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Living with IPF: An Educational Seminar May 4, 2002 Mount Sinai Hospital Hosted By: The Coalition for Pulmonary Fibrosis

CPF Board of Directors Marvin I. Schwarz, MD; Univ. Colorado Health Sciences Center Gregory Tino, MD; Univ. Pennsylvania Medical Center Talmadge E. King, Jr., MD; UCSF June Richmond; Founder, Pulmonary Fibrosis Association Celeste Belyea, RN, RRT; Editor, The Pulmonary Paper Teresa Barnes; Director, Public Relations, HealtheTech “The need for IPF education and awareness initiatives for patients and healthcare professionals has never been greater.” -Marvin Schwarz, MD, CPF Chair

CPF Objectives Seed awareness and educational programs at the community level Improve physician detection, diagnosis and treatment of IPF Foster dialogue in medical and patient communities around emerging therapies, treatments and resources Encourage new and ongoing research to ultimately lead to a cure

Panel Presenters : Alvin S. Teirstein, MD; Professor, Medicine; Director of Vivian Richenthal Institute of Pulmonary & Critical Care Medicine, Mount Sinai School of Medicine Maria L. Padilla, MD, Associate Professor, Pulmonary & Critical Medicine; Medical Director of Interstitial Lung Disease/Idiopathic Pulmonary Fibrosis Program, Mount Sinai School of Medicine Anousheh Behnegar, MD- Clinical Research Scientist/Patient Liaison, Mount Sinai School of Medicine Paul Noble, MD- Chief of Pulmonary Section; VA Connecticut Health Care System: Associate Professor of Medicine, Yale University School of Medicine; CPF Scientific Advisory Board member Deirdre Roney- Mary D. Harris Memorial Foundation Elizabeth Brauchler & Jack Bienenfeld, IPF Patients

Session I: Presentations of Current IPF Landscape– A Physician’s Perspective–Moderated by Maria Padilla, MD Awareness in Physician Community: Complications in Diagnosis and Understanding– Alvin Teirstein, MD Standards of Care & Ongoing IPF Research– Paul Noble, MD Lung Transplantation: When, Why and How– Maria Padilla, MD Questions & Answers

10:55 AM Break (10 minutes) Session II: Presentations on IPF Management – A Patient’s Perspective – Moderated by Anousheh Behnegar, MD IPF Life Management Issues – Dr. Behnegar Finding Emotional Strength When Living with IPF- Elizabeth Brauchler & Jack Bienenfeld The Role of the Caregiver & Family– Deirdre Roney