BME Health Forum Dementia Tuesday 29th September Karen McIvor Karen Brown Lisa Cavanagh Jen Goddard

Agenda Agenda itemLeadTiming Welcome and introductionsJen Goddard Dementia awareness training Karen Brown/Karen McIvor 20 mins Memory Assessment and Support Service and tri- borough Dementia Day and Community Services Review Jen Goddard/Lisa Cavanagh 5 mins Group discussionAll15 mins Group discussionAll30 mins

Dementia Awareness Training Dementia Clinical Support Team Sarah Richardson, Karen McIvor, Karen Brown

What do we do? Supporting GPs to identify and diagnose people with dementia Scoping exercise in all GP practices across Hammersmith & Fulham, Kensington & Chelsea and Westminster This is to develop Dementia friendly environments within GP practices Dementia Awareness training in GP practices

Course Content Below is an overview of what our training covers – we’re going to give you a taster today – What is dementia? – Types of dementia – Causes of dementia and risk factors – Signs and symptoms(Barbara’s story) – Treatment – Communication – Living well with dementia – Support for clients and carers

What is dementia? Dementia describes a set of symptoms that may include memory loss and difficulties with thinking, problem-solving or language, sight or visual difficulties and mood changes. These changes are often small to start with, but for someone with dementia they have become bad enough to affect daily life. Dementia is caused when the brain is damaged by disease which is progressive and degenerative. Dementia is not part of the natural ageing process.

Signs and Symptoms There are many signs and symptoms of dementia which may not always be present.

What causes dementia? Dementia is caused by physical changes in the brain. As dementia progresses, the structure and chemistry of the brain changes, leading to damage and gradual death of brain cells. Some factors may increase your risk of dementia – ‘risk factors’

What increases your risk of getting dementia? Risk factor Age – After the age of 65 the risk of developing Alzheimer's disease doubles approximately every 5 years. Genetic – There are genes that may cause of increase the rick of dementia but it’s still not fully understood Gender – Women are slightly more likely to develop Alzheimer's disease even if we discount the fact that women are more likely to live longer Healthy Lifestyle – Conditions that effect the heart, arteries or blood circulation all significantly affect a persons chance of developing dementia, particularly vascular dementia

Types of dementia Alzheimer’s disease (most common) Vascular dementia (second most common) Other types of dementia include: Mixed dementia Lewy body Dementia in Parkinsons Fronto Temporal Lobe Alcohol related (Korsakoff's syndrome) and many others are less common

How common is it? There are 850,000 people living with dementia in the UK

Living Well Your plans for the future may change but dementia does not change who you are. A diagnosis does not mean that you need to stop doing things you enjoy, you may just have to do them in a different way. Treat the person as an individual and support them in any way that is best for them.

Memory Assessment and Support Service, and tri- borough Dementia Day and Community Services Review Lisa Cavanagh Jen Goddard

Setting the scene Increase in prevalence and diagnosis rates across the tri-borough (Hammersmith and Fulham, Kensington and Chelsea, Westminster) Dementia Joint Strategic Needs Assessment and North West London Strategic review of Dementia What outcomes do we want to achieve? - Better community care, - Living as well as possible with dementia, at all stages of the condition - Supporting family members and carers of people living with dementia - Keeping people out of hospital and reducing length of hospital stays, - Compliance with the Care Act 2014

Work programmes Review of the tri-borough dementia day and community services so new services are in place by October 2016 Reviewing the current memory assessment service in Hammersmith and Fulham to put in place: o multidisciplinary o primary care based o memory assessment and post diagnostic support service

Discussion points 1.What would a good service look like from dementia diagnosis through to ongoing support after diagnosis? 2.What is missing currently from dementia services from diagnosis onwards? 3.How can services work better together to improve the service user/carer experience? 4.Any other comments/questions/thoughts?