"The Strategic Planning for Autism in Europe: Past, Present and Perspectives". NUI Galway, Ireland, January " The Autism Spectrum Disorders research in Ireland".

"The Strategic Planning for Autism in Europe: Past, Present and Perspectives". What is eapha ? eapha is the European Autism Public Health Alliance of stakeholders working to create a European public health plan for autism. Vision eapha aims to transform the lives of persons with autism, their families and carers by providing a plan of action and an ongoing forum for parents’ organisations, academic institutions and public health agencies to share knowledge, experience and skills and to promote advocacy for the needs of people with autism. Mission eapha’s mission is to design and promote a public health planning framework in order to achieve the long term vision of transforming the lives of persons with autism, their families and carers in Europe.

"The Strategic Planning for Autism in Europe: Past, Present and Perspectives". ASDs as common conditions: Better identification and expanded definition or a true increase? Creates great concern about causes Research takes time and money – families are dealing with ASDs now! Increases in people needing services strains already taxed educational and service systems special education costs or residential care cost Lifetime support usually needed Need for family support systems Need for professional training and resources Impact on Society

"The Strategic Planning for Autism in Europe: Past, Present and Perspectives". How much Autism is there? CDC reported 1:110 children at 8 years old European population 2010= European estimated ASD rate= Affected population 5%= 25,000,000 Population size Belgium & Netherland Social Mortality Rate Indicator?

European Autism Action 2020: A Strategic Public Health Plan 60% Co-financed by DG SANCO European Commission Programme of Community Action in the Field of Public Health ( ) Duration: 34 months Total Cost: € 796, Started January 2006 Ending October 2008 European Autism Information System EAIS-Project

First Public Health program (2003 – 2008) European Autism Information System (EAIS project) main results: eapha (European Parliament October 2007 EAA ) European Protocol for Autism Spectrum Disorder Prevalence (EPAP) Protocol for estimating the economic impact of ASD Harmonized Manual for early detection on ASD European population based surveillance on ASD Distance learning platform proposal European Autism Action 2020: A Strategic Public Health Plan

60% Co-financed by EAHC Programme of Community Action in the Field of Public Health ( ) Duration: 27 months Total Cost: € 547, Started January 2008 Ending March 2010 European Nework of Surveillance on risk factors for Autism and Cerebral Palsy ENSACP

European Autism Action 2020: A Strategic Public Health Plan Second Public Health program (2008 – 2013) European Network for Surveillance of risk factor on Autism and Cerebral Palsy (ENSACP) Project main results: Literature review on perinatal risk factors on ASD and CP Literature review on biomarkers for ASD and CP Manual for harmonization of perinatal risk factors on ASD and CP Manual for harmonization of biomarkers on ASD and CP Protocols for analytical studies on ASD and CP

"The Strategic Planning for Autism in Europe: Past, Present and Perspectives". Consultation Process 3rd Panel of Experts Meeting Sub-regional meetings (Budapest, Palma de Mallorca) Online process European Autism Action 2020 (EAA2020) Dublin on 29th November.

"The Strategic Planning for Autism in Europe: Past, Present and Perspectives". COUNTRYFACT France  Packing (wet sheets from refrigerator)  Predominance of psychoanalytical model (confusion in diagnosis, mistrusting attitude toward parents, inefficient costly therapeutic measures, no progress) Croatia  Early intervention programmes started only 4 years ago  Only small number of people with ASD are integrated in regular schools with support  Some people with ASD are in institutions for people with MR  Only residential care for 12 adults in the whole country (parent’s association created)  People are still in schools after the age of 21 years because there is no adult care  Autism doesn’t exist in the legislative Ministry of Health (only in Education)

"The Strategic Planning for Autism in Europe: Past, Present and Perspectives". Estonia No ADOS-G Only since 2006, special support to ASD children in education and only in larger cities No manuals on teaching children with Autism Slovenia First Centre for Autism in 2005 (parents received no support at that time) Latvia First diagnosis in 2006 (before then only MR, Schizophrenia) No special program for ASD in special schools, not well categorized in schools yet (mental delay group). No integration. Only for the last 3 years drugs have ceased to be the main treatment for ASD No services for Adults Diagnosis at 3-4 years

"The Strategic Planning for Autism in Europe: Past, Present and Perspectives".

Public health interpretation  standard of care on ASD in Europe;  global economic crisis;  political commitment. "The Strategic Planning for Autism in Europe: Past, Present and Perspectives"

"The Strategic Planning for Autism in Europe: Past, Present and Perspectives". Thank you! NUI Galway, Ireland, January " The Autism Spectrum Disorders research in Ireland".