OR What did they really think? Summarized by Patricia K. Fisher, M.A., CCC/SLP/COM (certified orofacial myologist)

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Presentation transcript:

OR What did they really think? Summarized by Patricia K. Fisher, M.A., CCC/SLP/COM (certified orofacial myologist)

Parents attended programs while their children/teens participated in FFP activities. Issues such as motivation, expectations from treatment and impact of various responses to stuttering were discussed under the leadership of Donna Cooperman, Ph. D and Nina Reeves, Ph. D. Parents were able to ask questions of a teen panel led by Derek Daniels, Ph. D. or an adult panel led by Rod Gabel, Ph. D. SLPs from the community answered questions about treatment, insurance and qualifications for school treatment.

Parent/Guardian: Parents were asked the questions noted in black. Responses are printed in white. At FFP, what did you learn about stuttering? It is okay. We are not alone and there are resources. How special and unique you are as one who stutters Just to let it happen That it wont hold back my son or prevent him form succeeding A lot! Thank you!

learned that 1% of the population stutters learned how the stutterer can gain power or take back power from a bully by showing that insults havent hurt him/her. learned about the importance of reminding the child who stutters (CWS) of all the other things he is good at doing. Learned that my child and I need to have a frank conversation about setting realistic goals learned that people who stutter come in every age, race, gender and religion. learned that it is important to create a team of support not only for my child but also for myself. learned I am not alone.

strategies between children and parents, what they do is not about you, how to just be to listen The big 6 or 7 things NOT to say to a stutterer That home is the place to rest and thats why we see the worst of his stuttering Pausing, starting over and easy onsets.

New strategies for asking my child questions without making him feel on the spot or under pressure. I learned strategies for making my child feel more self-confident and how to handle bullies or mean peers. Let home be a place for your child to rest. Dont finish your childs sentences.

Watching my son tell jokes during lunch with open mic on Friday The parent groups. Educating the parents is so crucial! The featured speakers. The panel discussions. Hearing from other parents and how they handle certain speech situations, teasing/bullying, talking with teachers

Meeting other parents who are going through the same thing as I am. How informative – Excellent… just being with others who have sons with same/similar problems. Networking both kids and parents. Listening to others

Everyones great interactions, open dialogue between children, adults and clinicians The speakers, the genuine concern, the information. Knowing my son is getting something (tools) to help him go forward).