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Genesis of ACT on Alzheimer’s 2009 Legislative Mandate for Alzheimer’s Disease Working Group (ADWG) Legislative Report Filed in January 2011 ACT on Alzheimer’s is second generation of work focusing on implementation 2

What is ACT on Alzheimer’s statewide collaborative voluntary 50+ ORGANIZATIONS 150+ INDIVIDUALS Impacts of Alzheimer’s BUDGETARYSOCIAL PERSONAL 3

sustain caregivers raise awareness & reduce stigma Goals of ACT on Alzheimer’s identify & invest in promising approaches increase detection & improve care equip communities 4

Identify and Invest in Promising Approaches Synthesize current and future direct and indirect costs of Alzheimer’s and related dementias Model promising approaches to control costs associated with Alzheimer’s while maintaining quality care Approaches: In-person caregiver support and transitional care ** Funders: BCBS; Care Providers of MN Foundation; UCare 5

Increase Detection and Improve Care Develop and disseminate Practice Tools that support providers in assessing, diagnosing, treating and managing dementia Foster effective linkages between clinical and community based organizations Develop dementia curriculum for health professionals and standards for health care homes ** U of MN Center on Aging (HRSA funds) 6

Sustain Caregivers Enhancements to MinnesotaHelp.info search feature to find housing and services that indicate capability in dementia or memory care Dementia capable Senior LinkAge Line staff and Caregiver Coaches **Leveraged DHS Systems Integration Grant 7

Equip Communities and Raise Awareness Develop a Community Toolkit to assist communities in becoming dementia capable so they can support their residents who are touched by Alzheimer’s disease Support community implementation of the toolkit *Toolkit development funded by Greater Twin Cities United Way 8

What is a Dementia Capable Community? A dementia capable community is informed, safe and respectful of individuals with dementia and their families, provides supportive options, and fosters quality of life. 9

Key Elements of a Dementia Capable Community 10

Dementia Capable Toolkit ACT on Alzheimer’s has developed a community toolkit that: – Is informed by research regarding community readiness and engagement – Provides a guide to engaging communities in order to create change 11

Phases of Community Toolkit Convene key community leaders and members to form an Action Team. Assess current strengths and gaps within the community. Analyze results and develop a plan to take action. ACT Together to pursue priority goals to foster community readiness for dementia. 12

Convene – Build Your Action Team 13

Assess Define your community Review sector- based surveys Determine who to survey and who will survey Ensure inclusion of diverse populations Adult day Caregiver supports Employers Health Care Providers Clinics Home Health Providers Hospitals Legal and Financial Planners Local Government Residential Settings Social Service Agencies Transportation Community Members 14

Assess – Gauge Current Capability Do members of your community: – Recognize the impact, nature and signs of dementia? – Know how to effectively interact with and serve people with dementia? – Have basic information about local supports and resources? 15

Assess –Collect Information Purpose Informal method to gauge community readiness, raise awareness and create momentum for change A conversation not a study Methods In-person (1:1 or in pairs) Telephone Electronic survey Group meetings ** Do what works! 16

Analyze—Synthesize Results Look for High Priority, Low Activity Areas of Need 17

ACT Together—Prioritize, Plan and Implement Train emergency responders “Certify” dementia friendly businesses Develop information campaign specific to supporting spiritual needs of people with dementia Train clinical providers 18

Pilot Communities Willmar Area Dementia Network (Willmar Area) Walker Community Coalition (Walker, MN) Twin Cities Jewish Community Alzheimer’s Task Force St. Louis Park/Hopkins Coalition St. Paul Neighborhoods Coalition 19

Community Experiences Forest Lake and Cambridge How did these communities become interested? Who is participating in their initial meetings? Where is each community at? St. Louis Park/ Hopkins How did you convene your team? How did you assess your community? What benefits are you seeing in conducting the assessment? 20

Potential Supports for Communities Building a community team Supporting a local coordinator Providing technical assistance Prioritizing and implementing goals that foster a dementia capable community Tracking and evaluating progress Communicating/Publicizing results ** Grant from Medica Foundation to begin support of community implementation 21

Community Engagement Plan COMMUNITIES 22 State and Local Public Health LTC Associations Stratis Health Area Agencies On Aging ACT on ALZ Technical Assistance Team Alzheimer’s Association

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