Māori and Pacific Island Disabled Peoples Hui/Fono 2012 Report from the MPDF Organising Committee to Disability Support Advisory Committee of CCDHB & HVDHB 13 August 2012

Māori and Pacific Island Disabled Peoples Hui/Fono 2012 Overview 1. To provide an update from the 2010 Hui/Fono and highlight service changes. 2. To provide a safe space for Māori and Pacific disabled people to come together 3. To provide a means for the voices to these communities to be heard, and understood. 4. Gain further understanding of issues, and identify ways to facilitate better healthcare access 5. Develop recommendations to inform CCDHB disability responsiveness strategy & education programme

Māori and Pacific Island Disabled Peoples Hui/Fono 2012 Discussion Themes 1. Needs Assessments/Service Coordination 2. Consumer Engagement 3. Equipment Management Services

Māori and Pacific Island Disabled Peoples Hui/Fono Needs Assessment Presentation by Mr David Darling (Service Leader, Capital Support) 1. Disparities of access by Māori and Pacific 2. Lack of cultural awareness/ empathy 3. Lack of agency collaboration → duplication of assessments/ forms 4. Client ‘focus’ rather than ‘process’ focus → more timely responses

Māori and Pacific Island Disabled Peoples Hui/Fono 2012 Needs Assessment/ Service Coordination Issues/feedbackRecommendations Statistics/Data of those accessing services vs. those that don’t Advocate for research project to collate this information Lack of demonstrated cultural awareness amongst health professionals Evaluate cultural training, content, providers, post course accountability Lack of demonstrated cultural empathy Evaluate cultural training, content, providers, post courses accountability Improve and catered Needs Assessment processes Consumer involvement in design & development phases- ONE MULTIAGENCY FORM Consumer-friendly Needs Assessment process / Assessors Consumer involvement in training and implementation Lack of agency collaboration & services for consumer / duplication The development of a standard Needs Assessment process across medical fields More client focussed, rather than ‘process’ or compliance focussed The development of client focuses/driven approach to collaborate with DHB Response timing reflects NEED of the person rather than process Review current process – Consumer engagement Support services more available and accessible Develop a call centre (Hotline) that can access services at all times Training consumers to provide services for consumer Provide training opportunities for consumers & build capacity. Recruitment of staff with “lived experiences” of disability Support Services: Need to be experience, not just qualifies Recommend all providers are trained in cultural awareness/ ethnic specific areas (see above)

Māori and Pacific Island Disabled Peoples Hui/Fono Consumer Engagement Presentation by Mrs Kerrie Hayes (Director Nursing/ Midwifery CCDHB) 1. Lack of cultural empathy/ understanding by staff of how to engage in culturally appropriate manner 2. Staff lack staff training in disability-specific support for inpatient services 3. Inadequate opportunities for consumer input/engagment 4. Need for capacity-building of disabled people to be involved in service provision

Māori and Pacific Island Disabled Peoples Hui/Fono 2012 Consumer Engagement Issues/feedbackRecommendations One size fits all approachMore adaptable approach for all peoples Nurses / staff: “Robotic” vs. “Human” Cultural training all cultures and understand ways and beliefs Lack of demonstrated cultural empathyConsumer engagement in cultural training Nurses not trained appropriately to support people with disabilities Consumer engagement in specific training Equipment in hospitals not designed with needs in mind Database for disabled peoples needs Methods of communication not ideal to reach ALL peoples/communities More appropriate communication equipment/ services Lack of consumer in involvement at a strategic level & decision making Māori/Pacific Disability Consumer Engagement Group Lack of consumer input in the community with implementing funding & services Māori/Pacific Disability Consumer Engagement Group Recognition of different pacific identities in deliveryMāori/Pacific Disability Consumer Engagement Group Training consumer to engage with consumersMāori/Pacific Disability Consumer Engagement Group Irregular and erratic opportunities for consumers to collaborate More regular engagement meetings/ opportunities

Māori and Pacific Island Disabled Peoples Hui/Fono Equipment Management Services Presentation by Rachael Tatham (on behalf of Equipment Services Manager, MoH ) 1. Lengthy, convoluted process → long delays 2. Inability to readily view/ access trial equipment → poorly suited equipment (poor selection) 3. Inadequate ‘lifetime’ entitlements 4. Lack of holistic approach/ responsiveness to client needs (funding driven process) 5. Lack of availability of communication equipment/services

Māori and Pacific Island Disabled Peoples Hui/Fono 2012 Equipment Management Services Issues/feedbackRecommendations Long and convoluted processMore timely and appropriate equipment Limited equipment options Loan equipment more easily available. Loan instead of buy/ rent (Toy Library model). Loan instead of buy/ rent Trial equipment not easily available Warehouse to trial equipment (better system for returns) Lack of communication for deaf and people with speech impairment Improved access to deaf communication aides (outpatients, emergency department etc). Lack of communication for deaf and people with speech impairment 111 text service. SMS text communication Deaf communication aidesTTY/ Voice interface first appointments/ in hospital Lifetime entitlement (Vehicle modification etc.)Review of entitlements to remove lifetime limit.

Māori and Pacific Island Disabled Peoples Hui/Fono 2012 Recommendations Needs Assessment/ Service Coordination 1. Advocate for a common, shared, electronic disability assessment tool for use with all NASC’s & providers 2. Identify barriers to access of NASC services 3. Address the lack of culturally appropriate processes & staffing 4. Evaluation of service effectiveness for Māori & Pacific

Māori and Pacific Island Disabled Peoples Hui/Fono 2012 Recommendations Consumer Engagement 1. Improved & more regular consumer interaction with Māori and Pacific disabled communities 2. Establish Māori and Pacific Consumer Engagement Group to regularly liaise with CCDHB (service delivery & staff training)

Māori and Pacific Island Disabled Peoples Hui/Fono 2012 Recommendations Equipment Management Services 1. Improved communication equipment/ services for inpatients/outpatients with disability 2. Audit effectiveness of current service processes from client/ outcomes perspective 3. Improved access to trial equipment with selection of types and sizes available

Māori and Pacific Island Disabled Peoples Hui/Fono 2012