Referred to Gateway House in South Carolina for Colleague Training Attendance at International Clubhouse Seminar in Minneapolis in October 2003 International Alliance of Brain Injury Clubhouses

Goal #7 – In House Staff Training Initial consultation with Program Manager at The Mill House Year 1 – Dr. Harvey Jacobs Year 2 – Cindi Johnson, Side by Side Clubhouse, Harvey Jacobs Year 3 – Janet Hill, CNI Program Review International Alliance of Brain Injury Clubhouses – list serve and data comparison

Project Outcomes Young, developing clubhouse program with established work units Ongoing relationships and recently new relationships with potential referral sources Advocacy activities with local legislators Participant in activities of the International Alliance of Brain Injury Clubhouses Good data collection - limited numbers to demonstrate statistical significance

Lessons Learned At the recommendation of the CNI Advisory Board, The John Jane Brain Injury Center Clubhouse became The High Street Clubhouse on October 1, Delay in hiring third staff position until year 3 impacted attainment of goal of volunteer work experiences/TE placements Meeting the significant case management needs of some members

Lessons Learned - continued Shift of focus at the end of year 3 with a move to a new location and resignation of 3 rd staff member Fundraising Lack of sufficient transportation for outlying members and lack of access to dedicated transportation for clubhouse business Member recruitment

Questions???