Caring for the Caregiver What does that mean? Joseph O. Vigil, Ph.D., LRC Rehabilitation Psychologist.

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Presentation transcript:

Caring for the Caregiver What does that mean? Joseph O. Vigil, Ph.D., LRC Rehabilitation Psychologist

classic Late Infantile Neuronal Ceroid Lipofuscinosis (cLINCL) (also referred to as classic Late Infantile Batten Disease)

Stress AARRRGGGHHH!!!!

Physiology Central Nervous System Peripheral Nervous System - Somatic (Voluntary) Nervous System - Autonomic Nervous System - Sympathetic - Parasympathetic

Sympathetic Nervous System Heart Rate Increases Pupils Dilate Blood Vessels Constrict Increase Blood Volume to Striated Muscle Platelets Get Stickier Increase Fat in Bloodstream GI Tract Shuts Down

Everyday Events? Caring for special needs child(ren) Caring for other child(ren) Money issues Physical and mental health concerns Family issues Job stressors Traffic ??

Birthday Parties!!! (AARRRGGGHHH!!!!)

Life’s little bumps and bruises!! (OOOOOOHHHHHHHH!!!)

Trips to other countries! (AAAAAHHHHHHH!!!!!!!!)

Other Stressful Things **Any Adjustment**DivorceMarital Separation RetirementDeath in FamilyPersonal Injury or Illness MarriageDeath of SpouseFired/Employment Separation PregnancySexual DifficultiesDeath of Close Friend Gain New Family MemberIllness in FamilyChronic Med Condition in Family Changing JobsSpouse’s JobChange in Work Hours Business ReadjustmentTrouble with BossChange in Work Conditions Change in ResidenceChanging SchoolChange in Recreation Changing Churches**Moving**Changes in Social Outlets Learning New CommunityHome RepairsAttending to Home Maintenance Changes in Sleep PatternsIn-home VisitorsBeginning or Ending Schooling Financial MattersForeclosureChange of Financial State **Vacation** **Christmas** **Outstanding Personal Achievement**

Myths About Stress Stress is always bad for you. No symptoms mean no stress. It’s safe to ignore minor symptoms.

What do we do when stressed? Eat Drink Alcohol Smoke

Physical Consequences of Continued Stress Your body stays tense if you don’t use the “fight or flight” energy your body has ready to expend Hypertension Headaches Body aches Impair immune system

Emotional Consequences of Continued Stress Less able to handle other stressors May be moody or “short” with others, especially those with whom we feel most comfortable Irritability Depressive symptoms Chronic anxiety or nervousness

Emotional Consequences (cont.)

Behavioral Consequences of Continued Stress Can lower self-control Overeating Anger outbursts Sleeping problems Fatigue Inability to slow down and relax

Behavioral Consequences (cont.)

Cognitive Consequences of Continued Stress Forgetfulness Poor attention span or concentration problems Poor judgment Lower work productivity secondary to the above

Strategies for Dealing with Stress  Exercise!!!!  Take care of yourself  Be around others who make you feel good, while avoiding those who always bring you down  Make time for fun  Accept help from others!!!!

Strategies (continued)  Help others  Renew spiritual values  Learn relaxation techniques  Don’t put unnecessary pressure on yourself  Set reasonable goals  Laugh

Strategies (continued)  Live one day at a time  Tell the truth – lies are stressful  Don’t procrastinate  TALK about your problems