Learning disabilities and behaviour that challenges Service guidance How to use this slide set This slide set explains the key messages in NICE’s guideline on services for people with a learning disability and behaviour that challenges. It is an accessible version and can be used by anyone who wants to comment on this guideline. Slide 4 is a summary slide. From here you can explore different sections of the guideline using the hyperlinks on each coloured box. Each slide has a back button to return to the summary slide. Questions that facilitators could ask For each slide think about asking one or more of the following questions: What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say?

What is this guideline for? To help services support people and their families in the right way. To help services work better with each other. To make sure staff spot problems early and act fast if someone needs help. How to use this slide set This slide set explains the key messages in NICE’s guideline on services for people with a learning disability and behaviour that challenges. It is an accessible version and can be used by anyone who wants to comment on this guideline. Slide 4 is a summary slide. From here you can explore different sections of the guideline using the hyperlinks on each coloured box. Each slide has a back button to return to the summary slide. Questions that facilitators could ask For each slide think about asking one or more of the following questions: What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say?

What do you think? Questions that facilitators could ask NICE wants to know what you think about what this guideline says. How to use this slide set This slide set explains the key messages in NICE’s guideline on services for people with a learning disability and behaviour that challenges. It is an accessible version and can be used by anyone who wants to comment on this guideline. Slide 4 is a summary slide. From here you can explore different sections of the guideline using the hyperlinks on each coloured box. Each slide has a back button to return to the summary slide. Questions that facilitators could ask For each slide think about asking one or more of the following questions: What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say?

What the guideline covers 1. Making services better 5. Housing and everyday support Having one person in charge Providing the right support Asking what people think Choosing where to live Help to live a full life Respite care 2. Putting the person at the centre 6. Children and young people Choice and control Help to speak up Care and support plans A named worker Support for children and young people Specialist behaviour support Residential care 7. Staying in hospital 3. Families and carers Helping families support the person Supporting families Going to hospital only when needed Staying in touch Helping people go home quickly 4. Services in the community 8. Staff skills and training Getting the help you need How to use this slide set This slide set explains the key messages in NICE’s guideline on services for people with a learning disability and behaviour that challenges. It is an accessible version and can be used by anyone who wants to comment on this guideline. Slide 4 is a summary slide. From here you can explore different sections of the guideline using the hyperlinks on each coloured box. Each slide has a back button to return to the summary slide. Questions that facilitators could ask For each slide think about asking one or more of the following questions: What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Specialist help for behaviour that challenges Help in a crisis Staff skills Staff training

Having one person in charge One person should be in charge of all services for adults and children with a learning disability. This person is the lead commissioner. They should have worked with people with learning disabilities and behaviour that challenges before. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendation 1.1.1.

Providing the right support The lead commissioner should find out what support people need in their local area. Make a plan for all the support people need now and in the future. Work together with areas nearby to pay for all the health and social care support that people need. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendations 1.1.2, 1.1.3, 1.1.5.

Asking what people think Ask people and their family and carers what they think about the services they use. Involve them in looking at how well services work. Talk to them about how to make services better. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendations 1.1.8 to 1.1.12

Choice and control Get to know people and what they want. Support them to live an active and independent life. Involve people in decisions about their care and support. Involve family and carers. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendations 1.2.1 to 1.2.5

Tell them the different ways this money can be used. Give people control over how money for their care and support is spent. Tell them the different ways this money can be used. Help them decide how to spend it. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendations 1.2.16 and 1.2.17

Help to speak up Support people to communicate in the way they prefer. Give them clear information that they can understand. Provide an independent advocate who has worked with people with a learning disability before. An advocate helps people speak up. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendations 1.2.6 and 1.2.8

Care and support plans Write a care and support plan with the person. Involve everyone who supports them. Plan how to deal with problems early to stop them turning into a crisis later. Talk about this plan often, and if something new happens. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendations 1.2.10, 1.2.11 and 1.2.15

