1. Ensuring the Public are at the Heart of Knowledge Creation and Mobilisation

2. The guiding principles of prudent healthcare

3. Health and Care Research Wales
National, multi-faceted organisation
Infrastructure
Funding schemes
Funded and overseen by Welsh Government
Supports translational research with a particular focus on applied and public health research
prevention, detection and diagnosis of disease
development and evaluation of interventions
provision of health and social care services
implementation of research findings into practice

4. Vision
For Wales to be internationally recognised for its excellent health and social care research that has a positive impact on the health, wellbeing and prosperity of the people in Wales

6. Themes to focus engagement and involvement activity
Health & Care Research Wales Strategic Aim:
Ensure that public involvement and engagement is central to what we do and is visible in all elements of it
Objectives:
To ensure the public are central to health and social care research in Wales
To put the citizen at the heart of creating new knowledge and putting new knowledge into practice
It is our vision to create a culture whereby all health and social care research that takes place in Wales happens ‘with the public, for the public’
Guiding vision & principles for public involvement and engagement in research in Wales
Themes to focus engagement and involvement activity
Raising Awareness
Public’s role in research prioritisation & agenda setting
Embedding public involvement & changing culture
Enhancing the evidence base
Effective central support for involvement
It is our vision that all health and social care research that takes place in Wales happens ‘with the public, for the public’. (want we want to achieve)
To help drive and achieve this ambition, a plan is required that operationalizes and draws together all of the proposed activities, actions and solutions that will enable us to move to where we want to be. Focusing on the public, researchers and health professionals, our programme of activity is centred on five themes:
Public awareness 
Public prioritisation and agenda setting
Cultural change 
Central support 
Enhancing the evidence base
Within each of these themes, activities and actions are proposed that comprise the things that we think need to happen and the things that we will put in place to achieve our long-term, overall ambitions for public involvement and engagement in Wales. (how we will achieve this)

7. The Importance of PIE
Improves relevance of research to people’s needs and concerns
Provides a different perspective
Improves language and content of information and research measures
Ensures methods proposed are acceptable and sensitive to potential participants
Helps identify the best research topics
Increases quality
Increases participation

8. Public Facing Performance Indicators
The number of events held across Health and Care Research Wales that are open to the public to attend
Number of members of the Welsh population recruited to Healthwise Wales to help prioritise, influence and shape health and social care research in Wales
The number of members of the public who have signed up to the Health and Care Research Wales Involving People Network
The number of public opportunities offered across Health and Care Research Wales

9. Delivery Management Structure
Health and Care Research Wales Board
Public R&D Delivery Board
NHS R&D Delivery Board
Social Care R&D Delivery Board
Elements of Health and Care Research Wales Infrastructure (e.g. external steering groups for centres and units, support centre implementation group)

10. Centres and Units Centres Units Ageing and Dementia Cancer
Mental Health
Population Health and Wellbeing
Primary Care and Emergency Care
Units
BRAIN
Diabetes
Kidney

11. Impact of Research
Cognitive stimulation for people with mild to moderate dementia
Developed at Bangor University in the late 1990’s
Effective in maintaining language, perception, thinking, reasoning, remembering and quality of life
Has assisted thousands of people with dementia and their carers globally
NICE states that Cognitive Stimulation Therapy or CST Groups should be made available to all people with mild to moderate dementia

12. HealthWise Wales
Actively engages and encourages the public to be informed and involved in research
Opportunities for the public to identify research priorities, get involved in designing studies and provide data for analysis
Database of potential participants who can be contacted to take part in other research studies
Cohort with regular follow up
So, HealthWise Wales is a dedicated research programme for population health that will have a strong focus on public engagement and what it means to take part in a research study.
There will be opportunities for the public to set the research priorities, get involved in carrying out the research, and provide data for analysis.
Participants will be followed up at regular intervals to capture information on exposures and outcomes that are not available from routine sources, and also contacted to take part in studies that are relevant to them.
Link to the SAIL database
Our research program will have three areas of focus.
to research methods for increasing public engagement in health and social care research.
to get a better understanding of the multiple factors and epi-genetic mechanisms of influence on health and wellbeing, and
to develop and test interventions to improve health and wellbeing in individuals, families and communities with a focus on the impact of bundles of interventions.

13. HealthWise Wales 29 February 2016 launch
Sign-up via website or telephone
National campaign to promote participation
Range of public engagement events planned
Aims to recruit 260,000 people over 5 years
Over 4,000 participants joined to date
So, HealthWise Wales is a dedicated research programme for population health that will have a strong focus on public engagement and what it means to take part in a research study.
There will be opportunities for the public to set the research priorities, get involved in carrying out the research, and provide data for analysis.
Participants will be followed up at regular intervals to capture information on exposures and outcomes that are not available from routine sources, and also contacted to take part in studies that are relevant to them.
Link to the SAIL database
Our research program will have three areas of focus.
to research methods for increasing public engagement in health and social care research.
to get a better understanding of the multiple factors and epi-genetic mechanisms of influence on health and wellbeing, and
to develop and test interventions to improve health and wellbeing in individuals, families and communities with a focus on the impact of bundles of interventions.

14. Involving People Network
Co-ordinated by the Health and Care Research Wales Support Centre’s Public Involvement and Engagement Team
Members of the public from across Wales who are interested in working with researchers to improve treatments and care
Network members have access to:
the latest opportunities to get involved in research in Wales
a wide range of training
support with expenses and payment for time
regular newsletters and bulletins
support and guidance 

15. www.healthandcareresearch.gov.wales @ResearchWales