Presentation on theme: "Children with Complex Needs"— Presentation transcript:
1Children with Complex Needs Beth McGeehanNurse Co-ordinator for Complex Disabilities
2Continuing Health Care Needs The Children's Continuing Care Nursing Forum was formed in 2007 to develop best practice and disseminate the evidence base of what works best forchildren and young people with complex health care needs
3Focusing on InclusionAccess to inclusive services is firmly placed within the context of recent legislation and policy initiatives.Disability Discrimination Act 2001Education (Additional Support for Learning) Scotland Act 2004Disability Equality Act 2006
4Community InclusionDisabled children and young people should be able to participate in all aspects of community lifeSchools are not only part of the community – they are communities themselvesChildren requiring intimate and personal care will vary in age, background and ethnicityIt may be necessary for a range of staff to carry out intimate care/invasive procedures in a variety of settings
5Children's Rights-Strategic Application The convention provides children with 3 types of rightsProvision-of services which aid their health, development and welfareProtection- the right to be protected from injury, harm and exploitationParticipation – the right to have a say in decisions which affect them.
6EmpowermentThe concept of empowerment is intimately linked to the principle of rights and responsibilities for individuals.
7Me Too ! Mencap 2001 Let me have fun with other children Let me learn to negotiate, take risks and make compromisesEnjoy physical activity, sports and games
8Values Underpinning Service Provision Access and empowermentClear standard of service provision for disabled children and their families from children's services.Responsive services and timely supportHealth, social services and education will provide a coordinated, timely, integrated service provision to disabled children and their families.Improving quality and capacityIn partnership with key agencies continue to increase the provision and quality of key services for disabled children and their families, including short breaks and childcare provision.
9The Key MessageNeeds of children must be seen within an empowered family contextAssessments for children’s continuing care must capture and consider the needs of the whole family. The child and family centred assessment process must be at the very heart of a children’s continuing care assessment process. All other aspects of the assessment process must be seen in the context of this assessment.Children’s continuing care assessments will have a very different focus to adult continuing care due to the principles of children’s practice which are wide and varied.Two key principles are paramount in children’s continuing care: -Parents are the experts and primary carers.Home is the centre of caring.
11I Got Life!Putting individuals and families in control to self manage complex and continuing healthcare needs“Improving care for children and young people with a long term condition is one of the biggest challenges facing health and social care organisations and demands wholesale change in the way they think, train and deliver/design services. The role of self care is crucial in people maintaining good health and taking care of their condition. Supporting self care provides benefits all round.”
12Supporting Self CareHistorically nursing practice has not focussed on developing self careFocus on control and cure – medical model of disabilityTruly supporting and empowering Children & Young People, requires all nurses to practice differently – social model of disability
13Delivering Care, Enabling Health (2006) Considers nurses contribution to health care policy3 crucial areas:CultureCapacityCapability
14Culture Working as part of multi-agency /multi-disciplinary teams Respecting peoples rights and diversityEducation and research base to support practice
15Capability Nurses rising to the health challenges Supporting self-care, patient empowermentManaging long-term conditionsReduction of health inequalities
16Capacity Workforce planning Nursing roles to meet current and future needs of the population –children with complex health care needsFlying start NHS – individuals first experience and influenceClinical supervision – flexible
17Barriers to accessing services Despite these improvements, parents identified problems in accessing universal services, hindering inclusion of their disabled child in society and placing unnecessary burdens on already stretched specialist services.A lack of skills and training make situations more difficult and upsetting for disabled children and their families.
18The Workforce – Current Situation Workforce issues need to be seen in the context of an increased emphasis on mainstreaming provision of services for disabled children.Disabled children and young people and their families can expect to come into contact with the full range of the children’s workforce, depending on the complexity of their needs.
20The Importance of the Workforce Good quality staff can transform a child and families experience of services. For many people, an outstanding member of staff can make an enormous impact on their lives by providing support, information, empathy and expertise.
21Good PracticeStaff and carers are placed in a position of great trust and responsibility. They are required to:-Attend to the safety and comfort of the child/young personEnsure he/she is treated with respect and dignity
22Health Care Plans (Administration of Medicines 2001) Each child with additional needs should have a health care planIt should include clear instructions on the specific procedureInformation for dealing with an emergency situationShould be drawn up in conjunction with the parent by the health care professional
23Health Care PlanPlan should be approved by a staff grade paediatrician or nurse from the children’s community nursing service or school health serviceIt should be reviewed annuallyShould identify all training requiredResponsible agency for delivering trainingIdentify named staff trainedDate of review/training should be identified
24Improving Service Quality and Capacity Services recognise, recruit and develop the right people.Development of Training and Teaching Frameworks
25Fulfilling the Potential of Every Disabled Child. The Managed Clinical Network for Children with Exceptional Health Care Needs is an opportunity to transform and improve services, outcomes and life chances for some of the most disadvantaged children within Scotland