Prepared by Marnie Jones Physiotherapy Unit Head Port Kembla Hospital September 2012 Trinity Amputation and Prosthesis Experience Scale – Revised Early data at P&O Clinic

TAPES - R P Gallagher presented this survey at the ISPO conference in Sydney. Gallagher P & MacLachlan M 2000, Gallagher P, Franchignoni F, Giordano A, MacLachlan M 2010 The questionnaire is to be completed by the person with a prosthesis. Moderate correlation between the Amputation Body Image Scale (ABIS – R) and TAPES psychosocial adjustment subscale. Gallagher P et al MWT was a significant predictor of performance of ambulation in the community as measured by the TAPES Activity Restriction subscale. Parker et al 2010 To be used for improvement of our understanding of aspects of prosthesis use to develop better services.

Survey method Volunteer Amputee Peer Support Visitors (VAPS) conduct the survey to amputees attending Prosthetic Clinic at PKH. Data entry by Physiotherapist in Amputee Rehab. Intended project is to compare surveys completed at a prescription Clinic, then a second after they have received the prescribed change. To date, only the first phase results have been collected. Discussion for additions or corrections are welcome.

Results Number surveys n=26 Male (%)58 Completed the survey independently (%) 44 averageminmax Age Time since amputation (years) Time with any prosthesis Time with this prosthesis Hours wear prosthesis

Results TTATFAKDAOther Type Prosthesis (%) PVDDiabetesAccidentOther Amputation Result of from (%) Very poor 1poor2fair3good4Very good5 General Health34108 Physical Capabilities

General Adjustment subscale Stronglydisagree 1 Disagree 2 Agree 3 Stronglyagree 4 average I have adjusted to having a prosthesis As time goes by I accept my prosthesis more I feel that I have dealt successfully with this trauma in my life Although I have a prosthesis, my life is full I have gotten used to wearing a prosthesis

Social Adjustment subscale

Adjustment to limitation subscale

Average Adjustment Disagree

Activity Restriction scale Having a prosthesis limits me: Yes limited a lot 2 Limited a little 1 No not limited at all average Vigorous activities, running, lifting heavy objects, strenuous sports Climbing several flights of stairs Running for a bus Sport and recreation Climbing one flight of stairs Walking more than a mile Walking half a mile Walking 100 metres Working on hobbies Going to work

Average Activity Restriction Yes, a lot

Aesthetic Satisfaction with Prosthesis subscale Not satisfied1 satisfied2Very satisfied3 Colour of my prosthesis2166 Shape3175 Appearance4164

Functional Satisfaction with Prosthesis subscale …Of my prosthesis Not satisfied1 Satisfied 2Very satisfied3 Weight4175 Usefulness4139 Reliability1169 Fit8117 Comfort8135

Pain and Medical Problems % yesEpisodes/ week Duration each episode Range Residual limb pain minutes1 – 30 min Phantom limb pain minutes 15 sec – 60 min Medical problems 466 Continuous, varied, constant, 1-2 wks, 2 hrs, 15 min

Pain and Medical Problems Excruciating 5horrible4distressing3discomforting2 mild1 Residual pain - level Residual pain – interfere with life Phantom pain – level Phantom pain – interfere with life Medical problems – level 1432 Medical problems – interfere with life 13352

Pain Levels and Interferes with life excruciating mild

Discussion Need Power to complete ethics application Items with potential to change by effecting prescription Acquittal vs later follow-up Ideas to change program for greater adjustment