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Presentation transcript:

INDIANA Who We Are Family Voices Indiana is the Family-to-Family Health Information Center for the state. Created in 2005, these centers are statewide, family-led organizations that provide information, education, training, outreach, and peer support to families of children and youth with special health care needs and the professionals who serve them.

INDIANA What we do Family Voices helps other families improve, or learn more about: First Steps Medicaid; Medicaid Waivers Respite Community supports and resources Health Care Funding; Health Care Services and many other things

INDIANA Statewide Support

INDIANA Information

INDIANA Original fact sheets Incontinence items with/without Medicaid Medicaid Transportation Accessing Medicaid Disability PA Parenting a Child with a Disability Travel with CYSHCN Transition from First Steps Medicaid Waiver Journey Considerations for CYSHCN in the ACA marketplace Funding Accessible Transportation Grandparents raising CYSHCN More coming soon!

INDIANA Trainings To Your Child’s Health: Navigating the Funding Maze Filling the Funding Gaps All Types of Medicaid Health Care Transition and Financing after 18 Medicaid Waivers Stretching your Waiver Dollars Special Education Tools for Parents, including 7 Tweaks in 7 weeks Disability Awareness Family Leadership Caregiver Stress Funding Mental Health Care Notebooks

INDIANA Webquests

INDIANA Building Family Leaders Welcome to the Indiana Family Portal. This web-based training portal allows Indiana families to identify and develop leadership skills in their areas of interest so that Indiana families are empowered to lead, advocate and engage as partners in their child's lives and the systems that serve their children. This leadership development program is brought to you through collaboration between the Health Services, Family Voices Indiana and Riley Child Development Center, along with the support of over 20 community partner agencies. This training format allows you to work through the leadership development exercises at your own pace. We know you will gain valuable insights into yourself as a leader by completing the training modules. To get started, you will spend some time exploring your leadership qualities. Your first step is to complete a leadership self assessment, so just have a seat on the bench to get started! Parents As Leaders ©2012, Family Voices of Indiana adopts with permission from the University of Vermont and PACER Center ©2008

INDIANA Supporting Families Our most common call is from families getting a new diagnosis. We help them: With their #1 priority (often respite or insurance) and prioritize other needs Apply for programs Connect with support Find reliable information Their child is the same child s/he was before the diagnosis; we just have new ways to support the child

INDIANA Systems and Services We help families with understanding and applying for several state and federal programs: First Steps Medicaid CSCHS Medicaid Waivers SSI Vocational Rehabilitation

INDIANA Where to Find Us

INDIANA Stay Connected Family Voices Indiana or Voces de Familia de Indiana on Facebook Pinterest Text messaging in English and Spanish