NTR Blood/Marrow Transplant Registry. Intro ► Malaysian Bone Marrow Transplant Recipient Registry was created on 16 February 1998 ► Paediatrics Department.

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Presentation transcript:

NTR Blood/Marrow Transplant Registry

Intro ► Malaysian Bone Marrow Transplant Recipient Registry was created on 16 February 1998 ► Paediatrics Department UH Paediatrics Insitute HKL Dept of Medicine UH (Haematology division) Subang Jaya Medical Centre Hospital Kuala Lumpur (Haematology Division) Hospital UKM

Intro ► Merged existing databases ► Decided to record and maintain transplant data online ► 32 fields ► 578 records to date

NTR Update ► Take opportunity to overhaul database – add/delete/modify fields ► Combined the “common” and BMT data forms into one – for reporting at day 30 post-transplantation ► Main Reporting Form Fields Fields ► Update (ad hoc events) Form Fields Fields

NTR requirements ► Entirely online submission of data via Web based entry ► Use of drop down boxes, check boxes, radio buttons etc to speed up entry ► SDPs must be able to access data submitted for editing ► SDPs must be able to access real-time aggregate data for the HSC Transplant registry:

NTR requirements ► Totals (by centre, diagnosis, type of transplant, transplant source, sex, ethnic group, age ranges) and cross-tabs ► Totals by year of transplant (real time graphs) ► Real-time or periodic (e.g. quarterly) KM survival analyses (total, by disease, DFS/RFS)

NTR fast track ► Getting started ASAP ► Commence new registry ASAP utilizing new database structure ► Begin entering new data online ASAP ► Update existing data before merging into new data (need to liaise with individual SDPs)