A named worker Give each person a named worker. The named worker should make sure everyone works together to do what is agreed in the plan. They should tell families about local support that could help them. Plan Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendations 1.2.9, 1.2.10, 1.3.5

Helping families support the person Give families and carers training and information to help them care for the person. Make sure there is specialist support if they need it. This could be things like behaviour support or speech therapy. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendations 1.3.1 and 1.3.2

Supporting families Give families and carers their own advice and support. Tell families what help there is and how to get it. This could include things like support from other families or help by phone. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendation 1.3.3

Getting the help you need Make sure people can get all the support they need from local services. This includes specialist support. Staff providing support should work together, even if they are in a different team. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendations 1.4.1 to 1.4.3

Specialist help for behaviour that challenges People should be able to get help with behaviour that challenges. They should not need to move house or go to hospital for this help. People should get this help when it is needed and never wait more than 18 weeks for it. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendations 1.4.7 and 1.4.8

Help in a crisis Plan ahead what to do in a crisis. If people are in crisis they should be given help in their own home. Give them a telephone number that they or their family can ring. Make a plan for when crisis help is no longer needed. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendations 1.2.11, 1.4.9 and 1.4.10

Choosing where to live Give people choice about where they live and who they live with. Make sure they can live alone with support if it is safe for them and they would like to. If they share a house it should be with no more than 3 other people who need support. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendations 1.5.1, 1.5.4 and 1.5.5

Try not to move people to a new area if they do not want to move. Keep people in the community they know and close to family and friends if they want this. Try not to move people to a new area if they do not want to move. If they have to move it should be for the shortest time possible. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendations 1.5.2, 1.5.6 and 1.5.7

Help to live a full life Help people to stay well and to do things they enjoy, like hobbies or sport. Support them to take part in activities in their community. Help them to meet new people and make friends. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendation 1.5.8

Respite care Give families a choice of respite care close to home. Respite means a short break away or extra help at home. Offer people respite care based on what they like, and what they need. Help people plan ahead for respite care for when they need it. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: Section 1.7

Support for children and young people Children and young people should have an education, health and care plan. Staff in different services should work together to support each child or young person. They should do what is agreed in the plan. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendation 1.6.3

If a child or young person’s behaviour gets worse have a meeting with their family and staff who support them. Look at the plan together. Talk about whether they need more support. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendation 1.6.4

Specialist behaviour support Provide specialist behaviour support in the local area. Make sure staff have worked with children and young people with a learning disability and behaviour that challenges before. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendations 1.6.1 and 1.6.2

Residential care Only find a residential care placement if a child or young person is not safe to stay at home. Think about all other options first. Only find them a placement if there is no other choice. Find a placement near their family. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendations 1.6.5, 1.6.6 and 1.6.7

Help the child or young person to stay in touch with their family. Start planning straightaway for when they will leave their placement. Talk about what is agreed in this plan at least every 6 months. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendations 1.6.7 to 1.6.10

Going to hospital only when needed Only admit someone to hospital if they are not safe to stay at home. Think about all the other options first. Only admit them to hospital if there is no other choice. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendations 1.8.1 and 1.8.2

Staying in touch Questions that facilitators could ask If someone needs to go into hospital choose a hospital or unit close to their home. Their named worker should help them stay in touch with family and friends and support staff at home. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendations 1.8.5 and 1.8.6

Helping people go home quickly People should stay in hospital for the shortest time possible. Start planning when they will go home as soon as they go into hospital. Talk about what is agreed in this plan at least every 3 months. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendations 1.8.9 and 1.8.10

Staff skills Staff should have the right skills to support the person. They should get on well with the person they support. They should respect the person and what is important to them. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendation 1.9.1

Staff training Find out what matters most to people and their families and carers. Use this information to train and find new staff. Make sure staff understand behaviour that challenges. Questions that facilitators could ask What do you think about the recommendations? How could they make a difference in your life? How could we make these recommendations better? Can you tell us if there is anything else you would like these recommendations to say? Guideline reference: recommendations 1.9.2, 1.9.3, 1.9.6

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