1. Autistic Spectrum Disorder Strategic Action Plan 2008 – 2011: National Update David Poole ASD Regional Support Team Manager 6 th May 2010

2. Regional Support Team - Background The Team comprises 3 Regional Support Officer’s and a Co-ordinator The Team comprises 3 Regional Support Officer’s and a Co-ordinator Based within the Social Services Improvement Agency within the WLGA Based within the Social Services Improvement Agency within the WLGA Operational since June 2009 and funded until March 2011 Operational since June 2009 and funded until March 2011 Offers considerable experience in ASD service development and delivery… Offers considerable experience in ASD service development and delivery… …as well as organisational development expertise …as well as organisational development expertise

3. Regional Support Team - Objectives Advise local ASD steering groups regarding implementation of their action plans Advise local ASD steering groups regarding implementation of their action plans Maintain professional networks, regionally and nationally, in order to share effective practice Maintain professional networks, regionally and nationally, in order to share effective practice Support communication across stakeholders regarding progress in delivering the Strategy Support communication across stakeholders regarding progress in delivering the Strategy Enable users of ASD services to participate in local decision-making which affects them Enable users of ASD services to participate in local decision-making which affects them

4. ASD SAP Accountabilities ASD National Strategy Project Board SRO: Director, Children ’ s Health and Social Care Welsh Assembly Government ASD National Strategy Delivery Plan SRO: ASD SAP Implementation Manager Welsh Assembly Government ASD Regional Support Team Welsh Assembly Government Local ASD Services

5. ASD Strategic Action Plan - Objectives Map prevalence of those with ASD, together with their needs and existing services, across Wales Map prevalence of those with ASD, together with their needs and existing services, across Wales Ensure there is commissioning of services for those with ASD, their families and carers Ensure there is commissioning of services for those with ASD, their families and carers Enhance “transitions” between services so that those with ASD are supported at key stages Enhance “transitions” between services so that those with ASD are supported at key stages Raise awareness nationally regarding ASD issues Raise awareness nationally regarding ASD issues Develop service framework for adults with ASD Develop service framework for adults with ASD

6. Map prevalence of those with ASD National Baseline Survey undertaken National Baseline Survey undertaken 18 of 22 areas returned their survey for analysis 18 of 22 areas returned their survey for analysis Revealed variation in estimated prevalence across the 22 local areas (WHO 60/10000) Revealed variation in estimated prevalence across the 22 local areas (WHO 60/10000) Identified gaps in adults diagnostic provision Identified gaps in adults diagnostic provision

7. Commissioning ASD Services Many areas have established frameworks for commissioning ASD services Many areas have established frameworks for commissioning ASD services Task now is, in light of ASD Strategy, to de- commission / design new ASD services Task now is, in light of ASD Strategy, to de- commission / design new ASD services Some area ASD action plans have actions to de- commission existing / commission new ASD services Some area ASD action plans have actions to de- commission existing / commission new ASD services

8. Transitions between Services Ongoing work in WAG on developing Transitions Framework to support local work in this area Ongoing work in WAG on developing Transitions Framework to support local work in this area Most areas have existing Transitions Protocols Most areas have existing Transitions Protocols The task now is to amend these where appropriate take account of developments within local ASD services The task now is to amend these where appropriate take account of developments within local ASD services

9. Develop Adults Service Framework 1 WAG Adults Task and Finish Group reported to Deputy Minister end of 2009 WAG Adults Task and Finish Group reported to Deputy Minister end of 2009 Deputy Minister accepted the Groups recommendations. These were: Deputy Minister accepted the Groups recommendations. These were: Creation of adult diagnostic framework and post- diagnosis counselling service (£750,000: 3 yrs) Creation of adult diagnostic framework and post- diagnosis counselling service (£750,000: 3 yrs) Establishment of regional adult community monitoring / support service (£740,000: 3 yrs) Establishment of regional adult community monitoring / support service (£740,000: 3 yrs)

10. Develop Adults Service Framework 2 Research undertaken by Bangor / Cardiff / Glamorgan universities regarding needs of older people with ASD recently reported Research undertaken by Bangor / Cardiff / Glamorgan universities regarding needs of older people with ASD recently reported Adults Conference in June 2010 to consider research findings and the implications for practice in working with older people Adults Conference in June 2010 to consider research findings and the implications for practice in working with older people

11. Raise awareness of ASD issues WAG groups developing awareness-raising materials for key audiences WAG groups developing awareness-raising materials for key audiences “ASD Matters” (HOWIS) website will provide updates regarding progress in delivering strategy “ASD Matters” (HOWIS) website will provide updates regarding progress in delivering strategy “Connections” (SSIA) website supports effective practice exchange for practitioners “Connections” (SSIA) website supports effective practice exchange for practitioners www.ssiacymru.org.uk/asd www.ssiacymru.org.uk/asd

12. Research into Autism in Wales Establishment of Chair in Autism post at Cardiff University (Professor Sue Leekam) Establishment of Chair in Autism post at Cardiff University (Professor Sue Leekam) Evaluation of Children’s Diagnostic Services and Interventions across Wales Evaluation of Children’s Diagnostic Services and Interventions across Wales Pilot of electronic register for children with ASD in Betsi Cadwaladr University Health Board area (Cardiff and Bangor universities) Pilot of electronic register for children with ASD in Betsi Cadwaladr University Health Board area (Cardiff and Bangor universities)

13. Any Questions?