Social Care and Health Intelligence Going Forward.

2 The context For Adult Social Care The vision for adult social care is laid out in Putting People First, a document that spells out the direction for social care for the next decade and beyond. At its heart are four main themes : Universal Services Access to the right services at the right time Information and advice available to all Preventive Services Promoting longer-term independence without the need for interventions Enablement and assistive technology Choice and Control for people receiving services and their carers Shaping services to meet people’s needs Building social capital Recognising the needs of carers Community cohesion and social inclusion

What does this mean for the Information Agenda? Providing information to the general public to promote healthier lifestyle choices, Providing information for service users to inform self- directed support, advocacy and brokerage, Sharing information between Local Authorities to enable them to benchmark progress and manage the transition, Sharing information outside LAs – with PCT’s, with other partner organisations eg Housing Agencies, with regulators and central Government, Transforming the performance frameworks to better match the new priorities and make best use of the data held by LA’s/PCT’s

Where are we now in Social Care? Only a small percentage of the social care information collected by LAs is shared at regional or national level – and the notion persists that social care is ‘data poor’ LAs use different systems and providers to collect and hold information – speaking the same language but in different dialects? No structured or standard way in which information is collected and stored Many gaps in the information needs of different organisations Information agenda out of alignment with requirements of Personalisation? Imbalance between local and national priorities in performance monitoring Numerous responsible bodies/organisations involved in different aspects of information – new Strategic Information Programme Board for ASC

Where must we be in 2011 – at the latest? Accessible public information resources Structured care records accessible by the user Consistent recording of data for assessments, commissioning and case management Information standards for data recording and storage to enable interoperability and sharing across social care and health Operational sharing of performance data between LAs and the centre via a data warehouse, facilitating benchmarking and informing national policy Performance frameworks and national indicators better aligned to shared priorities and supporting policy direction

Taking this forward…. In developing a new, coherent strategy for adult social care and health information, we need to consider how best to: make better use of the information held by LAs – facilitate data sharing for benchmarking locally and nationally establish clear, common standards to underpin information systems – make the same thing mean the same to everyone be clear about the requirements of the centre – for policy, assessment and regulation align the different performance and assessment frameworks with each other and with the transformation agenda reduce reporting burdens – collect once and use numerous times (COUNT) Maintaining the status quo is not an option!

Standards : A Pre-requisite Interoperability Developing them & implementing them Content & technical The Information Standards Board for Health and Social Care The NHS Number as first exemplar

The information core Common Assessment Framework (CAF) Social care/NHS record structures Data dictionary – for Social Care and NHS Service user access to care record Mapping flows across organisations

THE NATIONAL ADULT SOCIAL CARE INTELLIGENCE SERVICE. (NASCIS ) The First Key Step Proof of concept Project Board established and Project Manager appointed /continued

NASCIS (continued) 8 Workstreams Single repository/Data from other sources/Analytics/Governance/Library/ Customer Service model/ Back office/End stage road-map To launch July 2009 (Single repository, Analytics, Library)

Still outstanding…. Needs of service users – inform decision-making, measure outcomes and effectiveness Wider perspective on information sharing – non- personal and personal data (a strategic review of this is underway) Across the board links with NHS – health and social care interfaces, Darzi pathways Managing the interface with childrens’ services – transition Information needs to support commissioning, JSNA

Why will this be different? Political agenda Citizens’ expectations DH policy drivers (Information Strategy Board) Chief Information Officer for DH Informatics across health and social care now a priority