LAS ACADEMY THE ROLE OF PATIENT AND PUBLIC INVOLVEMENT IN PATIENT CARE Malcolm Alexander Chair, Patients Forum for the LAS

Who am I? Malcolm Alexander – Chair of the Patients’ Forum/LAS Board Member Healthwatch Hackney Member of Patient and Public Involvement Panel

Why is PPI important?

YOUR EXPERIENCES Have you experienced services that could be improved? Have you taken action? Have you positive empowering experiences of getting service improved? Is the patients’ voice too strong or too weak?

ARNSTEIN’S LADDER

Patients’ Forum LAS Established in 2003 to create a public voice in LAS Meets monthly in public to discuss effectiveness of LAS Giving patients and the public a voice in the LAS Questions and engages LAS officers about service quality and access Good relationship with senior LAS staff who provide informative updates on LAS developments and vision Attend LAS Board, committees and groups Influences policy and practice of LAS

PATIENTS AND PUBLIC INVOLVEMENT PANEL PPIP Offer a patient and/or public perspective on the overall aims and objectives of the Paramedic Programme Exchange ideas, offer assistance with internal assessment and recruitment to the Programme recruitment of volunteers to assist with Programme delivery and development for individual semesters Academy PPIP members: Paul Bates (Programme Manager), Dominic Browne (Programme Lead) and Angela Hilliard (Programme Lead) Forum members:Polly Healy, Janet Marriott, Malcolm Alexander

Statutory Duty to Involve and Consult NHS ENGLAND We must put every citizen and patient voice absolutely at the heart of every decision we take in purchasing, commissioning and providing services. National Director of Patients and Information - NHS England   DEPARTMENT OF HEALTH Users must be involved not only in the consideration of proposals to change services, but also in the development of any proposal that will change the manner in which a health service is provided. Real Involvement (DH 2008) NHS CONSTITUTION (2013) PLEDGES AND PROMISES You have the right to be involved, directly or through representatives, in the planning of healthcare services commissioned by NHS bodies, the development and consideration of proposals for changes in the way those services are provided, and in decisions to be made affecting the operation of those services.

LAS COMMITMENT TO PATIENT INVOLVEMENT THE QUALITY ACCOUNT Patients will have a stronger voice than ever before The patient is at the centre of everything that we do We will listen to staff and patients to determine priorities Patient/carer involvement in all our improvement work Integral to all programmes must be robust patient and staff involvement We need to listen to our patients, their families and carers, and respond to their feedback Our goal being to have patient involvement in all service redesign programmes and a patient involvement framework developed to apply this goal consistently We need to widen and increase our public involvement in both the development of these new services and monitoring of their success.

Examples of Forum Involvement Sickle Cell Diabetes Ambulance Queuing Mental Health Care Dementia care Stroke diagnosis  Active involvement in End of Life Care developments Complaints investigations Patient Specific Protocols Equality and Inclusion Joining interviews for Midwifery and End of Life Care staff Creating engagement between the LAS and patients Supporting the work of the LAS Academy

Case study one STROKE CARE R is a young woman who suffered a stroke while at work causing her speech and mobility problems Her partner C was dissatisfied with the care R received and complained to the LAS and Ombudsman with a positive outcome C now helps the LAS with staff education and training

Case study Two Sickle Cell Care and Treatment PUBLIC MEETING ATTENDED BY 30 PEOPLE WITH SICKLE CELL AND THEIR FAMILIES DESCRIPTION OF EXPERIENCES WITH THE LAS - MEDICAL DIRECTOR LISTENED AND RESPONDED CSR UPDATED AND IMPROVED TO ENHANCE TRAINING THREE CARU REPORTS SHOWED SIGNIFICANT IMPROVEMENT IN EXPERIENCE OF CARE MEETING WITH THE LAS BOARD + PRIORITIES FILMING TODAY AT SICKLE CELL SUMMER CAMP

Cooperation and Co-production Collaboration between Healthwatch and the Patients’ Forum Working with the LAS Commissioners Reporting to the Care Quality Commission London Assembly review of the LAS

Power: A Radical View. LUKES THREE DIMENSIONS OF POWER Decision-making power is the most visual and public form of power. This "face" of power focuses on policy preferences revealed through social and political action. Hidden power sets the agenda in organisations and debates and makes certain issues acceptable or unacceptable for discussion in "legitimate" public forums. It lets you think you believe are part of decision-making. Ideological power influences people's wishes and thoughts, even making them want things opposed to their own self-interest (e.g., causing women to support a patriarchal society).

THE END THANKYOU MALCOLM ALEXANDER PATIENTSFORUMLAS@AOL.COM WWW.PATIENTSFORUMLAS.NET 07817505193